A family perspective : how this product can inform and empower families of youth with spina bifida
(2010) In Pediatric Clinics of North America 57(4). p.34-919- Abstract
This article focuses on how the Life Course Model Web site can help family members build on the strengths of individuals with spina bifida and address areas of difficulty. A developmental perspective is adopted, which maintains that the Life Course Model Web site is useful at all stages of development, with the information provided for families at one stage of development building on the information provided for those at earlier stages of development. A brief overview is provided of relevant theories that supported the development of the Life Course Model. There is a review of the literature on the adjustment of families of individuals with spina bifida and the psychosocial adjustment of affected youth. How families may benefit from... (More)
This article focuses on how the Life Course Model Web site can help family members build on the strengths of individuals with spina bifida and address areas of difficulty. A developmental perspective is adopted, which maintains that the Life Course Model Web site is useful at all stages of development, with the information provided for families at one stage of development building on the information provided for those at earlier stages of development. A brief overview is provided of relevant theories that supported the development of the Life Course Model. There is a review of the literature on the adjustment of families of individuals with spina bifida and the psychosocial adjustment of affected youth. How families may benefit from engagement with the 3 content areas covered by the Web site is discussed, namely child health and the transfer of medical management from parent to child (health/self-management), the development of social relationships (social relationships), and the achievement of milestones during emerging adulthood, including achievements in the areas of education and employment (education, employment, and income support).
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- author
- Holmbeck, Grayson ; Alriksson-Schmidt, Ann LU ; Bellin, MH ; Betz, C. and Devine, KA
- publishing date
- 2010
- type
- Contribution to journal
- publication status
- published
- keywords
- Computer Simulation, Family/psychology, Guidelines as Topic, Humans, Internet, Quality of Life/psychology, Spinal Dysraphism/psychology, Young Adult
- in
- Pediatric Clinics of North America
- volume
- 57
- issue
- 4
- pages
- 16 pages
- publisher
- W.B. Saunders
- external identifiers
-
- scopus:77957171436
- pmid:20883882
- pmid:20883882
- ISSN
- 0031-3955
- DOI
- 10.1016/j.pcl.2010.07.012
- language
- English
- LU publication?
- no
- id
- a66b32ef-1bd9-4889-911f-7aa8c7061d01
- date added to LUP
- 2016-11-22 12:48:32
- date last changed
- 2024-01-04 16:53:11
@article{a66b32ef-1bd9-4889-911f-7aa8c7061d01,
abstract = {{<p>This article focuses on how the Life Course Model Web site can help family members build on the strengths of individuals with spina bifida and address areas of difficulty. A developmental perspective is adopted, which maintains that the Life Course Model Web site is useful at all stages of development, with the information provided for families at one stage of development building on the information provided for those at earlier stages of development. A brief overview is provided of relevant theories that supported the development of the Life Course Model. There is a review of the literature on the adjustment of families of individuals with spina bifida and the psychosocial adjustment of affected youth. How families may benefit from engagement with the 3 content areas covered by the Web site is discussed, namely child health and the transfer of medical management from parent to child (health/self-management), the development of social relationships (social relationships), and the achievement of milestones during emerging adulthood, including achievements in the areas of education and employment (education, employment, and income support).</p>}},
author = {{Holmbeck, Grayson and Alriksson-Schmidt, Ann and Bellin, MH and Betz, C. and Devine, KA}},
issn = {{0031-3955}},
keywords = {{Computer Simulation; Family/psychology; Guidelines as Topic; Humans; Internet; Quality of Life/psychology; Spinal Dysraphism/psychology; Young Adult}},
language = {{eng}},
number = {{4}},
pages = {{34--919}},
publisher = {{W.B. Saunders}},
series = {{Pediatric Clinics of North America}},
title = {{A family perspective : how this product can inform and empower families of youth with spina bifida}},
url = {{http://dx.doi.org/10.1016/j.pcl.2010.07.012}},
doi = {{10.1016/j.pcl.2010.07.012}},
volume = {{57}},
year = {{2010}},
}