Advanced

Föräldrars upplevda erfarenheter av att tillfrågas om medverkan i forskning för sitt prematura barns räkning

Andersson, Ann-Christin LU and Hallström, Inger LU (2005) In Vård i Norden 25(77). p.29-32
Abstract
Clinical research, when children involved, may cause difficult ethical problems for both caregivers and parents. Informed consent has to be obtained from the parents and from the child depending on age and maturity. The concept of informed consent is complicated and depending on the ability of communication between the professionals and the

parents. The aim of the study was to illuminate parents lived experiences when being asked to volunteer

their new-born premature child to a clinical research study. Parents of fifteen children were interviewed concerning their experiences and a phenomenological

based analysis was carried out. Three themes were found:

experience of exposure, experience of insufficiency... (More)
Clinical research, when children involved, may cause difficult ethical problems for both caregivers and parents. Informed consent has to be obtained from the parents and from the child depending on age and maturity. The concept of informed consent is complicated and depending on the ability of communication between the professionals and the

parents. The aim of the study was to illuminate parents lived experiences when being asked to volunteer

their new-born premature child to a clinical research study. Parents of fifteen children were interviewed concerning their experiences and a phenomenological

based analysis was carried out. Three themes were found:

experience of exposure, experience of insufficiency and experience of possibilities. The parents expired themselves being in a state of shock and their statements were characterised by the existing chaos. Despite this, the

parents experienced that they could do something good for

others in the future. Researchers have to be aware of the parents’ exposure, and attentive to their individual needs. (Less)
Please use this url to cite or link to this publication:
author
organization
alternative title
Parents lived experiences from being asked to include their preterm baby in clinical research
publishing date
type
Contribution to journal
publication status
published
subject
keywords
clinical research, informed consent, neonatal intensive care, parents lived experiences, premature
in
Vård i Norden
volume
25
issue
77
pages
29 - 32
publisher
Sykepleiernes samarbeid i Norden
ISSN
0107-4083
language
Swedish
LU publication?
yes
id
71646044-3c5b-4bce-8c6d-c8fe3dc0a1e0 (old id 1132981)
alternative location
http://www.artikel.nu/Bob/GetBob.aspx?bobID=1289
date added to LUP
2008-06-25 15:56:05
date last changed
2016-04-16 05:30:45
@article{71646044-3c5b-4bce-8c6d-c8fe3dc0a1e0,
  abstract     = {Clinical research, when children involved, may cause difficult ethical problems for both caregivers and parents. Informed consent has to be obtained from the parents and from the child depending on age and maturity. The concept of informed consent is complicated and depending on the ability of communication between the professionals and the<br/><br>
parents. The aim of the study was to illuminate parents lived experiences when being asked to volunteer<br/><br>
their new-born premature child to a clinical research study. Parents of fifteen children were interviewed concerning their experiences and a phenomenological<br/><br>
based analysis was carried out. Three themes were found:<br/><br>
experience of exposure, experience of insufficiency and experience of possibilities. The parents expired themselves being in a state of shock and their statements were characterised by the existing chaos. Despite this, the<br/><br>
parents experienced that they could do something good for<br/><br>
others in the future. Researchers have to be aware of the parents’ exposure, and attentive to their individual needs.},
  author       = {Andersson, Ann-Christin and Hallström, Inger},
  issn         = {0107-4083},
  keyword      = {clinical research,informed consent,neonatal intensive
care,parents lived experiences,premature},
  language     = {swe},
  number       = {77},
  pages        = {29--32},
  publisher    = {Sykepleiernes samarbeid i Norden},
  series       = {Vård i Norden},
  title        = {Föräldrars upplevda erfarenheter av att tillfrågas om medverkan i forskning för sitt prematura barns räkning},
  volume       = {25},
  year         = {2005},
}