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Psychometric evaluation of the Scandinavian version of the caregiver priorities and child health index of life with disabilities

Pettersson, Katina LU ; Bjerke, Kari Marte; Jahnsen, Reidun; Öhrvik, John and Rodby-Bousquet, Elisabet LU (2017) In Disability and Rehabilitation p.1-7
Abstract

Purpose: To examine test–retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). Methods: Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I–V for children born 2000–2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis. Intraclass correlation coefficient was used to estimate test–retest reliability (n = 64), and Cronbach’s alpha was calculated as an indicator of internal consistency. Results: The... (More)

Purpose: To examine test–retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). Methods: Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I–V for children born 2000–2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis. Intraclass correlation coefficient was used to estimate test–retest reliability (n = 64), and Cronbach’s alpha was calculated as an indicator of internal consistency. Results: The questionnaire showed construct validity and the ability to discriminate between levels of gross motor function for the total score and all domain scores (p < 0.05). Test–retest reliability was high with intraclass correlation coefficient of 0.92 for the total score and of 0.72–0.92 for the domain scores. Cronbach’s alpha was 0.96 for the total score and 0.83–0.96 for the domain scores. Conclusions: The Scandinavian version of the CPCHILD for children with CP seems to be a valid and reliable proxy measure for health related quality of life.Implications for rehabilitationValid and reliable outcome measures are needed to evaluate whether follow-up programs enhance health related quality of life in different countries.The Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) was evaluated for known-groups validity and test–retest reliability.The Scandinavian version of the CPCHILD is a sound and valid measurement for evaluation and comparison of health related quality of life of children with cerebral palsy in different countries.

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author
organization
publishing date
type
Contribution to journal
publication status
in press
subject
keywords
Cerebral palsy, CPCHILD, GMFCS, quality of life, reliability, validity
in
Disability and Rehabilitation
pages
1 - 7
publisher
Taylor & Francis
external identifiers
  • scopus:85029679574
ISSN
0963-8288
DOI
10.1080/09638288.2017.1378930
language
English
LU publication?
yes
id
0207468c-7b5b-4081-ad54-61a9b52d19a4
date added to LUP
2017-10-12 10:55:31
date last changed
2017-10-12 10:55:31
@article{0207468c-7b5b-4081-ad54-61a9b52d19a4,
  abstract     = {<p>Purpose: To examine test–retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). Methods: Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I–V for children born 2000–2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis. Intraclass correlation coefficient was used to estimate test–retest reliability (n = 64), and Cronbach’s alpha was calculated as an indicator of internal consistency. Results: The questionnaire showed construct validity and the ability to discriminate between levels of gross motor function for the total score and all domain scores (p &lt; 0.05). Test–retest reliability was high with intraclass correlation coefficient of 0.92 for the total score and of 0.72–0.92 for the domain scores. Cronbach’s alpha was 0.96 for the total score and 0.83–0.96 for the domain scores. Conclusions: The Scandinavian version of the CPCHILD for children with CP seems to be a valid and reliable proxy measure for health related quality of life.Implications for rehabilitationValid and reliable outcome measures are needed to evaluate whether follow-up programs enhance health related quality of life in different countries.The Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) was evaluated for known-groups validity and test–retest reliability.The Scandinavian version of the CPCHILD is a sound and valid measurement for evaluation and comparison of health related quality of life of children with cerebral palsy in different countries.</p>},
  author       = {Pettersson, Katina and Bjerke, Kari Marte and Jahnsen, Reidun and Öhrvik, John and Rodby-Bousquet, Elisabet},
  issn         = {0963-8288},
  keyword      = {Cerebral palsy,CPCHILD,GMFCS,quality of life,reliability,validity},
  language     = {eng},
  month        = {09},
  pages        = {1--7},
  publisher    = {Taylor & Francis},
  series       = {Disability and Rehabilitation},
  title        = {Psychometric evaluation of the Scandinavian version of the caregiver priorities and child health index of life with disabilities},
  url          = {http://dx.doi.org/10.1080/09638288.2017.1378930},
  year         = {2017},
}