municipality in Sweden, and an interview study exploring the...
This licentiate dissertation emerges at the crossroads of critical disability studies and critical disaster
studies, with a commitment to justice, equality, and accessibility within the realm of disaster risk reduction
(DRR). Its purpose was to develop new insights into strengthening crisis preparedness by actively
involving and including people with intellectual disabilities, leveraging their own knowledge and
experience. This work rests upon three components: a systematic literature review that explored methods
for inclusion of people with disabilities (PWD) into DRR, a disability-inclusive workshop conducted in a
municipality in Sweden, and an interview study exploring the family perspective of crisis planning when
a member of the family has a disability. The systematic literature review survey’s methodologies
employed globally in disability inclusive DRR, included workshops, co-designing tools, role-playing,
photovoice, and other inclusive practices. By searching the global landscape, this study highlighted the
significance of these methodologies toward achieving disability-inclusive DRR. The second component
of this research is an account of a disability-inclusive workshop, strategically designed to centre disabled
voices and involve different stakeholders. The study involved a workshop in collaboration with disability
support services at a municipality in Sweden. The workshop brought together crisis communicators,
managers for group homes for people with intellectual disabilities (ID), representatives from disability
organizations and PWD of different kinds. To link these two papers, a third study was added to underpin
the importance of a family perspective on crisis planning. The family-centred study explored the lived
experience of families with a member with disability, highlighting the challenges when it comes to
accessibility, technology dependence and information gaps while emphasizing the importance of
inclusive, community-supported disaster preparedness initiatives. The overall results showed five
dimensions of DRR for people with ID. The first dimension focused on the need to address systemic
vulnerabilities that prevent inclusive crisis planning, emphasizing the importance of long-term solutions
rather than short term responses. Dimension two points to the value of collaboration and active
participation, illustrating how engaging PWD and their support networks enhances preparedness and
empowers individuals. Dimension three explored the role of families in bridging gaps to those not closely
connected to formal services. Dimension four examined the accessibility challenges PWD faces,
revealing the need for tailored information and practices to overcome physical and informational barriers.
Finally, dimension five emphasized the importance of community-based solutions and informal networks,
which can provide practical resources and support in crisis situations. Together, these dimensions
advocate for a more inclusive approach to DRR that recognizes both the unique needs and the
contributions of PWD.
(Less)
@misc{a4e7f4fd-f3aa-4cd5-906d-28578c0e44c2,
abstract = {{<div>This licentiate dissertation emerges at the crossroads of critical disability studies and critical disaster</div><div>studies, with a commitment to justice, equality, and accessibility within the realm of disaster risk reduction</div><div>(DRR). Its purpose was to develop new insights into strengthening crisis preparedness by actively</div><div>involving and including people with intellectual disabilities, leveraging their own knowledge and</div><div>experience. This work rests upon three components: a systematic literature review that explored methods</div><div>for inclusion of people with disabilities (PWD) into DRR, a disability-inclusive workshop conducted in a</div><div>municipality in Sweden, and an interview study exploring the family perspective of crisis planning when</div><div>a member of the family has a disability. The systematic literature review survey’s methodologies</div><div>employed globally in disability inclusive DRR, included workshops, co-designing tools, role-playing,</div><div>photovoice, and other inclusive practices. By searching the global landscape, this study highlighted the</div><div>significance of these methodologies toward achieving disability-inclusive DRR. The second component</div><div>of this research is an account of a disability-inclusive workshop, strategically designed to centre disabled</div><div>voices and involve different stakeholders. The study involved a workshop in collaboration with disability</div><div>support services at a municipality in Sweden. The workshop brought together crisis communicators,</div><div>managers for group homes for people with intellectual disabilities (ID), representatives from disability</div><div>organizations and PWD of different kinds. To link these two papers, a third study was added to underpin</div><div>the importance of a family perspective on crisis planning. The family-centred study explored the lived</div><div>experience of families with a member with disability, highlighting the challenges when it comes to</div><div>accessibility, technology dependence and information gaps while emphasizing the importance of</div><div>inclusive, community-supported disaster preparedness initiatives. The overall results showed five</div><div>dimensions of DRR for people with ID. The first dimension focused on the need to address systemic</div><div>vulnerabilities that prevent inclusive crisis planning, emphasizing the importance of long-term solutions</div><div>rather than short term responses. Dimension two points to the value of collaboration and active</div><div>participation, illustrating how engaging PWD and their support networks enhances preparedness and</div><div>empowers individuals. Dimension three explored the role of families in bridging gaps to those not closely</div><div>connected to formal services. Dimension four examined the accessibility challenges PWD faces,</div><div>revealing the need for tailored information and practices to overcome physical and informational barriers.</div><div>Finally, dimension five emphasized the importance of community-based solutions and informal networks,</div><div>which can provide practical resources and support in crisis situations. Together, these dimensions</div><div>advocate for a more inclusive approach to DRR that recognizes both the unique needs and the</div><div>contributions of PWD.</div>}},
author = {{Stjernholm, Linda}},
isbn = {{978-91-8104-295-5}},
language = {{eng}},
month = {{12}},
note = {{Licentiate Thesis}},
publisher = {{Lunds Universitet/Lunds Tekniska Högskola}},
title = {{Inclusive preparedness : Intellectual disability and disaster risk reduction}},
url = {{https://lup.lub.lu.se/search/files/202111150/Avhandling_Linda_Stjernholm_LUCRIS.pdf}},
year = {{2024}},
}
