Support in the context of allogeneic hematopoietic stem cell transplantation - The perspectives of family caregivers
(2020) In European Journal of Oncology Nursing 46.- Abstract
Background and aim: Family caregivers are often involved in helping recipients during allogeneic hematopoietic stem cell transplantation (allo-HSCT). Although the distress that often arises along the trajectory is evident to family caregivers, research on their perceptions of providing and receiving support is limited. The aim of this study was to explore family caregivers’ experiences of providing and receiving support during allo-HSCT. Method: Data were collected through semi-structured interviews with fourteen family caregivers 16 weeks after the recipient's allo-HSCT. Inductive qualitative content analysis was used to analyse the data. Results: The analysis revealed four generic categories that focus on prerequisites for family... (More)
Background and aim: Family caregivers are often involved in helping recipients during allogeneic hematopoietic stem cell transplantation (allo-HSCT). Although the distress that often arises along the trajectory is evident to family caregivers, research on their perceptions of providing and receiving support is limited. The aim of this study was to explore family caregivers’ experiences of providing and receiving support during allo-HSCT. Method: Data were collected through semi-structured interviews with fourteen family caregivers 16 weeks after the recipient's allo-HSCT. Inductive qualitative content analysis was used to analyse the data. Results: The analysis revealed four generic categories that focus on prerequisites for family caregivers' ability to provide support: Individual characteristics influence the ability to be supportive, Social context influences the ability to be supportive, Medical information provides knowledge and a sense of participation and Interaction with the healthcare organization provides a sense of participation. These prerequisites are linked in the fifth generic category: Family caregivers' support is multifaceted and dependent on the recipient's health. Conclusions: Family caregivers’ risk of experiencing a stronger sense of uncertainty and lack of participation is higher in the absence of the above-mentioned prerequisites. Professional support is thus required, which implies that the healthcare organization is responsible for identifying the needs of each family caregiver and delivering individualized support.
(Less)
- author
- Bergkvist, Karin ; Winterling, Jeanette and Kisch, Annika M. LU
- organization
- publishing date
- 2020
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Allogeneic hematopoietic stem cell transplantation, Family caregivers, Support
- in
- European Journal of Oncology Nursing
- volume
- 46
- article number
- 101740
- publisher
- Elsevier
- external identifiers
-
- scopus:85083786623
- pmid:32353737
- ISSN
- 1462-3889
- DOI
- 10.1016/j.ejon.2020.101740
- language
- English
- LU publication?
- yes
- id
- 92e5d0b7-ff4c-4b15-a5d0-013db2c4a30c
- date added to LUP
- 2020-05-18 13:37:07
- date last changed
- 2024-04-17 09:20:31
@article{92e5d0b7-ff4c-4b15-a5d0-013db2c4a30c,
abstract = {{<p>Background and aim: Family caregivers are often involved in helping recipients during allogeneic hematopoietic stem cell transplantation (allo-HSCT). Although the distress that often arises along the trajectory is evident to family caregivers, research on their perceptions of providing and receiving support is limited. The aim of this study was to explore family caregivers’ experiences of providing and receiving support during allo-HSCT. Method: Data were collected through semi-structured interviews with fourteen family caregivers 16 weeks after the recipient's allo-HSCT. Inductive qualitative content analysis was used to analyse the data. Results: The analysis revealed four generic categories that focus on prerequisites for family caregivers' ability to provide support: Individual characteristics influence the ability to be supportive, Social context influences the ability to be supportive, Medical information provides knowledge and a sense of participation and Interaction with the healthcare organization provides a sense of participation. These prerequisites are linked in the fifth generic category: Family caregivers' support is multifaceted and dependent on the recipient's health. Conclusions: Family caregivers’ risk of experiencing a stronger sense of uncertainty and lack of participation is higher in the absence of the above-mentioned prerequisites. Professional support is thus required, which implies that the healthcare organization is responsible for identifying the needs of each family caregiver and delivering individualized support.</p>}},
author = {{Bergkvist, Karin and Winterling, Jeanette and Kisch, Annika M.}},
issn = {{1462-3889}},
keywords = {{Allogeneic hematopoietic stem cell transplantation; Family caregivers; Support}},
language = {{eng}},
publisher = {{Elsevier}},
series = {{European Journal of Oncology Nursing}},
title = {{Support in the context of allogeneic hematopoietic stem cell transplantation - The perspectives of family caregivers}},
url = {{http://dx.doi.org/10.1016/j.ejon.2020.101740}},
doi = {{10.1016/j.ejon.2020.101740}},
volume = {{46}},
year = {{2020}},
}