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Acute leukaemia and malignant lymphoma patients’ experiences of disease, treatment and nursing care during the active treatment phase: an explorative study.

Persson, L; Rahm Hallberg, Ingalill LU and Ohlsson, O (1995) In European Journal of Cancer Care 4(3). p.133-142
Abstract
Five acute leukaemia or highly malignant lymphoma patients at a hospital in southern Sweden were interviewed about their daily living problems, their coping strategies and their opinions about the nursing care they received during the active phase of their treatment. In addition the EORTC QLQ-C30, the Global Life Quality and the Sense of Coherence scales were administered. The data were analysed from a hermeneutic phenomenological perspective and interpreted to indicate that the patients sensed a threat to their lives, loss of control, and having to live with uncertainty stemming from the disease and the treatment. They had problems with fatigue, diarrhoea, nausea and vomiting, loss of appetite, sore mouth and high temperature. However,... (More)
Five acute leukaemia or highly malignant lymphoma patients at a hospital in southern Sweden were interviewed about their daily living problems, their coping strategies and their opinions about the nursing care they received during the active phase of their treatment. In addition the EORTC QLQ-C30, the Global Life Quality and the Sense of Coherence scales were administered. The data were analysed from a hermeneutic phenomenological perspective and interpreted to indicate that the patients sensed a threat to their lives, loss of control, and having to live with uncertainty stemming from the disease and the treatment. They had problems with fatigue, diarrhoea, nausea and vomiting, loss of appetite, sore mouth and high temperature. However, they seemed to minimize the importance of these problems and instead focused on gaining control of the situation, developing their knowledge of the disease and relying on the support of their family. Contradictions appeared in their statements about the quality of care, the information given was said to be good but difficult to understand; although the quality of the nursing care was judged to be high it had to be asked for. That is, help was received on request. The patients'perspective of the family and the nurses should be studied in further research in order to fully understand the patients'coping strategies and how nursing care can support them. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
haematology nursing, acute leukaemia, highly malignant lymphoma, patient perspective, qualitative method
in
European Journal of Cancer Care
volume
4
issue
3
pages
133 - 142
publisher
John Wiley & Sons
external identifiers
  • scopus:0029375259
ISSN
1365-2354
DOI
10.1111/j.1365-2354.1995.tb00071.x
language
English
LU publication?
yes
id
481399cb-2a08-4fab-8bda-f3379a35b4a8 (old id 1109572)
date added to LUP
2008-07-29 10:01:12
date last changed
2017-09-17 05:33:08
@article{481399cb-2a08-4fab-8bda-f3379a35b4a8,
  abstract     = {Five acute leukaemia or highly malignant lymphoma patients at a hospital in southern Sweden were interviewed about their daily living problems, their coping strategies and their opinions about the nursing care they received during the active phase of their treatment. In addition the EORTC QLQ-C30, the Global Life Quality and the Sense of Coherence scales were administered. The data were analysed from a hermeneutic phenomenological perspective and interpreted to indicate that the patients sensed a threat to their lives, loss of control, and having to live with uncertainty stemming from the disease and the treatment. They had problems with fatigue, diarrhoea, nausea and vomiting, loss of appetite, sore mouth and high temperature. However, they seemed to minimize the importance of these problems and instead focused on gaining control of the situation, developing their knowledge of the disease and relying on the support of their family. Contradictions appeared in their statements about the quality of care, the information given was said to be good but difficult to understand; although the quality of the nursing care was judged to be high it had to be asked for. That is, help was received on request. The patients'perspective of the family and the nurses should be studied in further research in order to fully understand the patients'coping strategies and how nursing care can support them.},
  author       = {Persson, L and Rahm Hallberg, Ingalill and Ohlsson, O},
  issn         = {1365-2354},
  keyword      = {haematology nursing,acute leukaemia,highly malignant lymphoma,patient perspective,qualitative method},
  language     = {eng},
  number       = {3},
  pages        = {133--142},
  publisher    = {John Wiley & Sons},
  series       = {European Journal of Cancer Care},
  title        = {Acute leukaemia and malignant lymphoma patients’ experiences of disease, treatment and nursing care during the active treatment phase: an explorative study.},
  url          = {http://dx.doi.org/10.1111/j.1365-2354.1995.tb00071.x},
  volume       = {4},
  year         = {1995},
}