Activity and participation among people with Late Effects of Polio admitted to comprehensive rehabilitation
(2024)- Abstract
- Late effects of polio (LEoP), a chronic progressive neuromuscular condition that affects people who have had polio earlier in life. LEoP manifests with new symptoms such as muscle weakness, fatigue, and pain, and can also have consequences for an individual’s level of activity and participation. People with LEoP can benefit from comprehensive rehabilitation, with focus on enabling activity and participation, yet the understanding of the benefits of comprehensive rehabilitation remains limited. During comprehensive rehabilitation, outcome measures are often chosen based on the International Classification of Functioning, Disability, and Health (ICF), including measures of activity and participation. Common measures in these ares are the... (More)
- Late effects of polio (LEoP), a chronic progressive neuromuscular condition that affects people who have had polio earlier in life. LEoP manifests with new symptoms such as muscle weakness, fatigue, and pain, and can also have consequences for an individual’s level of activity and participation. People with LEoP can benefit from comprehensive rehabilitation, with focus on enabling activity and participation, yet the understanding of the benefits of comprehensive rehabilitation remains limited. During comprehensive rehabilitation, outcome measures are often chosen based on the International Classification of Functioning, Disability, and Health (ICF), including measures of activity and participation. Common measures in these ares are the Canadian Occupational Performance Measure (COPM) and the Reintegration to Normal Living Index (RNL-I). Still, very few studies have focused on activity and participation in people with LEoP.
The overall aim of this licentiate thesis was to increase knowledge about activity and participation among people with LEoP who were admitted to and received comprehensive rehabilitation. That is, how activity and participation can be assessed and evaluated in relation to a comprehensive rehabilitation period, and how people with LEoP change their activity and participation after a comprehensive rehabilitation period.
Two quantitative studies were conducted using data from 102 participants with LEoP, collected retrospectively from a clinical database. The participants had been admitted to comprehensive rehabilitation between 2004-2015.
Study I, a cross-sectional study, aimed to explore the association between self-perceived performance (COPM performance), satisfaction (COPM satisfaction) in daily activities, and self-reported participation (RNL-I) among people with LEoP on admission to comprehensive rehabilitation. The data were analyzed with linear regression. The analysis was conducted in two steps, as an explorative analysis emerged during the analysis process.
In study II, the methodology involved a pre-post retrospective analysis of 102 LEoP participants, assessing changes in COPM performance and COPM satisfaction, using the COPM on admission and at discharge for people admitted to comprehensive rehabilitation. The analysis was conducted using descriptive statistics and a paired sample t-test.
Results showed that both COPM performance and COPM satisfaction were significantly associated with self-reported participation (RNL-I). Specifically, COPM performance in the subgroup COPM self-care correlated with RNL-I Daily Functioning. COPM satisfaction in the subgroup COPM leisure correlated with RNL-I Perception of Self. Results also indicated significant increases in mean COPM performance and mean COPM satisfaction scores from admission to discharge. However, a notable proportion of participants showed no change or even lower ratings at discharge, indicating a need for longer follow-ups.
In conclusion, COPM and RNL-I partly measure similar aspects of activity and participation, and both assessments are vital in comprehensive rehabilitation. Comprehensive rehabilitation can enhance self-rated performance and satisfaction with performance among people with LEoP. Additional assessments covering diverse activity and participation aspects may be necessary. To measure change in activity and participation, there is a need for longer follow-ups studies to capture the change. Such insights are crucial not only for occupational therapists but also for other rehabilitation professionals working with people with LEoP.
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Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/f6039b47-bd0a-40de-983a-49a0509d1031
- author
- Appelin, Katja LU
- supervisor
- opponent
-
- PhD Santos Tavares, Iolanda, Göteborgs universitet
- organization
- publishing date
- 2024
- type
- Thesis
- publication status
- published
- subject
- keywords
- rehabilitation,occupational performance, post-poliomyelitis syndrome, outcome measures, change
- pages
- 54 pages
- publisher
- Lund University, Faculty of Medicine
- defense location
- Rådslaget, Forum Medicum, E:11073, Sölvegatan 17, Lund
- defense date
- 2024-06-14 09:00:00
- ISBN
- 978-91-8021-590-9
- language
- English
- LU publication?
