The National Spina Bifida Program transition initiative : the people, the plan, and the process
(2010) In Pediatric Clinics of North America 57(4). p.903-910- Abstract
This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.
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https://lup.lub.lu.se/record/0985c679-1106-4a1c-ad86-86cb4b42c0e8
- author
- Thibadeau, Judy K. ; Alriksson-Schmidt, Ann LU and Zabel, TA
- publishing date
- 2010
- type
- Contribution to journal
- publication status
- published
- keywords
- Comprehensive Health Care/organization & administration, Continuity of Patient Care/organization & administration, Humans, Models, Organizational, Program Evaluation/methods, Quality of Health Care, Spinal Dysraphism/therapy, Systems Integration
- in
- Pediatric Clinics of North America
- volume
- 57
- issue
- 4
- pages
- 8 pages
- publisher
- W.B. Saunders
- external identifiers
-
- scopus:77957146044
- pmid:20883880
- ISSN
- 0031-3955
- DOI
- 10.1016/j.pcl.2010.07.010
- language
- English
- LU publication?
- no
- id
- 0985c679-1106-4a1c-ad86-86cb4b42c0e8
- date added to LUP
- 2016-11-22 12:51:04
- date last changed
- 2024-03-22 12:04:57
@article{0985c679-1106-4a1c-ad86-86cb4b42c0e8, abstract = {{<p>This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.</p>}}, author = {{Thibadeau, Judy K. and Alriksson-Schmidt, Ann and Zabel, TA}}, issn = {{0031-3955}}, keywords = {{Comprehensive Health Care/organization & administration; Continuity of Patient Care/organization & administration; Humans; Models, Organizational; Program Evaluation/methods; Quality of Health Care; Spinal Dysraphism/therapy; Systems Integration}}, language = {{eng}}, number = {{4}}, pages = {{903--910}}, publisher = {{W.B. Saunders}}, series = {{Pediatric Clinics of North America}}, title = {{The National Spina Bifida Program transition initiative : the people, the plan, and the process}}, url = {{http://dx.doi.org/10.1016/j.pcl.2010.07.010}}, doi = {{10.1016/j.pcl.2010.07.010}}, volume = {{57}}, year = {{2010}}, }