Potential adult sibling stem cell donors' perceptions and opinions regarding an information and care model.
(2013) In Bone Marrow Transplantation 48(8). p.1133-1137- Abstract
- The first international recommendations and guidelines for the care of sibling stem cell donors were established in 2010, and have not yet been evaluated. However, a model for information and care of adult potential sibling stem cell donors (the IC model) developed and introduced at the Skåne University Hospital, Lund, Sweden, in 2005 conforms closely to them. The IC model aims to protect the privacy of potential donors, support and respect their free choice, and identify quickly those unwilling or unable to donate and thus minimize delay in seeking alternative donors. To evaluate the IC model a questionnaire survey in 2010 gathered the perceptions and views on information provision; influences over decision making; and care provision... (More)
- The first international recommendations and guidelines for the care of sibling stem cell donors were established in 2010, and have not yet been evaluated. However, a model for information and care of adult potential sibling stem cell donors (the IC model) developed and introduced at the Skåne University Hospital, Lund, Sweden, in 2005 conforms closely to them. The IC model aims to protect the privacy of potential donors, support and respect their free choice, and identify quickly those unwilling or unable to donate and thus minimize delay in seeking alternative donors. To evaluate the IC model a questionnaire survey in 2010 gathered the perceptions and views on information provision; influences over decision making; and care provision under the IC model of 148 adult siblings informed about SCT donation, and asked to undergo HLA-typing since September 2005 at the hospital. The results suggest the IC model works well but highlights areas for improvement, such as in delivery of HLA typing results to non-matched siblings, and a need to further prevent complicating influence from health professionals and relatives on the decision to undergo HLA typing. Thus improved, the IC model could provide the groundwork for other SCT units seeking to implement the recommendations and guidelines.Bone Marrow Transplantation advance online publication, 21 January 2013; doi:10.1038/bmt.2012.283. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/3438559
- author
- Kisch, Anita ; Lenhoff, Stig LU ; Bengtsson, Mariette and Bolmsjö, Ingrid
- organization
- publishing date
- 2013
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Bone Marrow Transplantation
- volume
- 48
- issue
- 8
- pages
- 1133 - 1137
- publisher
- Nature Publishing Group
- external identifiers
-
- wos:000322819900020
- pmid:23334271
- scopus:84881370732
- ISSN
- 1476-5365
- DOI
- 10.1038/bmt.2012.283
- language
- English
- LU publication?
- yes
- id
- 35728a16-a18d-43f1-9a48-57f43e92c678 (old id 3438559)
- alternative location
- http://www.ncbi.nlm.nih.gov/pubmed/23334271?dopt=Abstract
- date added to LUP
- 2016-04-01 11:13:33
- date last changed
- 2024-10-08 00:01:37
@article{35728a16-a18d-43f1-9a48-57f43e92c678, abstract = {{The first international recommendations and guidelines for the care of sibling stem cell donors were established in 2010, and have not yet been evaluated. However, a model for information and care of adult potential sibling stem cell donors (the IC model) developed and introduced at the Skåne University Hospital, Lund, Sweden, in 2005 conforms closely to them. The IC model aims to protect the privacy of potential donors, support and respect their free choice, and identify quickly those unwilling or unable to donate and thus minimize delay in seeking alternative donors. To evaluate the IC model a questionnaire survey in 2010 gathered the perceptions and views on information provision; influences over decision making; and care provision under the IC model of 148 adult siblings informed about SCT donation, and asked to undergo HLA-typing since September 2005 at the hospital. The results suggest the IC model works well but highlights areas for improvement, such as in delivery of HLA typing results to non-matched siblings, and a need to further prevent complicating influence from health professionals and relatives on the decision to undergo HLA typing. Thus improved, the IC model could provide the groundwork for other SCT units seeking to implement the recommendations and guidelines.Bone Marrow Transplantation advance online publication, 21 January 2013; doi:10.1038/bmt.2012.283.}}, author = {{Kisch, Anita and Lenhoff, Stig and Bengtsson, Mariette and Bolmsjö, Ingrid}}, issn = {{1476-5365}}, language = {{eng}}, number = {{8}}, pages = {{1133--1137}}, publisher = {{Nature Publishing Group}}, series = {{Bone Marrow Transplantation}}, title = {{Potential adult sibling stem cell donors' perceptions and opinions regarding an information and care model.}}, url = {{http://dx.doi.org/10.1038/bmt.2012.283}}, doi = {{10.1038/bmt.2012.283}}, volume = {{48}}, year = {{2013}}, }