- yes
- id
- f6039b47-bd0a-40de-983a-49a0509d1031
- date added to LUP
- 2024-06-20 15:37:32
- date last changed
- 2025-04-04 14:46:17
@misc{f6039b47-bd0a-40de-983a-49a0509d1031,
abstract = {{Late effects of polio (LEoP), a chronic progressive neuromuscular condition that affects people who have had polio earlier in life. LEoP manifests with new symptoms such as muscle weakness, fatigue, and pain, and can also have consequences for an individual’s level of activity and participation. People with LEoP can benefit from comprehensive rehabilitation, with focus on enabling activity and participation, yet the understanding of the benefits of comprehensive rehabilitation remains limited. During comprehensive rehabilitation, outcome measures are often chosen based on the International Classification of Functioning, Disability, and Health (ICF), including measures of activity and participation. Common measures in these ares are the Canadian Occupational Performance Measure (COPM) and the Reintegration to Normal Living Index (RNL-I). Still, very few studies have focused on activity and participation in people with LEoP.<br/>The overall aim of this licentiate thesis was to increase knowledge about activity and participation among people with LEoP who were admitted to and received comprehensive rehabilitation. That is, how activity and participation can be assessed and evaluated in relation to a comprehensive rehabilitation period, and how people with LEoP change their activity and participation after a comprehensive rehabilitation period.<br/>Two quantitative studies were conducted using data from 102 participants with LEoP, collected retrospectively from a clinical database. The participants had been admitted to comprehensive rehabilitation between 2004-2015.<br/>Study I, a cross-sectional study, aimed to explore the association between self-perceived performance (COPM performance), satisfaction (COPM satisfaction) in daily activities, and self-reported participation (RNL-I) among people with LEoP on admission to comprehensive rehabilitation. The data were analyzed with linear regression. The analysis was conducted in two steps, as an explorative analysis emerged during the analysis process.<br/>In study II, the methodology involved a pre-post retrospective analysis of 102 LEoP participants, assessing changes in COPM performance and COPM satisfaction, using the COPM on admission and at discharge for people admitted to comprehensive rehabilitation. The analysis was conducted using descriptive statistics and a paired sample t-test. <br/>Results showed that both COPM performance and COPM satisfaction were significantly associated with self-reported participation (RNL-I). Specifically, COPM performance in the subgroup COPM self-care correlated with RNL-I Daily Functioning. COPM satisfaction in the subgroup COPM leisure correlated with RNL-I Perception of Self. Results also indicated significant increases in mean COPM performance and mean COPM satisfaction scores from admission to discharge. However, a notable proportion of participants showed no change or even lower ratings at discharge, indicating a need for longer follow-ups. <br/>In conclusion, COPM and RNL-I partly measure similar aspects of activity and participation, and both assessments are vital in comprehensive rehabilitation. Comprehensive rehabilitation can enhance self-rated performance and satisfaction with performance among people with LEoP. Additional assessments covering diverse activity and participation aspects may be necessary. To measure change in activity and participation, there is a need for longer follow-ups studies to capture the change. Such insights are crucial not only for occupational therapists but also for other rehabilitation professionals working with people with LEoP.<br/>}},
author = {{Appelin, Katja}},
isbn = {{978-91-8021-590-9}},
keywords = {{rehabilitation,occupational performance, post-poliomyelitis syndrome, outcome measures, change}},
language = {{eng}},
note = {{Licentiate Thesis}},
publisher = {{Lund University, Faculty of Medicine}},
title = {{Activity and participation among people with Late Effects of Polio admitted to comprehensive rehabilitation}},
url = {{https://lup.lub.lu.se/search/files/201020417/Katja_Appelin.pdf}},
year = {{2024}},
}