Acute leukaemia or highly malignant lymphoma patients' quality of life over two years: a pilot study
(2001) In European Journal of Cancer Care 10(1). p.36-47- Abstract
- The aim of this study was, first, to investigate the quality of life and sense of coherence for acute leukaemia and malignant lymphoma patients at the start of treatment and over 2 years. A second aim was to compare questionnaire responses with patients' statements in open-ended interviews. A consecutive sample of 16 patients responded to the Quality of Life Questionnaire (QLQ-C30), Lund Gerontological Centre questionnaire and the Sense of Coherence Scale at the start of treatment and after 12 and 24 months. The QLQ-C30 questionnaire was administered also after 4, 8, 16 and 20 months. Tape-recorded open-ended interviews were conducted every 4 months before the patients responded to the questionnaires. Quality of life (QoL) and sense of... (More)
- The aim of this study was, first, to investigate the quality of life and sense of coherence for acute leukaemia and malignant lymphoma patients at the start of treatment and over 2 years. A second aim was to compare questionnaire responses with patients' statements in open-ended interviews. A consecutive sample of 16 patients responded to the Quality of Life Questionnaire (QLQ-C30), Lund Gerontological Centre questionnaire and the Sense of Coherence Scale at the start of treatment and after 12 and 24 months. The QLQ-C30 questionnaire was administered also after 4, 8, 16 and 20 months. Tape-recorded open-ended interviews were conducted every 4 months before the patients responded to the questionnaires. Quality of life (QoL) and sense of coherence were scored more highly at the beginning of treatment for patients who did not relapse, than for those who relapsed. This difference remained throughout the study period. There was no correspondence in responses between questionnaire and personal interviews, although the results from the interviews, in some aspects, validated the result from the QLQ-C30. Those patients who relapsed may have had different prerequisites or been in a worse position at the onset of the disease and, reasonably, they needed more compensatory nursing care. More knowledge about the correspondence between a person's perceived QoL when discussed in personal interviews compared with responses given in standardised QoL questionnaires is needed before any assumption about clinical relevance can be made. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/1120860
- author
- Persson, L ; Larsson, G ; Ohlsson, O and Rahm Hallberg, Ingalill LU
- organization
- publishing date
- 2001
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- quality of life, nursing care, acute leukaemia, malignant lymphoma, EORTC QLQ-C30, personal interviews
- in
- European Journal of Cancer Care
- volume
- 10
- issue
- 1
- pages
- 36 - 47
- publisher
- John Wiley & Sons Inc.
- external identifiers
-
- pmid:11827266
- scopus:0035296043
- ISSN
- 1365-2354
- DOI
- 10.1111/j.1365-2354.2001.00236.x
- language
- English
- LU publication?
- yes
- additional info
- The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: The Vårdal Institute (016540000)
- id
- 3c1801a6-4955-4a55-a9d6-00d8e1b2d85c (old id 1120860)
- date added to LUP
- 2016-04-01 12:00:42
- date last changed
- 2022-04-05 08:17:48
@article{3c1801a6-4955-4a55-a9d6-00d8e1b2d85c,
abstract = {{The aim of this study was, first, to investigate the quality of life and sense of coherence for acute leukaemia and malignant lymphoma patients at the start of treatment and over 2 years. A second aim was to compare questionnaire responses with patients' statements in open-ended interviews. A consecutive sample of 16 patients responded to the Quality of Life Questionnaire (QLQ-C30), Lund Gerontological Centre questionnaire and the Sense of Coherence Scale at the start of treatment and after 12 and 24 months. The QLQ-C30 questionnaire was administered also after 4, 8, 16 and 20 months. Tape-recorded open-ended interviews were conducted every 4 months before the patients responded to the questionnaires. Quality of life (QoL) and sense of coherence were scored more highly at the beginning of treatment for patients who did not relapse, than for those who relapsed. This difference remained throughout the study period. There was no correspondence in responses between questionnaire and personal interviews, although the results from the interviews, in some aspects, validated the result from the QLQ-C30. Those patients who relapsed may have had different prerequisites or been in a worse position at the onset of the disease and, reasonably, they needed more compensatory nursing care. More knowledge about the correspondence between a person's perceived QoL when discussed in personal interviews compared with responses given in standardised QoL questionnaires is needed before any assumption about clinical relevance can be made.}},
author = {{Persson, L and Larsson, G and Ohlsson, O and Rahm Hallberg, Ingalill}},
issn = {{1365-2354}},
keywords = {{quality of life; nursing care; acute leukaemia; malignant lymphoma; EORTC QLQ-C30; personal interviews}},
language = {{eng}},
number = {{1}},
pages = {{36--47}},
publisher = {{John Wiley & Sons Inc.}},
series = {{European Journal of Cancer Care}},
title = {{Acute leukaemia or highly malignant lymphoma patients' quality of life over two years: a pilot study}},
url = {{http://dx.doi.org/10.1111/j.1365-2354.2001.00236.x}},
doi = {{10.1111/j.1365-2354.2001.00236.x}},
volume = {{10}},
year = {{2001}},
}