Supporting someone after their stroke : family members' views and experiences of self-management
McCarthy, Linnea ; Kylén, Maya LU
; Gustavsson, Catharina
; Finch, Tracy
; Jones, Fiona
and Elf, Marie
(2025)
In Disability and Rehabilitation
p.1-8
- Abstract
PURPOSE: Self-management has increased in recognition in stroke research and rehabilitation along with growing trends of shorter hospital stays and more patient-centred care. Family members are key persons in the self-management process, but their views and experiences of self-management have not been studied in detail. This study aimed to explore family members' understanding of self-management, the strategies they use and the challenges they face when providing support.
METHODS: For this descriptive study, semi-structured interviews with family members (
n = 27) were conducted. Data were analysed using inductive content analysis.
RESULTS: The analysis resulted in three main categories and eight subcategories.... (More)
PURPOSE: Self-management has increased in recognition in stroke research and rehabilitation along with growing trends of shorter hospital stays and more patient-centred care. Family members are key persons in the self-management process, but their views and experiences of self-management have not been studied in detail. This study aimed to explore family members' understanding of self-management, the strategies they use and the challenges they face when providing support.
METHODS: For this descriptive study, semi-structured interviews with family members (
n = 27) were conducted. Data were analysed using inductive content analysis.
RESULTS: The analysis resulted in three main categories and eight subcategories. Most family members saw self-management as performing practical tasks, such as daily living activities and rehabilitation training. However, family members described a broad range of actions to support self-management, including emotional and motivational support. They found it challenging to give the right amount of support and expressed a need of more information after discharge.
CONCLUSIONS: Family members' conceptualisations of self-management differ from the strategies they use to provide support. A clearer understanding of self-management as a collective process can benefit the development and delivery of efficient self-management support.
(Less)
- author
- McCarthy, Linnea
; Kylén, Maya
LU
; Gustavsson, Catharina
; Finch, Tracy
; Jones, Fiona
and Elf, Marie
- organization
- publishing date
- 2025-05-09
- type
- Contribution to journal
- publication status
- epub
- subject
- in
- Disability and Rehabilitation
- pages
- 1 - 8
- publisher
- Informa Healthcare
- external identifiers
-
- pmid:40340606
- scopus:105004722188
- ISSN
- 0963-8288
- DOI
- 10.1080/09638288.2025.2500067
- language
- English
- LU publication?
- yes
- id
- 7c33e943-c2b5-45b2-8ddd-9db0a78dc77f
- date added to LUP
- 2025-05-12 15:20:47
- date last changed
- 2025-07-06 06:59:19
@article{7c33e943-c2b5-45b2-8ddd-9db0a78dc77f,
abstract = {{<p>PURPOSE: Self-management has increased in recognition in stroke research and rehabilitation along with growing trends of shorter hospital stays and more patient-centred care. Family members are key persons in the self-management process, but their views and experiences of self-management have not been studied in detail. This study aimed to explore family members' understanding of self-management, the strategies they use and the challenges they face when providing support.</p><p>METHODS: For this descriptive study, semi-structured interviews with family members (<br>
n = 27) were conducted. Data were analysed using inductive content analysis.<br>
</p><p>RESULTS: The analysis resulted in three main categories and eight subcategories. Most family members saw self-management as performing practical tasks, such as daily living activities and rehabilitation training. However, family members described a broad range of actions to support self-management, including emotional and motivational support. They found it challenging to give the right amount of support and expressed a need of more information after discharge.</p><p>CONCLUSIONS: Family members' conceptualisations of self-management differ from the strategies they use to provide support. A clearer understanding of self-management as a collective process can benefit the development and delivery of efficient self-management support.</p>}},
author = {{McCarthy, Linnea and Kylén, Maya and Gustavsson, Catharina and Finch, Tracy and Jones, Fiona and Elf, Marie}},
issn = {{0963-8288}},
language = {{eng}},
month = {{05}},
pages = {{1--8}},
publisher = {{Informa Healthcare}},
series = {{Disability and Rehabilitation}},
title = {{Supporting someone after their stroke : family members' views and experiences of self-management}},
url = {{http://dx.doi.org/10.1080/09638288.2025.2500067}},
doi = {{10.1080/09638288.2025.2500067}},
year = {{2025}},
}