Parents' experience of having a child with autism and learning disabilities living in a group home: A case study.
(2006) In Autism 10(6). p.629-641- Abstract
- Some children with autism and learning disabilities also
have aberrant behaviours that are difficult to regulate and stressful for
both the child and family members. This case study concerns experiences
of 10 parents from five families before and 2 years after entrusting
their 10- to 11-year-old child with autism to a group home.
Hermeneutic phenomenological analysis of narrative interviews with
the parents before the child’s moving showed them experiencing grief
and sorrow, total exhaustion because of inability to regulate their
child’s behaviours, social isolation, and negative effects on the child’s
siblings, but experiencing themselves as more sympathetic... (More) - Some children with autism and learning disabilities also
have aberrant behaviours that are difficult to regulate and stressful for
both the child and family members. This case study concerns experiences
of 10 parents from five families before and 2 years after entrusting
their 10- to 11-year-old child with autism to a group home.
Hermeneutic phenomenological analysis of narrative interviews with
the parents before the child’s moving showed them experiencing grief
and sorrow, total exhaustion because of inability to regulate their
child’s behaviours, social isolation, and negative effects on the child’s
siblings, but experiencing themselves as more sympathetic than previously
towards other people with problems. Two years later they experienced
relief for the family due to the group home arrangement and
the child’s improvement, but with an ethical dilemma which made
them feel guilty, despite increased hope for the future. Some also felt
unhappy with the staff situation at the group home. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/163390
- author
- Benderix, Ylva LU ; Nordström, Berit LU and Sivberg, Bengt LU
- organization
- publishing date
- 2006
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- respite, parents, group home, exhaustion, autism, Sweden
- in
- Autism
- volume
- 10
- issue
- 6
- pages
- 629 - 641
- publisher
- SAGE Publications
- external identifiers
-
- wos:000242341500009
- scopus:33750215796
- ISSN
- 1362-3613
- DOI
- 10.1177/1362361307070902
- language
- English
- LU publication?
- yes
- additional info
- The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Division of Nursing (Closed 2012) (013065000)
- id
- df0bc089-47a5-482c-a7a5-8b0daa535c80 (old id 163390)
- date added to LUP
- 2016-04-01 16:04:05
- date last changed
- 2022-03-14 21:52:53
@article{df0bc089-47a5-482c-a7a5-8b0daa535c80,
abstract = {{Some children with autism and learning disabilities also<br/><br>
have aberrant behaviours that are difficult to regulate and stressful for<br/><br>
both the child and family members. This case study concerns experiences<br/><br>
of 10 parents from five families before and 2 years after entrusting<br/><br>
their 10- to 11-year-old child with autism to a group home.<br/><br>
Hermeneutic phenomenological analysis of narrative interviews with<br/><br>
the parents before the child’s moving showed them experiencing grief<br/><br>
and sorrow, total exhaustion because of inability to regulate their<br/><br>
child’s behaviours, social isolation, and negative effects on the child’s<br/><br>
siblings, but experiencing themselves as more sympathetic than previously<br/><br>
towards other people with problems. Two years later they experienced<br/><br>
relief for the family due to the group home arrangement and<br/><br>
the child’s improvement, but with an ethical dilemma which made<br/><br>
them feel guilty, despite increased hope for the future. Some also felt<br/><br>
unhappy with the staff situation at the group home.}},
author = {{Benderix, Ylva and Nordström, Berit and Sivberg, Bengt}},
issn = {{1362-3613}},
keywords = {{respite; parents; group home; exhaustion; autism; Sweden}},
language = {{eng}},
number = {{6}},
pages = {{629--641}},
publisher = {{SAGE Publications}},
series = {{Autism}},
title = {{Parents' experience of having a child with autism and learning disabilities living in a group home: A case study.}},
url = {{https://lup.lub.lu.se/search/files/4557495/625761.pdf}},
doi = {{10.1177/1362361307070902}},
volume = {{10}},
year = {{2006}},
}