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Adolescents' lived experience of epilepsy

Eklund, Pernilla LU and Sivberg, Bengt LU (2003) In Journal of Neuroscience Nursing 35(1). p.9-40
Abstract
To improve the well-being of adolescents with epilepsy, research is needed on how adolescents cope. In this study, Lazarus' model of stress and coping and Antonovsky's Theory of Sense of Coherence were used as the theoretical framework. The aim was to describe the lived experience of adolescents with epilepsy and their coping skills. The participants were 13-19 years old with an epilepsy diagnosis but without mental retardation or cerebral palsy. The study was performed in southern Sweden at the pediatric department of a university hospital. Semistructured and open-ended interviews were conducted with 13 adolescents. The transcripts were analyzed with manifest and latent content analysis. All the adolescents had developed strategies to... (More)
To improve the well-being of adolescents with epilepsy, research is needed on how adolescents cope. In this study, Lazarus' model of stress and coping and Antonovsky's Theory of Sense of Coherence were used as the theoretical framework. The aim was to describe the lived experience of adolescents with epilepsy and their coping skills. The participants were 13-19 years old with an epilepsy diagnosis but without mental retardation or cerebral palsy. The study was performed in southern Sweden at the pediatric department of a university hospital. Semistructured and open-ended interviews were conducted with 13 adolescents. The transcripts were analyzed with manifest and latent content analysis. All the adolescents had developed strategies to cope with the emotional strains caused by epilepsy. They experienced strains from the seizures, limitation of leisure activities, side effects of medication, and feelings of being different. The coping strategies described were finding support, being in control, and experimenting. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Journal of Neuroscience Nursing
volume
35
issue
1
pages
9 - 40
publisher
American Association of Neuroscience Nurses
external identifiers
  • scopus:0037590984
ISSN
0888-0395
language
English
LU publication?
yes
id
c4811824-4c58-44a7-899b-db3a8ca1b891 (old id 116099)
alternative location
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uids=12789720&dopt=Abstract
date added to LUP
2007-07-23 13:47:49
date last changed
2018-09-23 03:33:09
@article{c4811824-4c58-44a7-899b-db3a8ca1b891,
  abstract     = {To improve the well-being of adolescents with epilepsy, research is needed on how adolescents cope. In this study, Lazarus' model of stress and coping and Antonovsky's Theory of Sense of Coherence were used as the theoretical framework. The aim was to describe the lived experience of adolescents with epilepsy and their coping skills. The participants were 13-19 years old with an epilepsy diagnosis but without mental retardation or cerebral palsy. The study was performed in southern Sweden at the pediatric department of a university hospital. Semistructured and open-ended interviews were conducted with 13 adolescents. The transcripts were analyzed with manifest and latent content analysis. All the adolescents had developed strategies to cope with the emotional strains caused by epilepsy. They experienced strains from the seizures, limitation of leisure activities, side effects of medication, and feelings of being different. The coping strategies described were finding support, being in control, and experimenting.},
  author       = {Eklund, Pernilla and Sivberg, Bengt},
  issn         = {0888-0395},
  language     = {eng},
  number       = {1},
  pages        = {9--40},
  publisher    = {American Association of Neuroscience Nurses},
  series       = {Journal of Neuroscience Nursing},
  title        = {Adolescents' lived experience of epilepsy},
  volume       = {35},
  year         = {2003},
}