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Reaching adulthood with Hirschsprung's disease : Patient experiences and recommendations for transitional care

Hoel, Anders T. ; Tofft, Louise LU orcid ; Bjørnland, Kristin ; Gjone, Helene ; Teig, Catherine J. ; Øresland, Tom ; Stenström, Pernilla LU orcid and Andersen, Marit H. (2021) In Journal of Pediatric Surgery 56(2). p.257-262
Abstract

Background/Purpose: The need for transitional care has gained increased focus in the treatment of patients with congenital colorectal disorders. We aimed to acquire in-depth knowledge about the experiences of adult patients with Hirschsprung's disease (HD) and their suggestions for transitional care. Methods: Binational study applying gender equal focus group interviews (FGI). Results: Seventeen (9 men) of 52 invited patients with median age 29 (19–43) years participated. Three themes evolved from the FGI. “Scarred body and soul” describes the somatic and psychosocial challenges the patients experienced and “limited health literacy on HD” refers to the patients' lack of HD knowledge. “Absent transition” depicts missing transitional care... (More)

Background/Purpose: The need for transitional care has gained increased focus in the treatment of patients with congenital colorectal disorders. We aimed to acquire in-depth knowledge about the experiences of adult patients with Hirschsprung's disease (HD) and their suggestions for transitional care. Methods: Binational study applying gender equal focus group interviews (FGI). Results: Seventeen (9 men) of 52 invited patients with median age 29 (19–43) years participated. Three themes evolved from the FGI. “Scarred body and soul” describes the somatic and psychosocial challenges the patients experienced and “limited health literacy on HD” refers to the patients' lack of HD knowledge. “Absent transition” depicts missing transitional care and the patients' inability to find adult HD specialists. The adult HD patients strongly recommended transitional care from early teens with focus on information about HD and establishment of a peer-to-peer program. They also emphasized the possibility of being referred to a pelvic floor center. Conclusions: HD negatively influences patients' somatic and psychosocial health in childhood, adolescence and adulthood. Adult HD patients strongly recommend transitional care from early teens and the possibility for referral to a center working with pelvic floor dysfunctions. Level of evidence: IV Type of research: Clinical

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author
; ; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Experiences, Health literacy, Hirschsprung, In-depth interview, Long-term results, Transitional care
in
Journal of Pediatric Surgery
volume
56
issue
2
pages
257 - 262
publisher
Elsevier
external identifiers
  • pmid:32586610
  • scopus:85086736138
ISSN
0022-3468
DOI
10.1016/j.jpedsurg.2020.05.015
language
English
LU publication?
yes
id
13a50ad1-150c-4ed2-9177-904b4829a8de
date added to LUP
2020-07-13 13:49:49
date last changed
2025-01-23 16:42:55
@article{13a50ad1-150c-4ed2-9177-904b4829a8de,
  abstract     = {{<p>Background/Purpose: The need for transitional care has gained increased focus in the treatment of patients with congenital colorectal disorders. We aimed to acquire in-depth knowledge about the experiences of adult patients with Hirschsprung's disease (HD) and their suggestions for transitional care. Methods: Binational study applying gender equal focus group interviews (FGI). Results: Seventeen (9 men) of 52 invited patients with median age 29 (19–43) years participated. Three themes evolved from the FGI. “Scarred body and soul” describes the somatic and psychosocial challenges the patients experienced and “limited health literacy on HD” refers to the patients' lack of HD knowledge. “Absent transition” depicts missing transitional care and the patients' inability to find adult HD specialists. The adult HD patients strongly recommended transitional care from early teens with focus on information about HD and establishment of a peer-to-peer program. They also emphasized the possibility of being referred to a pelvic floor center. Conclusions: HD negatively influences patients' somatic and psychosocial health in childhood, adolescence and adulthood. Adult HD patients strongly recommend transitional care from early teens and the possibility for referral to a center working with pelvic floor dysfunctions. Level of evidence: IV Type of research: Clinical</p>}},
  author       = {{Hoel, Anders T. and Tofft, Louise and Bjørnland, Kristin and Gjone, Helene and Teig, Catherine J. and Øresland, Tom and Stenström, Pernilla and Andersen, Marit H.}},
  issn         = {{0022-3468}},
  keywords     = {{Experiences; Health literacy; Hirschsprung; In-depth interview; Long-term results; Transitional care}},
  language     = {{eng}},
  number       = {{2}},
  pages        = {{257--262}},
  publisher    = {{Elsevier}},
  series       = {{Journal of Pediatric Surgery}},
  title        = {{Reaching adulthood with Hirschsprung's disease : Patient experiences and recommendations for transitional care}},
  url          = {{http://dx.doi.org/10.1016/j.jpedsurg.2020.05.015}},
  doi          = {{10.1016/j.jpedsurg.2020.05.015}},
  volume       = {{56}},
  year         = {{2021}},
}