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How best to support individuals with IDD as they become frail : Development of a consensus statement

Ouellette-Kuntz, Hélène; Martin, Lynn; Burke, Eilish; McCallion, Philip; McCarron, Mary; McGlinchey, Eimear; Sandberg, Magnus LU ; Schoufour, Josje; Shooshtari, Shahin and Temple, Bev (2019) In Journal of Applied Research in Intellectual Disabilities 32(1). p.35-42
Abstract

Background: While higher rates and earlier onset of frailty have been reported among adults with intellectual and developmental disabilities (IDD), research on how best to support these individuals is lacking. Method: An international consultation relied on three consensus building methods: the Nominal Group Technique, an NIH consensus conference approach, and a Delphi survey. Results: There is agreement that person-centered planning and aging in place should be guiding principles. Frailty must be considered earlier than in the general population with the recognition that improvement and maintenance are viable goals. Intersectoral collaboration is needed to coordinate assessments and actions. Safety and planning for the future are... (More)

Background: While higher rates and earlier onset of frailty have been reported among adults with intellectual and developmental disabilities (IDD), research on how best to support these individuals is lacking. Method: An international consultation relied on three consensus building methods: the Nominal Group Technique, an NIH consensus conference approach, and a Delphi survey. Results: There is agreement that person-centered planning and aging in place should be guiding principles. Frailty must be considered earlier than in the general population with the recognition that improvement and maintenance are viable goals. Intersectoral collaboration is needed to coordinate assessments and actions. Safety and planning for the future are important planning considerations, as are the needs of caregivers. Ongoing research is needed. Conclusion: The statement offers guidance to respond to frailty among adults with IDD and fosters ongoing exchange internationally on best practice. As new evidence emerges, the statement should be revisited and revised.

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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
aging, consensus, developmental disabilities, frailty, intellectual disabilities
in
Journal of Applied Research in Intellectual Disabilities
volume
32
issue
1
pages
8 pages
publisher
Wiley-Blackwell
external identifiers
  • scopus:85057975502
ISSN
1360-2322
DOI
10.1111/jar.12499
language
English
LU publication?
yes
id
e8e4a6d9-1df2-4f58-a0e1-cd606b567522
date added to LUP
2018-12-18 13:03:27
date last changed
2019-02-20 11:40:16
@article{e8e4a6d9-1df2-4f58-a0e1-cd606b567522,
  abstract     = {<p>Background: While higher rates and earlier onset of frailty have been reported among adults with intellectual and developmental disabilities (IDD), research on how best to support these individuals is lacking. Method: An international consultation relied on three consensus building methods: the Nominal Group Technique, an NIH consensus conference approach, and a Delphi survey. Results: There is agreement that person-centered planning and aging in place should be guiding principles. Frailty must be considered earlier than in the general population with the recognition that improvement and maintenance are viable goals. Intersectoral collaboration is needed to coordinate assessments and actions. Safety and planning for the future are important planning considerations, as are the needs of caregivers. Ongoing research is needed. Conclusion: The statement offers guidance to respond to frailty among adults with IDD and fosters ongoing exchange internationally on best practice. As new evidence emerges, the statement should be revisited and revised.</p>},
  author       = {Ouellette-Kuntz, Hélène and Martin, Lynn and Burke, Eilish and McCallion, Philip and McCarron, Mary and McGlinchey, Eimear and Sandberg, Magnus and Schoufour, Josje and Shooshtari, Shahin and Temple, Bev},
  issn         = {1360-2322},
  keyword      = {aging,consensus,developmental disabilities,frailty,intellectual disabilities},
  language     = {eng},
  number       = {1},
  pages        = {35--42},
  publisher    = {Wiley-Blackwell},
  series       = {Journal of Applied Research in Intellectual Disabilities},
  title        = {How best to support individuals with IDD as they become frail : Development of a consensus statement},
  url          = {http://dx.doi.org/10.1111/jar.12499},
  volume       = {32},
  year         = {2019},
}