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From children to young adults: Cystic fibrosis and siblingship A longitudinal study

Wennström, Inga-Lill; Isberg, Per-Erik LU ; Wirtberg, Ingegerd LU and Rydén, Olof LU (2011) In Acta Pædiatrica 100(7). p.1048-1053
Abstract
Aim: To compare the results from our previous study in 1994/95 of children with CF at age 6-14 y and their healthy siblings with data from the same participants as young adults in regard to their self-esteem, life satisfaction and attitudes towards the CF siblingship situation. Methods: Thirty-seven sibling pairs participated. Three instruments were used: The "As I see myself" self evaluation questionnaire; the "Ladder of life", assessing life satisfaction and the "Sibling Mirror", reflecting a person's feelings, when one's sibling or oneself has CF. Results: Contrary to 1994/95, the female participants showed no signs of impaired self-esteem. Concerning life satisfaction, women in both groups and the men with CF have lower ratings than a... (More)
Aim: To compare the results from our previous study in 1994/95 of children with CF at age 6-14 y and their healthy siblings with data from the same participants as young adults in regard to their self-esteem, life satisfaction and attitudes towards the CF siblingship situation. Methods: Thirty-seven sibling pairs participated. Three instruments were used: The "As I see myself" self evaluation questionnaire; the "Ladder of life", assessing life satisfaction and the "Sibling Mirror", reflecting a person's feelings, when one's sibling or oneself has CF. Results: Contrary to 1994/95, the female participants showed no signs of impaired self-esteem. Concerning life satisfaction, women in both groups and the men with CF have lower ratings than a healthy reference group. - Individuals with CF look upon themselves today as independent, thoughtful and mature, but remember themselves as being active, spoiled or fussy. Healthy siblings consider themselves as diplomatic, responsible, mature, important and loyal but remember themselves as angry, envious and neglected. Conclusion: The self-esteem of women in the sibling pairs (whether with CF or healthy sisters) has improved since their childhood. Overall, the results indicate that young adults with CF today are medically well controlled and psychosocially well adapted, albeit aware of their precarious future. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Gender, Cystic fibrosis, Longitudinal study, Self-esteem, Siblings
in
Acta Pædiatrica
volume
100
issue
7
pages
1048 - 1053
publisher
Wiley-Blackwell Publishing Ltd
external identifiers
  • wos:000291224200036
  • pmid:21309849
  • scopus:79958076998
ISSN
1651-2227
DOI
10.1111/j.1651-2227.2011.02182.x
language
English
LU publication?
yes
id
b6071a4a-35bf-4a01-ba77-8fe605bae02d (old id 1831985)
date added to LUP
2011-03-04 10:39:22
date last changed
2017-01-01 03:46:07
@article{b6071a4a-35bf-4a01-ba77-8fe605bae02d,
  abstract     = {Aim: To compare the results from our previous study in 1994/95 of children with CF at age 6-14 y and their healthy siblings with data from the same participants as young adults in regard to their self-esteem, life satisfaction and attitudes towards the CF siblingship situation. Methods: Thirty-seven sibling pairs participated. Three instruments were used: The "As I see myself" self evaluation questionnaire; the "Ladder of life", assessing life satisfaction and the "Sibling Mirror", reflecting a person's feelings, when one's sibling or oneself has CF. Results: Contrary to 1994/95, the female participants showed no signs of impaired self-esteem. Concerning life satisfaction, women in both groups and the men with CF have lower ratings than a healthy reference group. - Individuals with CF look upon themselves today as independent, thoughtful and mature, but remember themselves as being active, spoiled or fussy. Healthy siblings consider themselves as diplomatic, responsible, mature, important and loyal but remember themselves as angry, envious and neglected. Conclusion: The self-esteem of women in the sibling pairs (whether with CF or healthy sisters) has improved since their childhood. Overall, the results indicate that young adults with CF today are medically well controlled and psychosocially well adapted, albeit aware of their precarious future.},
  author       = {Wennström, Inga-Lill and Isberg, Per-Erik and Wirtberg, Ingegerd and Rydén, Olof},
  issn         = {1651-2227},
  keyword      = {Gender,Cystic fibrosis,Longitudinal study,Self-esteem,Siblings},
  language     = {eng},
  number       = {7},
  pages        = {1048--1053},
  publisher    = {Wiley-Blackwell Publishing Ltd},
  series       = {Acta Pædiatrica},
  title        = {From children to young adults: Cystic fibrosis and siblingship A longitudinal study},
  url          = {http://dx.doi.org/10.1111/j.1651-2227.2011.02182.x},
  volume       = {100},
  year         = {2011},
}