The Core of Parents’ Main Concerns When Having a Child With Cataract and Its Clinical Implications
(2019) In Journal of Pediatric Nursing 44. p.45-51- Abstract
Purpose: To investigate the main concerns associated with being a parent of a child with cataract and how the parents deal with these concerns. Design and method: Twenty-three parents; 6 mothers, 5 fathers and 6 couples with a child with cataract were included in this study. The parents included some with a personal experience of cataract and some without. Data was collected through 17 in-depth interviews, which were recorded and transcribed verbatim for analysis by the method of Grounded Theory developed by Charmaz. Results: The Grounded Theory describes the parents’ efforts to balance the child's inability and ability in order to maintain their social functioning and lead a normal life through a process comprising four main... (More)
Purpose: To investigate the main concerns associated with being a parent of a child with cataract and how the parents deal with these concerns. Design and method: Twenty-three parents; 6 mothers, 5 fathers and 6 couples with a child with cataract were included in this study. The parents included some with a personal experience of cataract and some without. Data was collected through 17 in-depth interviews, which were recorded and transcribed verbatim for analysis by the method of Grounded Theory developed by Charmaz. Results: The Grounded Theory describes the parents’ efforts to balance the child's inability and ability in order to maintain their social functioning and lead a normal life through a process comprising four main categories; Mastering, Collaborating, Facilitating, and Adapting. This process makes the path of transition evident, starting when the child is diagnosed and continuing for several years during her/his growth and development. Conclusion: The core of parent-child interaction is mastering the balance between the child's disability and ability in order to achieve the best possible outcome, visually and habitually. The interactions changes through a process towards adjustment and acceptance. All the parents emphasized that you do what you have to do to achieve a successful visual outcome of the child. Clinical implications: The model provides a comprehensive understanding of parental self-management that can be used by a case manager, preferable a nurse, to pilot the parents through the process.
(Less)
- author
- Gyllén, Jenny ; Magnusson, Gunilla and Forsberg, Anna LU
- organization
- publishing date
- 2019
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Adaptation, Grounded Theory, Parents, Pediatric cataract, Transition
- in
- Journal of Pediatric Nursing
- volume
- 44
- pages
- 45 - 51
- publisher
- Elsevier
- external identifiers
-
- pmid:30414752
- scopus:85056172899
- ISSN
- 0882-5963
- DOI
- 10.1016/j.pedn.2018.10.017
- language
- English
- LU publication?
- yes
- id
- f6d1c7b7-6aca-4f41-afdd-d0802141e2fc
- date added to LUP
- 2018-11-23 12:44:25
- date last changed
- 2024-02-14 11:10:30
@article{f6d1c7b7-6aca-4f41-afdd-d0802141e2fc,
abstract = {{<p>Purpose: To investigate the main concerns associated with being a parent of a child with cataract and how the parents deal with these concerns. Design and method: Twenty-three parents; 6 mothers, 5 fathers and 6 couples with a child with cataract were included in this study. The parents included some with a personal experience of cataract and some without. Data was collected through 17 in-depth interviews, which were recorded and transcribed verbatim for analysis by the method of Grounded Theory developed by Charmaz. Results: The Grounded Theory describes the parents’ efforts to balance the child's inability and ability in order to maintain their social functioning and lead a normal life through a process comprising four main categories; Mastering, Collaborating, Facilitating, and Adapting. This process makes the path of transition evident, starting when the child is diagnosed and continuing for several years during her/his growth and development. Conclusion: The core of parent-child interaction is mastering the balance between the child's disability and ability in order to achieve the best possible outcome, visually and habitually. The interactions changes through a process towards adjustment and acceptance. All the parents emphasized that you do what you have to do to achieve a successful visual outcome of the child. Clinical implications: The model provides a comprehensive understanding of parental self-management that can be used by a case manager, preferable a nurse, to pilot the parents through the process.</p>}},
author = {{Gyllén, Jenny and Magnusson, Gunilla and Forsberg, Anna}},
issn = {{0882-5963}},
keywords = {{Adaptation; Grounded Theory; Parents; Pediatric cataract; Transition}},
language = {{eng}},
pages = {{45--51}},
publisher = {{Elsevier}},
series = {{Journal of Pediatric Nursing}},
title = {{The Core of Parents’ Main Concerns When Having a Child With Cataract and Its Clinical Implications}},
url = {{http://dx.doi.org/10.1016/j.pedn.2018.10.017}},
doi = {{10.1016/j.pedn.2018.10.017}},
volume = {{44}},
year = {{2019}},
}