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Talassemi i Sverige – Behandlingsmål och uppföljning varierar kraftigt.

Oemichen, M and Ljung, Rolf LU orcid (2006) In Läkartidningen 103(47). p.3714-3715
Abstract
A survey of transfusion-dependent thalassaemia was conducted to study

epidemiology, treatment and follow-up routines as a basis for future discussions. Questionnaires were sent to 97 clinics in Sweden. Responses were submitted by 86 of the clinics, 21 of which cared for 32 patients (18 children, 14 adults; i.e.only one or a few patients per hospital). Ten of those 32 (33 procent) patients were born in Sweden. Children were given transfusions more frequently and had higher mean haemoglobin. Iron overload was treated with deferoxamine in 84 procent of the patients and with deferiprone in 44 procent. The mean ferritin concentration was 1670 g/l, although 34 procent (11/32) had levels > 2000 g/l. Follow-up monitoring of iron... (More)
A survey of transfusion-dependent thalassaemia was conducted to study

epidemiology, treatment and follow-up routines as a basis for future discussions. Questionnaires were sent to 97 clinics in Sweden. Responses were submitted by 86 of the clinics, 21 of which cared for 32 patients (18 children, 14 adults; i.e.only one or a few patients per hospital). Ten of those 32 (33 procent) patients were born in Sweden. Children were given transfusions more frequently and had higher mean haemoglobin. Iron overload was treated with deferoxamine in 84 procent of the patients and with deferiprone in 44 procent. The mean ferritin concentration was 1670 g/l, although 34 procent (11/32) had levels > 2000 g/l. Follow-up monitoring of iron overload varied considerably, and ferritin analysis was the only routine examination in 28 procent of the patients. Furthermore, 47 procent had no regular follow-up evaluations of endocrine organ function. (Less)
Please use this url to cite or link to this publication:
author
and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Läkartidningen
volume
103
issue
47
pages
3714 - 3715
publisher
Swedish Medical Association
external identifiers
  • scopus:33751569852
ISSN
0023-7205
language
Swedish
LU publication?
yes
id
34b0644a-c53a-4f9e-b633-87c1a37fdc62 (old id 1136647)
alternative location
http://ltarkiv.lakartidningen.se/2006/temp/pda32578.pdf
date added to LUP
2016-04-01 15:46:35
date last changed
2021-02-17 07:21:49
@article{34b0644a-c53a-4f9e-b633-87c1a37fdc62,
  abstract     = {A survey of transfusion-dependent thalassaemia was conducted to study<br/><br>
epidemiology, treatment and follow-up routines as a basis for future discussions. Questionnaires were sent to 97 clinics in Sweden. Responses were submitted by 86 of the clinics, 21 of which cared for 32 patients (18 children, 14 adults; i.e.only one or a few patients per hospital). Ten of those 32 (33 procent) patients were born in Sweden. Children were given transfusions more frequently and had higher mean haemoglobin. Iron overload was treated with deferoxamine in 84 procent of the patients and with deferiprone in 44 procent. The mean ferritin concentration was 1670 g/l, although 34 procent (11/32) had levels &gt; 2000 g/l. Follow-up monitoring of iron overload varied considerably, and ferritin analysis was the only routine examination in 28 procent of the patients. Furthermore, 47 procent had no regular follow-up evaluations of endocrine organ function.},
  author       = {Oemichen, M and Ljung, Rolf},
  issn         = {0023-7205},
  language     = {swe},
  number       = {47},
  pages        = {3714--3715},
  publisher    = {Swedish Medical Association},
  series       = {Läkartidningen},
  title        = {Talassemi i Sverige – Behandlingsmål och uppföljning varierar kraftigt.},
  url          = {http://ltarkiv.lakartidningen.se/2006/temp/pda32578.pdf},
  volume       = {103},
  year         = {2006},
}