Next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes : a phenomenographic study
(2019) In Scandinavian Journal of Caring Sciences 33(2). p.400-408- Abstract
BACKGROUND: Being involved in the care of a loved one is a desire of many next of kin. However, according to several studies of the perceptions of nursing home staff, the involvement of next of kin is not an obvious part of care. To be able to involve next of kin in care at nursing homes, the perceptions of what participation means are an important piece of knowledge. The aim of this study was therefore to describe variations in next of kin's perceptions of the meaning of participation in the care of older persons living in nursing homes.
METHODS: Eighteen next of kin of older persons living in ten nursing homes in Sweden were recruited for interviews. The study design was based on a phenomenographic approach, focusing on the... (More)
BACKGROUND: Being involved in the care of a loved one is a desire of many next of kin. However, according to several studies of the perceptions of nursing home staff, the involvement of next of kin is not an obvious part of care. To be able to involve next of kin in care at nursing homes, the perceptions of what participation means are an important piece of knowledge. The aim of this study was therefore to describe variations in next of kin's perceptions of the meaning of participation in the care of older persons living in nursing homes.
METHODS: Eighteen next of kin of older persons living in ten nursing homes in Sweden were recruited for interviews. The study design was based on a phenomenographic approach, focusing on the qualitatively different ways in which a person perceives, experiences or conceptualises a phenomenon or certain aspect of reality.
RESULTS: Five categories emerged from analysis of the interviews, representing the next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes: be present; communicate; monitor; do practical tasks; and to represent. The next of kin expressed meanings that belonged to more than one category, and the categories were interdependent.
CONCLUSIONS: Our results indicate that there are several meanings of next of kin's perceptions of participation at nursing homes. Nursing home staff's knowledge of these perceptions is important to enable next of kin to participate according to their own preferences.
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- author
- Ekström, Kajsa ; Spelmans, Sanna ; Ahlström, Gerd LU ; Nilsen, Per ; Alftberg, Åsa LU ; Wallerstedt, Birgitta and Behm, Lina LU
- organization
- publishing date
- 2019-01-03
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Scandinavian Journal of Caring Sciences
- volume
- 33
- issue
- 2
- pages
- 9 pages
- publisher
- Wiley-Blackwell
- external identifiers
-
- scopus:85059521388
- pmid:30604875
- ISSN
- 1471-6712
- DOI
- 10.1111/scs.12636
- project
- Implementation of Knowledge-Based Palliative Care for Frail Older Persons in Nursing Homes
- language
- English
- LU publication?
- yes
- id
- a050b30f-ff66-4a0d-9362-240727f2c46d
- date added to LUP
- 2019-01-10 13:05:49
- date last changed
- 2024-09-17 11:31:48
@article{a050b30f-ff66-4a0d-9362-240727f2c46d, abstract = {{<p>BACKGROUND: Being involved in the care of a loved one is a desire of many next of kin. However, according to several studies of the perceptions of nursing home staff, the involvement of next of kin is not an obvious part of care. To be able to involve next of kin in care at nursing homes, the perceptions of what participation means are an important piece of knowledge. The aim of this study was therefore to describe variations in next of kin's perceptions of the meaning of participation in the care of older persons living in nursing homes.</p><p>METHODS: Eighteen next of kin of older persons living in ten nursing homes in Sweden were recruited for interviews. The study design was based on a phenomenographic approach, focusing on the qualitatively different ways in which a person perceives, experiences or conceptualises a phenomenon or certain aspect of reality.</p><p>RESULTS: Five categories emerged from analysis of the interviews, representing the next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes: be present; communicate; monitor; do practical tasks; and to represent. The next of kin expressed meanings that belonged to more than one category, and the categories were interdependent.</p><p>CONCLUSIONS: Our results indicate that there are several meanings of next of kin's perceptions of participation at nursing homes. Nursing home staff's knowledge of these perceptions is important to enable next of kin to participate according to their own preferences.</p>}}, author = {{Ekström, Kajsa and Spelmans, Sanna and Ahlström, Gerd and Nilsen, Per and Alftberg, Åsa and Wallerstedt, Birgitta and Behm, Lina}}, issn = {{1471-6712}}, language = {{eng}}, month = {{01}}, number = {{2}}, pages = {{400--408}}, publisher = {{Wiley-Blackwell}}, series = {{Scandinavian Journal of Caring Sciences}}, title = {{Next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes : a phenomenographic study}}, url = {{http://dx.doi.org/10.1111/scs.12636}}, doi = {{10.1111/scs.12636}}, volume = {{33}}, year = {{2019}}, }