Skip to main content

Lund University Publications

LUND UNIVERSITY LIBRARIES

The Power of Discretion and the Discretion of Power. Personal Assistants and Sexual Facilitation in Swedish Disability Services

Bahner, Julia LU orcid (2013) In Vulnerable Groups and Inclusion 4(1).
Abstract
Aim
The purpose of this article is to explore how personal assistants, working in state-funded services for mobility-disabled people in Sweden, perceive and experience their work, with special focus on sexual facilitation (assistance with sexual activities).

Background
Personal assistance services are a legal right, aiming to give certain disabled people the possibility to live on equal terms in society with non-disabled citizens. The services are to be grounded on the principles of self-determination, autonomy, integrity, and user influence according to independent-living ideology. However, the legislation does not mention sexuality, and in addition, there are often no local policies; hence, it is unclear what service... (More)
Aim
The purpose of this article is to explore how personal assistants, working in state-funded services for mobility-disabled people in Sweden, perceive and experience their work, with special focus on sexual facilitation (assistance with sexual activities).

Background
Personal assistance services are a legal right, aiming to give certain disabled people the possibility to live on equal terms in society with non-disabled citizens. The services are to be grounded on the principles of self-determination, autonomy, integrity, and user influence according to independent-living ideology. However, the legislation does not mention sexuality, and in addition, there are often no local policies; hence, it is unclear what service users can demand in terms of sexual facilitation, and on the assistants’ part, what is and what is not acceptable to assist with.

Methods
The methods used to gather data were interviews with 15 personal assistants as well as observations in an online discussion forum for personal assistants.

Findings
The analysis suggests that personal assistants may experience that there is a taboo against discussing sexual facilitation in the workplace. There are no predetermined policies, regulations, or ethical codes of conduct regarding sexual facilitation, and the personal assistants’ discretion is therefore strong. Different strategies for managing this discretion were identified, greatly influenced by personal values, as well as societal norms.

Conclusion
The normative context of discretion is highly visible, suggesting the importance of uncovering the interplay between the power dimensions of sexuality, disability, gender, and professionalism. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Vulnerable Groups and Inclusion
volume
4
issue
1
DOI
10.3402/vgi.v4i0.20673
project
Sexualitetsfrågor i vardagen med personlig assistans för personer med fysisk rörelsenedsättning
language
English
LU publication?
yes
id
d7d2b7f6-3d55-41db-96a9-d1b7992b9908
date added to LUP
2019-10-28 16:07:31
date last changed
2023-11-14 17:11:13
@article{d7d2b7f6-3d55-41db-96a9-d1b7992b9908,
  abstract     = {{Aim<br/>The purpose of this article is to explore how personal assistants, working in state-funded services for mobility-disabled people in Sweden, perceive and experience their work, with special focus on sexual facilitation (assistance with sexual activities).<br/><br/>Background<br/>Personal assistance services are a legal right, aiming to give certain disabled people the possibility to live on equal terms in society with non-disabled citizens. The services are to be grounded on the principles of self-determination, autonomy, integrity, and user influence according to independent-living ideology. However, the legislation does not mention sexuality, and in addition, there are often no local policies; hence, it is unclear what service users can demand in terms of sexual facilitation, and on the assistants’ part, what is and what is not acceptable to assist with.<br/><br/>Methods<br/>The methods used to gather data were interviews with 15 personal assistants as well as observations in an online discussion forum for personal assistants.<br/><br/>Findings<br/>The analysis suggests that personal assistants may experience that there is a taboo against discussing sexual facilitation in the workplace. There are no predetermined policies, regulations, or ethical codes of conduct regarding sexual facilitation, and the personal assistants’ discretion is therefore strong. Different strategies for managing this discretion were identified, greatly influenced by personal values, as well as societal norms.<br/><br/>Conclusion<br/>The normative context of discretion is highly visible, suggesting the importance of uncovering the interplay between the power dimensions of sexuality, disability, gender, and professionalism.}},
  author       = {{Bahner, Julia}},
  language     = {{eng}},
  month        = {{10}},
  number       = {{1}},
  series       = {{Vulnerable Groups and Inclusion}},
  title        = {{The Power of Discretion and the Discretion of Power. Personal Assistants and Sexual Facilitation in Swedish Disability Services}},
  url          = {{http://dx.doi.org/10.3402/vgi.v4i0.20673}},
  doi          = {{10.3402/vgi.v4i0.20673}},
  volume       = {{4}},
  year         = {{2013}},
}