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Primary care utilization among children with intellectual disabilities transitioning into adulthood

Stroh, Emilie LU orcid ; Kristensson, Jimmie LU ; Sandberg, Magnus LU orcid and Axmon, Anna LU orcid (2024) 11th Nordic Conference of Epidemiology and Register-Based Health Research
Abstract
Background: One of the most profound transitions in healthcare trajectories is when a person turns 18 years old and transfers from child to adult healthcare.

Methods: We included all children and adolescents living in Skåne in 2014 and turning 18 years old during the study period. The ID cohort (n=2 072) comprised those with diagnosis of ID and/or service and support for people with ID, and the general population (gPop) cohort the remaining 73 681 children and adolescents. Information on all healthcare contacts to physicians in public and privately organized primary care during the study period was collected from the Skåne Healthcare Register. For each person, the yearly number of healthcare contacts was calculated and related to... (More)
Background: One of the most profound transitions in healthcare trajectories is when a person turns 18 years old and transfers from child to adult healthcare.

Methods: We included all children and adolescents living in Skåne in 2014 and turning 18 years old during the study period. The ID cohort (n=2 072) comprised those with diagnosis of ID and/or service and support for people with ID, and the general population (gPop) cohort the remaining 73 681 children and adolescents. Information on all healthcare contacts to physicians in public and privately organized primary care during the study period was collected from the Skåne Healthcare Register. For each person, the yearly number of healthcare contacts was calculated and related to the year when the person turned 18 years old.

Results: Prior to turning 18, 44-46% of the ID cohort and 44-50% of the gPop cohort had at least one yearly contact with primary care (RR 0.94-1.02, all non-significant). The year of turning 18, the number of people with at least one contact rose to 63% in the ID cohort, whereas it remained at 52% in the gPop cohort. After turning 18, the number with at least one contact decreased from 56% to 24% in the ID cohort and from 42% to 15% in the gPop cohort (RR 1.47-1.88, all significant).

Conclusions: The results show a change in healthcare utilization patterns after becoming of age. This implies a need for more in-depth research concerning the underlying mechanisms for transition into adult healthcare. (Less)
Please use this url to cite or link to this publication:
author
; ; and
organization
publishing date
type
Contribution to conference
publication status
published
subject
conference name
11th Nordic Conference of Epidemiology and Register-Based Health Research
conference location
Copenhagen, Denmark
conference dates
2024-06-12 - 2024-06-14
project
Health care utilization in primary and specialist care among people with intellectual disability: A longitudinal register study
Support, health care, end-of-life care, and causes of death among people with intellectual disability: Effects of the Covid-19 pandemic
language
English
LU publication?
yes
id
e8a2ae60-25ac-403c-b8f3-401a2a45152f
alternative location
https://www.lupop.lu.se/idcare_nordicepi2024
date added to LUP
2024-06-17 10:12:09
date last changed
2024-06-17 16:02:42
@misc{e8a2ae60-25ac-403c-b8f3-401a2a45152f,
  abstract     = {{Background: One of the most profound transitions in healthcare trajectories is when a person turns 18 years old and transfers from child to adult healthcare.<br/><br/>Methods: We included all children and adolescents living in Skåne in 2014 and turning 18 years old during the study period. The ID cohort (n=2 072) comprised those with diagnosis of ID and/or service and support for people with ID, and the general population (gPop) cohort the remaining 73 681 children and adolescents. Information on all healthcare contacts to physicians in public and privately organized primary care during the study period was collected from the Skåne Healthcare Register. For each person, the yearly number of healthcare contacts was calculated and related to the year when the person turned 18 years old.<br/><br/>Results: Prior to turning 18, 44-46% of the ID cohort and 44-50% of the gPop cohort had at least one yearly contact with primary care (RR 0.94-1.02, all non-significant). The year of turning 18, the number of people with at least one contact rose to 63% in the ID cohort, whereas it remained at 52% in the gPop cohort. After turning 18, the number with at least one contact decreased from 56% to 24% in the ID cohort and from 42% to 15% in the gPop cohort (RR 1.47-1.88, all significant). <br/><br/>Conclusions: The results show a change in healthcare utilization patterns after becoming of age. This implies a need for more in-depth research concerning the underlying mechanisms for transition into adult healthcare.}},
  author       = {{Stroh, Emilie and Kristensson, Jimmie and Sandberg, Magnus and Axmon, Anna}},
  language     = {{eng}},
  month        = {{06}},
  title        = {{Primary care utilization among children with intellectual disabilities transitioning into adulthood}},
  url          = {{https://www.lupop.lu.se/idcare_nordicepi2024}},
  year         = {{2024}},
}