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How do children experience participating in a coeliac disease screening? A qualitative study based on children's written narratives

Nordyke, Katrina; Myleus, Anna; Ivarsson, Anneli; Carlsson, Annelie LU ; Danielsson, Lars; Hogberg, Lotta; Karlsson, Eva and Emmelin, Maria (2010) In Scandinavian Journal of Public Health1999-01-01+01:00 38(4). p.351-358
Abstract
Aim: To explore how 12-year-old Swedish children experienced being involved in a coeliac disease (CD) screening. Methods: A qualitative approach was used to analyse short narratives written by children who had taken part in a school-based CD screening. Narratives were written after blood sampling, but prior to learning of the test results. Through an oscillation between the texts, codes, subcategories and four categories, a theme was generated describing the children's experience. Results: The theme "A Journey towards Confidence" captures the overall experience of the screening. It illustrates that, although some children faced fear or anxiety, overall they had or were provided tools allowing them to cope well and experience a journey... (More)
Aim: To explore how 12-year-old Swedish children experienced being involved in a coeliac disease (CD) screening. Methods: A qualitative approach was used to analyse short narratives written by children who had taken part in a school-based CD screening. Narratives were written after blood sampling, but prior to learning of the test results. Through an oscillation between the texts, codes, subcategories and four categories, a theme was generated describing the children's experience. Results: The theme "A Journey towards Confidence" captures the overall experience of the screening. It illustrates that, although some children faced fear or anxiety, overall they had or were provided tools allowing them to cope well and experience a journey towards confidence. The categories describe conditions that contributed to the experience. The first, being involved, reflects the importance of involvement in receiving information and deciding to participate. Being a "good citizen" refers to feeling a duty to help and a trust to be treated fairly. Being able to cope with the screening was influenced by the children's ability to manage sensations and support received. The last category, being able to balance risk, illustrates that the children were able to balance the risks of screening when they had a realistic understanding of the disease and their vulnerability and had tamed their anxiety. Conclusions: This study increases the understanding of how 12-year-old Swedish children experienced participating in a CD screening and describes conditions important for a positive experience. We show that, although some children faced anxiety, they had, or were provided with, tools allowing them to cope well and gain confidence. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
personal narratives, Children, coeliac disease, qualitative research, screening
in
Scandinavian Journal of Public Health1999-01-01+01:00
volume
38
issue
4
pages
351 - 358
publisher
Taylor & Francis
external identifiers
  • wos:000278152300003
  • scopus:77953443141
ISSN
1651-1905
DOI
10.1177/1403494810368454
language
English
LU publication?
yes
id
64b6a6ab-dbab-444b-8d71-845e73d8acb4 (old id 1616605)
date added to LUP
2010-06-23 11:21:00
date last changed
2018-06-17 04:15:25
@article{64b6a6ab-dbab-444b-8d71-845e73d8acb4,
  abstract     = {Aim: To explore how 12-year-old Swedish children experienced being involved in a coeliac disease (CD) screening. Methods: A qualitative approach was used to analyse short narratives written by children who had taken part in a school-based CD screening. Narratives were written after blood sampling, but prior to learning of the test results. Through an oscillation between the texts, codes, subcategories and four categories, a theme was generated describing the children's experience. Results: The theme "A Journey towards Confidence" captures the overall experience of the screening. It illustrates that, although some children faced fear or anxiety, overall they had or were provided tools allowing them to cope well and experience a journey towards confidence. The categories describe conditions that contributed to the experience. The first, being involved, reflects the importance of involvement in receiving information and deciding to participate. Being a "good citizen" refers to feeling a duty to help and a trust to be treated fairly. Being able to cope with the screening was influenced by the children's ability to manage sensations and support received. The last category, being able to balance risk, illustrates that the children were able to balance the risks of screening when they had a realistic understanding of the disease and their vulnerability and had tamed their anxiety. Conclusions: This study increases the understanding of how 12-year-old Swedish children experienced participating in a CD screening and describes conditions important for a positive experience. We show that, although some children faced anxiety, they had, or were provided with, tools allowing them to cope well and gain confidence.},
  author       = {Nordyke, Katrina and Myleus, Anna and Ivarsson, Anneli and Carlsson, Annelie and Danielsson, Lars and Hogberg, Lotta and Karlsson, Eva and Emmelin, Maria},
  issn         = {1651-1905},
  keyword      = {personal narratives,Children,coeliac disease,qualitative research,screening},
  language     = {eng},
  number       = {4},
  pages        = {351--358},
  publisher    = {Taylor & Francis},
  series       = {Scandinavian Journal of Public Health1999-01-01+01:00},
  title        = {How do children experience participating in a coeliac disease screening? A qualitative study based on children's written narratives},
  url          = {http://dx.doi.org/10.1177/1403494810368454},
  volume       = {38},
  year         = {2010},
}