Healthcare provision for Swedish persons with intellectual and developmental disabilities
(2024) In Journal of Policy and Practice in Intellectual Disabilities 21(1).- Abstract
This paper aims to give a short description of Swedish healthcare provision for persons with intellectual and developmental disabilities (IDD). Swedish persons with IDD should have access to the general healthcare system on the same terms as the general population, and thereby enjoy equal opportunities for healthcare of good quality. Reports from government agencies and interest groups, however, describe a decentralised and fragmented healthcare system that requires significant coordination; a lack of adjustments; a lack of specialised healthcare professionals; and gaps in healthcare provision. Research in recent years has reported unequal access to planned healthcare; excess mortality and premature deaths; and insufficient or... (More)
This paper aims to give a short description of Swedish healthcare provision for persons with intellectual and developmental disabilities (IDD). Swedish persons with IDD should have access to the general healthcare system on the same terms as the general population, and thereby enjoy equal opportunities for healthcare of good quality. Reports from government agencies and interest groups, however, describe a decentralised and fragmented healthcare system that requires significant coordination; a lack of adjustments; a lack of specialised healthcare professionals; and gaps in healthcare provision. Research in recent years has reported unequal access to planned healthcare; excess mortality and premature deaths; and insufficient or inadequate support in end-of-life care. We conclude that health inequalities and healthcare challenges faced by Swedish persons with IDD might be caused by obstacles at several structural levels. Allowing persons with IDD to access timely and adequate healthcare requires the development of better opportunities for coordination of healthcare and social services, as well as training for healthcare professionals and direct support staff.
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- author
- Björne, Petra LU and Flygare Wallén, Eva
- organization
- publishing date
- 2024
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- healthcare, inequalities, intellectual disability, policy
- in
- Journal of Policy and Practice in Intellectual Disabilities
- volume
- 21
- issue
- 1
- publisher
- Wiley-Blackwell
- external identifiers
-
- scopus:85181875860
- ISSN
- 1741-1122
- DOI
- 10.1111/jppi.12489
- language
- English
- LU publication?
- yes
- id
- 3bc4e4fb-041c-425f-9ba3-54484229b4f8
- date added to LUP
- 2024-02-08 16:03:30
- date last changed
- 2024-10-14 12:02:08
@article{3bc4e4fb-041c-425f-9ba3-54484229b4f8,
abstract = {{<p>This paper aims to give a short description of Swedish healthcare provision for persons with intellectual and developmental disabilities (IDD). Swedish persons with IDD should have access to the general healthcare system on the same terms as the general population, and thereby enjoy equal opportunities for healthcare of good quality. Reports from government agencies and interest groups, however, describe a decentralised and fragmented healthcare system that requires significant coordination; a lack of adjustments; a lack of specialised healthcare professionals; and gaps in healthcare provision. Research in recent years has reported unequal access to planned healthcare; excess mortality and premature deaths; and insufficient or inadequate support in end-of-life care. We conclude that health inequalities and healthcare challenges faced by Swedish persons with IDD might be caused by obstacles at several structural levels. Allowing persons with IDD to access timely and adequate healthcare requires the development of better opportunities for coordination of healthcare and social services, as well as training for healthcare professionals and direct support staff.</p>}},
author = {{Björne, Petra and Flygare Wallén, Eva}},
issn = {{1741-1122}},
keywords = {{healthcare; inequalities; intellectual disability; policy}},
language = {{eng}},
number = {{1}},
publisher = {{Wiley-Blackwell}},
series = {{Journal of Policy and Practice in Intellectual Disabilities}},
title = {{Healthcare provision for Swedish persons with intellectual and developmental disabilities}},
url = {{http://dx.doi.org/10.1111/jppi.12489}},
doi = {{10.1111/jppi.12489}},
volume = {{21}},
year = {{2024}},
}