Living With Intestinal Failure Caused by Crohn Disease: Not Letting the Disease Conquer Life.
Carlsson, Eva and Persson, Eva I LU
(2015)
In Gastroenterology nursing : the official journal of the Society of Gastroenterology Nurses and Associates
38(1).
p.12-20
- Abstract
- This article reports the findings of what it means to live with intestinal failure caused by Crohn disease and how it influences daily life. Ten patients, 7 with an ostomy and 7 on home parenteral nutrition followed up at an outpatient clinic for patients with intestinal failure, were interviewed using a qualitative, phenomenological-hermeneutic method. The analysis of the transcribed data is described thematically and resulted in 3 main themes; (a) struggling to not be controlled by the disease, (b) walking on a thin thread, and (c) being seen as a person, not just as a patient. These themes led to the comprehensive understanding that living with intestinal failure was interpreted as the criticality of maintaining control over one's life... (More)
- This article reports the findings of what it means to live with intestinal failure caused by Crohn disease and how it influences daily life. Ten patients, 7 with an ostomy and 7 on home parenteral nutrition followed up at an outpatient clinic for patients with intestinal failure, were interviewed using a qualitative, phenomenological-hermeneutic method. The analysis of the transcribed data is described thematically and resulted in 3 main themes; (a) struggling to not be controlled by the disease, (b) walking on a thin thread, and (c) being seen as a person, not just as a patient. These themes led to the comprehensive understanding that living with intestinal failure was interpreted as the criticality of maintaining control over one's life and body while maintaining autonomy and not letting the disease conquer life. Life entails a constant struggle with much planning to live as normally as possible and get the most out of life. It was of great importance to be seen as a person and not just as a disease, affirm that life as it is has meaning, there is a state of suffering related to the disease, there are existential issues, and suffering is related to care. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/5038947
- author
- Carlsson, Eva
and Persson, Eva I
LU
- organization
- publishing date
- 2015
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Gastroenterology nursing : the official journal of the Society of Gastroenterology Nurses and Associates
- volume
- 38
- issue
- 1
- pages
- 12 - 20
- publisher
- Lippincott Williams & Wilkins
- external identifiers
-
- pmid:25636009
- wos:000349398300002
- scopus:84925843062
- pmid:25636009
- ISSN
- 1538-9766
- DOI
- 10.1097/SGA.0000000000000085
- language
- English
- LU publication?
- yes
- id
- 0274f2c7-6125-45b5-9e53-3ec3c1eeb45a (old id 5038947)
- alternative location
- http://www.ncbi.nlm.nih.gov/pubmed/25636009?dopt=Abstract
- date added to LUP
- 2016-04-01 10:18:11
- date last changed
- 2022-04-12 04:58:53
@article{0274f2c7-6125-45b5-9e53-3ec3c1eeb45a,
abstract = {{This article reports the findings of what it means to live with intestinal failure caused by Crohn disease and how it influences daily life. Ten patients, 7 with an ostomy and 7 on home parenteral nutrition followed up at an outpatient clinic for patients with intestinal failure, were interviewed using a qualitative, phenomenological-hermeneutic method. The analysis of the transcribed data is described thematically and resulted in 3 main themes; (a) struggling to not be controlled by the disease, (b) walking on a thin thread, and (c) being seen as a person, not just as a patient. These themes led to the comprehensive understanding that living with intestinal failure was interpreted as the criticality of maintaining control over one's life and body while maintaining autonomy and not letting the disease conquer life. Life entails a constant struggle with much planning to live as normally as possible and get the most out of life. It was of great importance to be seen as a person and not just as a disease, affirm that life as it is has meaning, there is a state of suffering related to the disease, there are existential issues, and suffering is related to care.}},
author = {{Carlsson, Eva and Persson, Eva I}},
issn = {{1538-9766}},
language = {{eng}},
number = {{1}},
pages = {{12--20}},
publisher = {{Lippincott Williams & Wilkins}},
series = {{Gastroenterology nursing : the official journal of the Society of Gastroenterology Nurses and Associates}},
title = {{Living With Intestinal Failure Caused by Crohn Disease: Not Letting the Disease Conquer Life.}},
url = {{http://dx.doi.org/10.1097/SGA.0000000000000085}},
doi = {{10.1097/SGA.0000000000000085}},
volume = {{38}},
year = {{2015}},
}