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The “Managing Fatigue” Programme – Experiences Shared by participants with Multiple Sclerosis

Gillisdotter, Anna ; Regardt, Malin and Månsson Lexell, Eva LU orcid (2020) 2nd COTEC-ENOTHE CONGRESS 2020
https://ot-europe2020.exordo.com
Abstract
Background: The “Managing Fatigue” program can help participants manage fatigue in their everyday lives. The programme has been proven feasible with Swedish occupational therapists, but there is a lack of knowledge of how participants experience the programme.

Aim: To describe how Swedish MS participants experience the content and structure of the Swedish MF programme, as well as lessons learned from participating in the programme.

Material and Methods: Qualitative interviews were performed with nine MS participants, and data were analyzed according to direct content analysis.

Results: Participants experienced programme material was relevant, and they valued the structured sessions that utilized different... (More)
Background: The “Managing Fatigue” program can help participants manage fatigue in their everyday lives. The programme has been proven feasible with Swedish occupational therapists, but there is a lack of knowledge of how participants experience the programme.

Aim: To describe how Swedish MS participants experience the content and structure of the Swedish MF programme, as well as lessons learned from participating in the programme.

Material and Methods: Qualitative interviews were performed with nine MS participants, and data were analyzed according to direct content analysis.

Results: Participants experienced programme material was relevant, and they valued the structured sessions that utilized different teaching forms. Participants described the group format and the experienced course leader nurtured their learning process. They said they learned occupational skills to save energy, to re-value daily occupations, and initiated a process of change, but individual support is needed after programme completion.

Conclusion and Significance: Findings support programme feasibility among MS participants, and show the importance of being able to practice skills to handle fatigue in everyday life. Future studies should focus on which outcome measures that can best detect changes of engagement in occupations, and utilize these outcome measures when the effectiveness of the programme is evaluated. (Less)
Abstract (Swedish)

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author
; and
organization
publishing date
type
Contribution to conference
publication status
published
subject
conference name
2nd COTEC-ENOTHE CONGRESS 2020<br/>https://ot-europe2020.exordo.com
conference dates
2021-09-15 - 2021-09-18
language
English
LU publication?
yes
id
ee198da8-d4db-4c17-9b0b-238659626a1b
alternative location
https://ot-europe2020.exordo.com/programme/presentation/1800
date added to LUP
2021-12-08 13:13:15
date last changed
2021-12-09 07:31:02
@misc{ee198da8-d4db-4c17-9b0b-238659626a1b,
  abstract     = {{Background: The “Managing Fatigue” program can help participants manage fatigue in their everyday lives. The programme has been proven feasible with Swedish occupational therapists, but there is a lack of knowledge of how participants experience the programme.<br/><br/>Aim: To describe how Swedish MS participants experience the content and structure of the Swedish MF programme, as well as lessons learned from participating in the programme.<br/><br/>Material and Methods: Qualitative interviews were performed with nine MS participants, and data were analyzed according to direct content analysis.<br/><br/>Results: Participants experienced programme material was relevant, and they valued the structured sessions that utilized different teaching forms. Participants described the group format and the experienced course leader nurtured their learning process. They said they learned occupational skills to save energy, to re-value daily occupations, and initiated a process of change, but individual support is needed after programme completion.<br/><br/>Conclusion and Significance: Findings support programme feasibility among MS participants, and show the importance of being able to practice skills to handle fatigue in everyday life. Future studies should focus on which outcome measures that can best detect changes of engagement in occupations, and utilize these outcome measures when the effectiveness of the programme is evaluated.}},
  author       = {{Gillisdotter, Anna and Regardt, Malin and Månsson Lexell, Eva}},
  language     = {{eng}},
  title        = {{The “Managing Fatigue” Programme – Experiences Shared by participants with Multiple Sclerosis}},
  url          = {{https://ot-europe2020.exordo.com/programme/presentation/1800}},
  year         = {{2020}},
}