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Survivors of acute leukaemia and highly malignant lymphoma - retrospective views of daily life problems during treatment and when in remission.

Persson, L; Rahm Hallberg, Ingalill LU and Ohlsson, O (1997) In Journal of Advanced Nursing 25(1). p.68-78
Abstract
Fifty-four former patients, in remission after acute leukaemia or highly malignant lymphoma, responded to a questionnaire covering their physical problems, their view of the help they received, who was most helpful to them during the treatment phase, and the impact of the disease and treatment on their current life. Energy loss and nutritional problems were most troublesome during the treatment phase, signifying many other physical problems. Patients with acute leukaemia had more problems, and thought the care was worse than did patients with highly malignant lymphoma. Serious physical problems correlated with low satisfaction with practical help received, indicating that the nurses failed to meet the needs of those suffering the most.... (More)
Fifty-four former patients, in remission after acute leukaemia or highly malignant lymphoma, responded to a questionnaire covering their physical problems, their view of the help they received, who was most helpful to them during the treatment phase, and the impact of the disease and treatment on their current life. Energy loss and nutritional problems were most troublesome during the treatment phase, signifying many other physical problems. Patients with acute leukaemia had more problems, and thought the care was worse than did patients with highly malignant lymphoma. Serious physical problems correlated with low satisfaction with practical help received, indicating that the nurses failed to meet the needs of those suffering the most. Reduced psychological and sexual energy persisted in remission, showed no correlation with the extent of physical problems during the treatment phase, but correlated with co-existing problems and sensitivity to infections, with a great need for intimate help and counselling and with a low sense of coherence. Family relationships were said to have improved, while work and finances were negatively affected. The results indicate that nursing care should actively focus on physical problems, especially on energy loss and nutritional problems. The overwhelming fatigue hinders patients in taking physical care of themselves, and may be overlooked by the nurse since their motor capability seems intact. The long-term effect of the illness means a reduced psychological and sexual energy and a high degree of existential problems and sensitivity to infections, which indicates the importance of follow-up care, and perhaps especially of counselling for the long-term reactions and disturbance of equilibrium. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Journal of Advanced Nursing
volume
25
issue
1
pages
68 - 78
publisher
Wiley-Blackwell
external identifiers
  • scopus:0030639587
ISSN
0309-2402
language
English
LU publication?
yes
id
55541bff-f3d9-4a6b-a1e9-3e4915a1eeb9 (old id 1112203)
alternative location
http://www.ingentaconnect.com/content/bsc/jan/1997/00000025/00000001/art00337
date added to LUP
2008-07-21 15:45:39
date last changed
2017-01-01 04:54:09
@article{55541bff-f3d9-4a6b-a1e9-3e4915a1eeb9,
  abstract     = {Fifty-four former patients, in remission after acute leukaemia or highly malignant lymphoma, responded to a questionnaire covering their physical problems, their view of the help they received, who was most helpful to them during the treatment phase, and the impact of the disease and treatment on their current life. Energy loss and nutritional problems were most troublesome during the treatment phase, signifying many other physical problems. Patients with acute leukaemia had more problems, and thought the care was worse than did patients with highly malignant lymphoma. Serious physical problems correlated with low satisfaction with practical help received, indicating that the nurses failed to meet the needs of those suffering the most. Reduced psychological and sexual energy persisted in remission, showed no correlation with the extent of physical problems during the treatment phase, but correlated with co-existing problems and sensitivity to infections, with a great need for intimate help and counselling and with a low sense of coherence. Family relationships were said to have improved, while work and finances were negatively affected. The results indicate that nursing care should actively focus on physical problems, especially on energy loss and nutritional problems. The overwhelming fatigue hinders patients in taking physical care of themselves, and may be overlooked by the nurse since their motor capability seems intact. The long-term effect of the illness means a reduced psychological and sexual energy and a high degree of existential problems and sensitivity to infections, which indicates the importance of follow-up care, and perhaps especially of counselling for the long-term reactions and disturbance of equilibrium.},
  author       = {Persson, L and Rahm Hallberg, Ingalill and Ohlsson, O},
  issn         = {0309-2402},
  language     = {eng},
  number       = {1},
  pages        = {68--78},
  publisher    = {Wiley-Blackwell},
  series       = {Journal of Advanced Nursing},
  title        = {Survivors of acute leukaemia and highly malignant lymphoma - retrospective views of daily life problems during treatment and when in remission.},
  volume       = {25},
  year         = {1997},
}