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Parents' Views of Family-Centered Care at a Pediatric Intensive Care Unit—A Qualitative Study

Terp, Karina LU orcid ; Weis, Janne LU and Lundqvist, Pia LU (2021) In Frontiers in Pediatrics 9.
Abstract

Purpose: To describe parents' views of family-centered care at a pediatric intensive care unit. Design and Methods: A qualitative descriptive study with a deductive and inductive approach was conducted based on the principles of family-centered care. Inclusion criteria were parents of children cared for at a pediatric intensive care unit for at least 48 h. Parents of children who died during the hospital stay were excluded. The sample consisted of spontaneous responses from 70 parents to five open questions in the EMpowerment of PArents in THe Intensive Care questionnaire, which was completed at discharge. The spontaneous responses were analyzed using thematic analysis. Results: The analysis of the parents' statement illuminated that... (More)

Purpose: To describe parents' views of family-centered care at a pediatric intensive care unit. Design and Methods: A qualitative descriptive study with a deductive and inductive approach was conducted based on the principles of family-centered care. Inclusion criteria were parents of children cared for at a pediatric intensive care unit for at least 48 h. Parents of children who died during the hospital stay were excluded. The sample consisted of spontaneous responses from 70 parents to five open questions in the EMpowerment of PArents in THe Intensive Care questionnaire, which was completed at discharge. The spontaneous responses were analyzed using thematic analysis. Results: The analysis of the parents' statement illuminated that partnership, the essence of family-centered care, appeared incomplete. Partnership was particularly evident regarding parents' experiences of being treated with empathy and respect. It also seemed prominent in situations where the professional team provided support to the child, parents, and family. Based on the parents' statements there was potential for development of the family-centered care approach in aspects such as decision-making concerning care and treatment, as well as improving person-centered communication on order to capture parents' experiences and needs in the highly technological pediatric intensive care unit environment. Conclusions: Although in general parents were satisfied with the care, areas for improvement were identified such as participation in decision-making about care and treatment as well as person-centered communication. The results can contribute to future quality improvement interventions focusing family centered care at pediatric intensive care units.

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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
family-centered care, parent satisfaction, partnership, pediatric intensive care, qualitative approach, quality of care
in
Frontiers in Pediatrics
volume
9
article number
725040
publisher
Frontiers Media S. A.
external identifiers
  • scopus:85114793153
  • pmid:34513770
ISSN
2296-2360
DOI
10.3389/fped.2021.725040
language
English
LU publication?
yes
id
66d30645-5727-4aea-aaa1-33afb0d750fa
date added to LUP
2021-10-11 11:22:49
date last changed
2024-07-27 22:08:30
@article{66d30645-5727-4aea-aaa1-33afb0d750fa,
  abstract     = {{<p>Purpose: To describe parents' views of family-centered care at a pediatric intensive care unit. Design and Methods: A qualitative descriptive study with a deductive and inductive approach was conducted based on the principles of family-centered care. Inclusion criteria were parents of children cared for at a pediatric intensive care unit for at least 48 h. Parents of children who died during the hospital stay were excluded. The sample consisted of spontaneous responses from 70 parents to five open questions in the EMpowerment of PArents in THe Intensive Care questionnaire, which was completed at discharge. The spontaneous responses were analyzed using thematic analysis. Results: The analysis of the parents' statement illuminated that partnership, the essence of family-centered care, appeared incomplete. Partnership was particularly evident regarding parents' experiences of being treated with empathy and respect. It also seemed prominent in situations where the professional team provided support to the child, parents, and family. Based on the parents' statements there was potential for development of the family-centered care approach in aspects such as decision-making concerning care and treatment, as well as improving person-centered communication on order to capture parents' experiences and needs in the highly technological pediatric intensive care unit environment. Conclusions: Although in general parents were satisfied with the care, areas for improvement were identified such as participation in decision-making about care and treatment as well as person-centered communication. The results can contribute to future quality improvement interventions focusing family centered care at pediatric intensive care units.</p>}},
  author       = {{Terp, Karina and Weis, Janne and Lundqvist, Pia}},
  issn         = {{2296-2360}},
  keywords     = {{family-centered care; parent satisfaction; partnership; pediatric intensive care; qualitative approach; quality of care}},
  language     = {{eng}},
  month        = {{08}},
  publisher    = {{Frontiers Media S. A.}},
  series       = {{Frontiers in Pediatrics}},
  title        = {{Parents' Views of Family-Centered Care at a Pediatric Intensive Care Unit—A Qualitative Study}},
  url          = {{http://dx.doi.org/10.3389/fped.2021.725040}},
  doi          = {{10.3389/fped.2021.725040}},
  volume       = {{9}},
  year         = {{2021}},
}