Föräldrars upplevda erfarenheter av att tillfrågas om medverkan i forskning för sitt prematura barns räkning
(2005) In Vård i Norden 25(77). p.29-32- Abstract
- Clinical research, when children involved, may cause difficult ethical problems for both caregivers and parents. Informed consent has to be obtained from the parents and from the child depending on age and maturity. The concept of informed consent is complicated and depending on the ability of communication between the professionals and the
parents. The aim of the study was to illuminate parents lived experiences when being asked to volunteer
their new-born premature child to a clinical research study. Parents of fifteen children were interviewed concerning their experiences and a phenomenological
based analysis was carried out. Three themes were found:
experience of exposure, experience of insufficiency... (More) - Clinical research, when children involved, may cause difficult ethical problems for both caregivers and parents. Informed consent has to be obtained from the parents and from the child depending on age and maturity. The concept of informed consent is complicated and depending on the ability of communication between the professionals and the
parents. The aim of the study was to illuminate parents lived experiences when being asked to volunteer
their new-born premature child to a clinical research study. Parents of fifteen children were interviewed concerning their experiences and a phenomenological
based analysis was carried out. Three themes were found:
experience of exposure, experience of insufficiency and experience of possibilities. The parents expired themselves being in a state of shock and their statements were characterised by the existing chaos. Despite this, the
parents experienced that they could do something good for
others in the future. Researchers have to be aware of the parents’ exposure, and attentive to their individual needs. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/1132981
- author
- Andersson, Ann-Christin LU and Hallström, Inger LU
- organization
- alternative title
- Parents lived experiences from being asked to include their preterm baby in clinical research
- publishing date
- 2005
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- clinical research, informed consent, neonatal intensive care, parents lived experiences, premature
- in
- Vård i Norden
- volume
- 25
- issue
- 77
- pages
- 29 - 32
- publisher
- Sykepleiernes samarbeid i Norden
- ISSN
- 0107-4083
- language
- Swedish
- LU publication?
- yes
- additional info
- The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Division of Nursing (Closed 2012) (013065000)
- id
- 71646044-3c5b-4bce-8c6d-c8fe3dc0a1e0 (old id 1132981)
- alternative location
- http://www.artikel.nu/Bob/GetBob.aspx?bobID=1289
- date added to LUP
- 2016-04-01 17:11:39
- date last changed
- 2018-11-21 20:47:20
@article{71646044-3c5b-4bce-8c6d-c8fe3dc0a1e0,
abstract = {{Clinical research, when children involved, may cause difficult ethical problems for both caregivers and parents. Informed consent has to be obtained from the parents and from the child depending on age and maturity. The concept of informed consent is complicated and depending on the ability of communication between the professionals and the<br/><br>
parents. The aim of the study was to illuminate parents lived experiences when being asked to volunteer<br/><br>
their new-born premature child to a clinical research study. Parents of fifteen children were interviewed concerning their experiences and a phenomenological<br/><br>
based analysis was carried out. Three themes were found:<br/><br>
experience of exposure, experience of insufficiency and experience of possibilities. The parents expired themselves being in a state of shock and their statements were characterised by the existing chaos. Despite this, the<br/><br>
parents experienced that they could do something good for<br/><br>
others in the future. Researchers have to be aware of the parents’ exposure, and attentive to their individual needs.}},
author = {{Andersson, Ann-Christin and Hallström, Inger}},
issn = {{0107-4083}},
keywords = {{clinical research; informed consent; neonatal intensive
care; parents lived experiences; premature}},
language = {{swe}},
number = {{77}},
pages = {{29--32}},
publisher = {{Sykepleiernes samarbeid i Norden}},
series = {{Vård i Norden}},
title = {{Föräldrars upplevda erfarenheter av att tillfrågas om medverkan i forskning för sitt prematura barns räkning}},
url = {{http://www.artikel.nu/Bob/GetBob.aspx?bobID=1289}},
volume = {{25}},
year = {{2005}},
}