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Legitimizing user knowledge in mental health services : Epistemic (in)justice and barriers to knowledge integration

Grim, Katarina ; Näslund, Hilda ; Allaskog, Conny ; Andersson, Jessica ; Argentzell, Elisabeth LU ; Broström, Kjell ; Jenneteg, Filippa Gagnér ; Jansson, Mårten ; Schön, Ulla Karin and Svedberg, Petra , et al. (2022) In Frontiers in Psychiatry 13.
Abstract

Including the voices and knowledge of service users is essential for developing recovery-oriented and evidence-based mental health services. Recent studies have however, suggested that challenges remain to the legitimization of user knowledge in practice. To further explore such challenges, a co-production study was conducted by a team of researchers and representatives from user organizations in Sweden. The aim of the study was to explore the barriers and facilitators to the legitimacy of user knowledge, as a central factor in sustainably implementing user influence in mental health practice. A series of workshops, with representatives of mental health services and user organizations were conducted by the research team to explore these... (More)

Including the voices and knowledge of service users is essential for developing recovery-oriented and evidence-based mental health services. Recent studies have however, suggested that challenges remain to the legitimization of user knowledge in practice. To further explore such challenges, a co-production study was conducted by a team of researchers and representatives from user organizations in Sweden. The aim of the study was to explore the barriers and facilitators to the legitimacy of user knowledge, as a central factor in sustainably implementing user influence in mental health practice. A series of workshops, with representatives of mental health services and user organizations were conducted by the research team to explore these issues. The analysis built on the theoretical framework of epistemic injustice, and the underlying aspects, testimonial, hermeneutic and participation-based injustice, were utilized as a framework for a deductive analysis. Results suggest that this is a useful model for exploring the complex dynamics related to the legitimacy of user knowledge in mental health systems. The analysis suggests that the legitimacy of user knowledge is related to the representativeness of the knowledge base, the systematic formulation of this knowledge in applicable methods, access to resources and positions within the mental health system and participation in the process of integrating this knowledge-base in mental health contexts. Legitimizing user knowledge in practice additionally challenges mental health systems to support readiness for change in working environments and to address the power and role issues that these changes involve.

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organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
co-production in research, epistemic injustice, implementation, mental health services, recovery, user involvement, user organizations
in
Frontiers in Psychiatry
volume
13
article number
981238
publisher
Frontiers Media S. A.
external identifiers
  • scopus:85138003423
  • pmid:36090358
ISSN
1664-0640
DOI
10.3389/fpsyt.2022.981238
language
English
LU publication?
yes
id
047aebd3-a0e6-4b1b-806a-86ca426e0493
date added to LUP
2022-11-30 13:14:25
date last changed
2024-06-11 19:57:40
@article{047aebd3-a0e6-4b1b-806a-86ca426e0493,
  abstract     = {{<p>Including the voices and knowledge of service users is essential for developing recovery-oriented and evidence-based mental health services. Recent studies have however, suggested that challenges remain to the legitimization of user knowledge in practice. To further explore such challenges, a co-production study was conducted by a team of researchers and representatives from user organizations in Sweden. The aim of the study was to explore the barriers and facilitators to the legitimacy of user knowledge, as a central factor in sustainably implementing user influence in mental health practice. A series of workshops, with representatives of mental health services and user organizations were conducted by the research team to explore these issues. The analysis built on the theoretical framework of epistemic injustice, and the underlying aspects, testimonial, hermeneutic and participation-based injustice, were utilized as a framework for a deductive analysis. Results suggest that this is a useful model for exploring the complex dynamics related to the legitimacy of user knowledge in mental health systems. The analysis suggests that the legitimacy of user knowledge is related to the representativeness of the knowledge base, the systematic formulation of this knowledge in applicable methods, access to resources and positions within the mental health system and participation in the process of integrating this knowledge-base in mental health contexts. Legitimizing user knowledge in practice additionally challenges mental health systems to support readiness for change in working environments and to address the power and role issues that these changes involve.</p>}},
  author       = {{Grim, Katarina and Näslund, Hilda and Allaskog, Conny and Andersson, Jessica and Argentzell, Elisabeth and Broström, Kjell and Jenneteg, Filippa Gagnér and Jansson, Mårten and Schön, Ulla Karin and Svedberg, Petra and Svensson, Sara and Wåhlstedt, Sonny and Rosenberg, David}},
  issn         = {{1664-0640}},
  keywords     = {{co-production in research; epistemic injustice; implementation; mental health services; recovery; user involvement; user organizations}},
  language     = {{eng}},
  month        = {{08}},
  publisher    = {{Frontiers Media S. A.}},
  series       = {{Frontiers in Psychiatry}},
  title        = {{Legitimizing user knowledge in mental health services : Epistemic (in)justice and barriers to knowledge integration}},
  url          = {{http://dx.doi.org/10.3389/fpsyt.2022.981238}},
  doi          = {{10.3389/fpsyt.2022.981238}},
  volume       = {{13}},
  year         = {{2022}},
}