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Family members' experience of participation in the needs assessment when their older next of kin becomes in need of public home help: An interview study.

Janlöv, Ann-Christin LU ; Rahm Hallberg, Ingalill LU and Petersson, Kerstin LU (2006) In International Journal of Nursing Studies 43(8). p.1033-1046
Abstract
Background



The policy that older people should be able live in their own homes in spite of extensive care and social service needs means that close family members are increasingly involved in help provision. Ways must be found to facilitate their situation. Their participation in the needs assessment of their next of kin may be crucial.



Objectives



The aim of the study was to illuminate close family members’ experience of having an older next of kin becoming in need of public home help, their participation in the needs assessment procedure and the decisions about their next of kins’ public home help.



Participants



The sample was 27 close family... (More)
Background



The policy that older people should be able live in their own homes in spite of extensive care and social service needs means that close family members are increasingly involved in help provision. Ways must be found to facilitate their situation. Their participation in the needs assessment of their next of kin may be crucial.



Objectives



The aim of the study was to illuminate close family members’ experience of having an older next of kin becoming in need of public home help, their participation in the needs assessment procedure and the decisions about their next of kins’ public home help.



Participants



The sample was 27 close family members (mean age 63, range 42–93 years) chosen by their older needs-assessed next of kin.



Methods



An interview using a thematic interview guide formed an everyday dialogue jointly constructed by the interviewer and the interviewee. Thereafter an interpretative content analysis was conducted on the transcribed interviews.



Results



One overarching category was illuminated: “Feeling disconfirmed or confirmed in the needs assessment, when feeling pressed by the responsibility and struggling to balance the needs of the family.” Four principal categories with sub-categories were derived: (1) Experiencing existential ruminations and the need to help. (2) Help giving and receiving as a difficult balance between needs. (3) Feeling overlooked or acknowledged as having an influence on the needs assessment. (4) Hopes about the home help being fulfilled or dashed.



Conclusion



The findings imply that the main focus is on the help seeker, overlooking the contribution of family members representing and providing help. A more holistic needs assessment approach is required with a framework and working methods that involve and support the family as a whole. (Less)
Please use this url to cite or link to this publication:
author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Family help, Experience, Participation, Needs assessment, Public home help
in
International Journal of Nursing Studies
volume
43
issue
8
pages
1033 - 1046
publisher
Elsevier
external identifiers
  • wos:000241841800011
  • scopus:33749428140
ISSN
1873-491X
DOI
10.1016/j.ijnurstu.2005.11.010
language
English
LU publication?
yes
id
14549765-e338-45dd-8d24-5c7465c11020 (old id 150644)
date added to LUP
2016-04-01 11:37:23
date last changed
2022-01-26 07:48:38
@article{14549765-e338-45dd-8d24-5c7465c11020,
  abstract     = {{Background<br/><br>
<br/><br>
The policy that older people should be able live in their own homes in spite of extensive care and social service needs means that close family members are increasingly involved in help provision. Ways must be found to facilitate their situation. Their participation in the needs assessment of their next of kin may be crucial.<br/><br>
<br/><br>
Objectives<br/><br>
<br/><br>
The aim of the study was to illuminate close family members’ experience of having an older next of kin becoming in need of public home help, their participation in the needs assessment procedure and the decisions about their next of kins’ public home help.<br/><br>
<br/><br>
Participants<br/><br>
<br/><br>
The sample was 27 close family members (mean age 63, range 42–93 years) chosen by their older needs-assessed next of kin.<br/><br>
<br/><br>
Methods<br/><br>
<br/><br>
An interview using a thematic interview guide formed an everyday dialogue jointly constructed by the interviewer and the interviewee. Thereafter an interpretative content analysis was conducted on the transcribed interviews.<br/><br>
<br/><br>
Results<br/><br>
<br/><br>
One overarching category was illuminated: “Feeling disconfirmed or confirmed in the needs assessment, when feeling pressed by the responsibility and struggling to balance the needs of the family.” Four principal categories with sub-categories were derived: (1) Experiencing existential ruminations and the need to help. (2) Help giving and receiving as a difficult balance between needs. (3) Feeling overlooked or acknowledged as having an influence on the needs assessment. (4) Hopes about the home help being fulfilled or dashed.<br/><br>
<br/><br>
Conclusion<br/><br>
<br/><br>
The findings imply that the main focus is on the help seeker, overlooking the contribution of family members representing and providing help. A more holistic needs assessment approach is required with a framework and working methods that involve and support the family as a whole.}},
  author       = {{Janlöv, Ann-Christin and Rahm Hallberg, Ingalill and Petersson, Kerstin}},
  issn         = {{1873-491X}},
  keywords     = {{Family help; Experience; Participation; Needs assessment; Public home help}},
  language     = {{eng}},
  number       = {{8}},
  pages        = {{1033--1046}},
  publisher    = {{Elsevier}},
  series       = {{International Journal of Nursing Studies}},
  title        = {{Family members' experience of participation in the needs assessment when their older next of kin becomes in need of public home help: An interview study.}},
  url          = {{http://dx.doi.org/10.1016/j.ijnurstu.2005.11.010}},
  doi          = {{10.1016/j.ijnurstu.2005.11.010}},
  volume       = {{43}},
  year         = {{2006}},
}