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Striking a Balance : A Qualitative Study of Next of Kin Participation in the Care of Older Persons in Nursing Homes in Sweden

Wallerstedt, Birgitta; Behm, Lina LU ; Alftberg, Åsa LU ; Sandgren, Anna; Benzein, Eva; Nilsen, Per and Ahlström, Gerd LU (2018) In Healthcare (Basel, Switzerland) 6(2). p.1-16
Abstract (Swedish)
Most of the care in nursing homes is palliative in nature, as it is the oldest and the frailest people who live in nursing homes. The aim of this study was to explore next of kin’s experiences of participating in the care of older persons at nursing homes. A qualitative design was used, based on semi-structured interviews with 40 next of kin, and analyzed using qualitative content analysis. An overarching theme emerged, a balancing act consisting of three categories: (1) visiting the nursing home; (2) building and maintaining relationships; and (3) gathering and conveying information. The next of kin have to balance their own responsibility for the older person’s wellbeing by taking part in their care and their need to leave the... (More)
Most of the care in nursing homes is palliative in nature, as it is the oldest and the frailest people who live in nursing homes. The aim of this study was to explore next of kin’s experiences of participating in the care of older persons at nursing homes. A qualitative design was used, based on semi-structured interviews with 40 next of kin, and analyzed using qualitative content analysis. An overarching theme emerged, a balancing act consisting of three categories: (1) visiting the nursing home; (2) building and maintaining relationships; and (3) gathering and conveying information. The next of kin have to balance their own responsibility for the older person’s wellbeing by taking part in their care and their need to leave the responsibility to the staff due to critical health conditions. The next of kin wanted to participate in care meetings and conversations, not only in practical issues. The findings indicate the need to improve the next of kin’s participation in the care as an equal partner. Increased knowledge about palliative care and decision-making of limiting life-prolonging treatment may lead to a higher quality of care. (Less)
Abstract

Most of the care in nursing homes is palliative in nature, as it is the oldest and the frailest people who live in nursing homes. The aim of this study was to explore next of kin's experiences of participating in the care of older persons at nursing homes. A qualitative design was used, based on semi-structured interviews with 40 next of kin, and analyzed using qualitative content analysis. An overarching theme emerged, a balancing act consisting of three categories: (1) visiting the nursing home; (2) building and maintaining relationships; and (3) gathering and conveying information. The next of kin have to balance their own responsibility for the older person's wellbeing by taking part in their care and their need to leave the... (More)

Most of the care in nursing homes is palliative in nature, as it is the oldest and the frailest people who live in nursing homes. The aim of this study was to explore next of kin's experiences of participating in the care of older persons at nursing homes. A qualitative design was used, based on semi-structured interviews with 40 next of kin, and analyzed using qualitative content analysis. An overarching theme emerged, a balancing act consisting of three categories: (1) visiting the nursing home; (2) building and maintaining relationships; and (3) gathering and conveying information. The next of kin have to balance their own responsibility for the older person's wellbeing by taking part in their care and their need to leave the responsibility to the staff due to critical health conditions. The next of kin wanted to participate in care meetings and conversations, not only in practical issues. The findings indicate the need to improve the next of kin's participation in the care as an equal partner. Increased knowledge about palliative care and decision-making of limiting life-prolonging treatment may lead to a higher quality of care.

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author
organization
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type
Contribution to journal
publication status
published
subject
keywords
Journal Article
in
Healthcare (Basel, Switzerland)
volume
6
issue
2
pages
1 - 16
ISSN
2227-9032
DOI
10.3390/healthcare6020046
language
English
LU publication?
yes
id
1232321e-b567-4081-a4ad-4762dce4f81e
date added to LUP
2018-05-15 09:44:18
date last changed
2019-03-08 03:27:07
@article{1232321e-b567-4081-a4ad-4762dce4f81e,
  abstract     = {<p>Most of the care in nursing homes is palliative in nature, as it is the oldest and the frailest people who live in nursing homes. The aim of this study was to explore next of kin's experiences of participating in the care of older persons at nursing homes. A qualitative design was used, based on semi-structured interviews with 40 next of kin, and analyzed using qualitative content analysis. An overarching theme emerged, a balancing act consisting of three categories: (1) visiting the nursing home; (2) building and maintaining relationships; and (3) gathering and conveying information. The next of kin have to balance their own responsibility for the older person's wellbeing by taking part in their care and their need to leave the responsibility to the staff due to critical health conditions. The next of kin wanted to participate in care meetings and conversations, not only in practical issues. The findings indicate the need to improve the next of kin's participation in the care as an equal partner. Increased knowledge about palliative care and decision-making of limiting life-prolonging treatment may lead to a higher quality of care.</p>},
  author       = {Wallerstedt, Birgitta and Behm, Lina and Alftberg, Åsa and Sandgren, Anna and Benzein, Eva and Nilsen, Per and Ahlström, Gerd},
  issn         = {2227-9032},
  keyword      = {Journal Article},
  language     = {eng},
  month        = {05},
  number       = {2},
  pages        = {1--16},
  series       = {Healthcare (Basel, Switzerland)},
  title        = {Striking a Balance : A Qualitative Study of Next of Kin Participation in the Care of Older Persons in Nursing Homes in Sweden},
  url          = {http://dx.doi.org/10.3390/healthcare6020046},
  volume       = {6},
  year         = {2018},
}