Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)
(2006) In Pediatric Blood & Cancer 47(Suppl.5). p.688-691- Abstract
- Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and... (More)
- Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/393983
- author
- von Mackensen, S. ; Nilsson, Cecilia LU ; Jankovic, M. ; Mirra, N. ; D'Angelo, E. ; Borkhardt, A. and Ljung, Rolf LU
- organization
- publishing date
- 2006
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- children, ITP, quality of life
- in
- Pediatric Blood & Cancer
- volume
- 47
- issue
- Suppl.5
- pages
- 688 - 691
- publisher
- John Wiley & Sons Inc.
- external identifiers
-
- wos:000240405600015
- scopus:33748504143
- pmid:16933256
- ISSN
- 1545-5017
- DOI
- 10.1002/pbc.20977
- language
- English
- LU publication?
- yes
- id
- 6ddc30cd-232d-4a9a-945d-f3106e010149 (old id 393983)
- date added to LUP
- 2016-04-01 12:37:53
- date last changed
- 2022-01-27 07:44:53
@article{6ddc30cd-232d-4a9a-945d-f3106e010149, abstract = {{Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc.}}, author = {{von Mackensen, S. and Nilsson, Cecilia and Jankovic, M. and Mirra, N. and D'Angelo, E. and Borkhardt, A. and Ljung, Rolf}}, issn = {{1545-5017}}, keywords = {{children; ITP; quality of life}}, language = {{eng}}, number = {{Suppl.5}}, pages = {{688--691}}, publisher = {{John Wiley & Sons Inc.}}, series = {{Pediatric Blood & Cancer}}, title = {{Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)}}, url = {{http://dx.doi.org/10.1002/pbc.20977}}, doi = {{10.1002/pbc.20977}}, volume = {{47}}, year = {{2006}}, }