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Living with cancer and perception of care: Icelandic oncology outpatients, a qualitative study

Hjörleifsdottir, Elisabet LU ; Rahm Hallberg, Ingalill LU ; Gunnarsdottir, Elin Dianna and Bolmsjo, Ingrid Agren (2008) In Supportive Care in Cancer 16(5). p.515-524
Abstract
Aim This qualitative study was set out to explore oncology outpatient experiences of having cancer, to illuminate coping strategies and to explore perceptions of care and service provided while treated for cancer. Materials and methods Thirty patients undergoing chemotherapy or radiotherapy were consecutively selected for the study in three oncology outpatient clinics in Iceland; mean age was 55 years. All participants gave written consent but five dropped out of the study. Twenty-five semi-structured single interviews were conducted and analysed using manifest and latent content analysis. Results The descriptive level of the text could be understood as: (a) getting cancer: alarming experience; (b) coping: balancing life as it was before... (More)
Aim This qualitative study was set out to explore oncology outpatient experiences of having cancer, to illuminate coping strategies and to explore perceptions of care and service provided while treated for cancer. Materials and methods Thirty patients undergoing chemotherapy or radiotherapy were consecutively selected for the study in three oncology outpatient clinics in Iceland; mean age was 55 years. All participants gave written consent but five dropped out of the study. Twenty-five semi-structured single interviews were conducted and analysed using manifest and latent content analysis. Results The descriptive level of the text could be understood as: (a) getting cancer: alarming experience; (b) coping: balancing life as it was before cancer against present situation to achieve normality; (c) satisfaction: encountering caring behaviour enhances satisfaction and well being. Each of the categories encompassed variation of subcategories. All the categories were summarised in the core category: "Being in the alarming situation of getting cancer evokes a strong need to maintain normality and keep uncertainty at distance with support from caring and sensitive encounters." This reflected patients' overall experiences of being diagnosed with cancer, how they coped and their perception of quality of care while going through treatment. Conclusion Reactions to the diagnosis of cancer indicate strong emotional reactions. A strong will to handle the situation and determination to maintain normality in life was prominent. Establishment of positive patient-health care professional relationships, caring encounters, faith, believing in treatment and support from family was highly valued as support and giving hope. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
outpatients, distress, cancer, coping, satisfaction
in
Supportive Care in Cancer
volume
16
issue
5
pages
515 - 524
publisher
Springer
external identifiers
  • wos:000254777300013
  • scopus:41849128895
ISSN
0941-4355
DOI
10.1007/s00520-007-0333-9
language
English
LU publication?
yes
id
9e117846-a71a-4063-9f12-74d48e005d9e (old id 1206573)
date added to LUP
2008-08-28 14:26:38
date last changed
2017-01-01 06:34:02
@article{9e117846-a71a-4063-9f12-74d48e005d9e,
  abstract     = {Aim This qualitative study was set out to explore oncology outpatient experiences of having cancer, to illuminate coping strategies and to explore perceptions of care and service provided while treated for cancer. Materials and methods Thirty patients undergoing chemotherapy or radiotherapy were consecutively selected for the study in three oncology outpatient clinics in Iceland; mean age was 55 years. All participants gave written consent but five dropped out of the study. Twenty-five semi-structured single interviews were conducted and analysed using manifest and latent content analysis. Results The descriptive level of the text could be understood as: (a) getting cancer: alarming experience; (b) coping: balancing life as it was before cancer against present situation to achieve normality; (c) satisfaction: encountering caring behaviour enhances satisfaction and well being. Each of the categories encompassed variation of subcategories. All the categories were summarised in the core category: "Being in the alarming situation of getting cancer evokes a strong need to maintain normality and keep uncertainty at distance with support from caring and sensitive encounters." This reflected patients' overall experiences of being diagnosed with cancer, how they coped and their perception of quality of care while going through treatment. Conclusion Reactions to the diagnosis of cancer indicate strong emotional reactions. A strong will to handle the situation and determination to maintain normality in life was prominent. Establishment of positive patient-health care professional relationships, caring encounters, faith, believing in treatment and support from family was highly valued as support and giving hope.},
  author       = {Hjörleifsdottir, Elisabet and Rahm Hallberg, Ingalill and Gunnarsdottir, Elin Dianna and Bolmsjo, Ingrid Agren},
  issn         = {0941-4355},
  keyword      = {outpatients,distress,cancer,coping,satisfaction},
  language     = {eng},
  number       = {5},
  pages        = {515--524},
  publisher    = {Springer},
  series       = {Supportive Care in Cancer},
  title        = {Living with cancer and perception of care: Icelandic oncology outpatients, a qualitative study},
  url          = {http://dx.doi.org/10.1007/s00520-007-0333-9},
  volume       = {16},
  year         = {2008},
}