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Returning to a changed ordinary life - families' lived experience after completing a child's cancer treatment

Bjork, M.; Nordström, Berit LU ; Wiebe, Thomas LU and Hallström, Inger LU (2011) In European Journal of Cancer Care 20(2). p.163-169
Abstract
The aim of the study was to illuminate the families' lived experience after completing a child's cancer treatment. The study took place at a University Hospital in southern Sweden. Interviews were carried out with 10 mothers, eight fathers, four patients and two siblings from a total of 10 families. The interviews were analysed with a hermeneutical phenomenological approach. One essential theme emerged from their stories, 'returning to a changed ordinary life - incorporating a trying and contradictory experience'. The families felt relieved that the treatment was over yet they experienced strains in their daily life. Family members felt changed and especially the parents needed to focus on themselves in order to recover. Closeness with... (More)
The aim of the study was to illuminate the families' lived experience after completing a child's cancer treatment. The study took place at a University Hospital in southern Sweden. Interviews were carried out with 10 mothers, eight fathers, four patients and two siblings from a total of 10 families. The interviews were analysed with a hermeneutical phenomenological approach. One essential theme emerged from their stories, 'returning to a changed ordinary life - incorporating a trying and contradictory experience'. The families felt relieved that the treatment was over yet they experienced strains in their daily life. Family members felt changed and especially the parents needed to focus on themselves in order to recover. Closeness with other people, especially their own family, was important. The previously sick children felt a loss of concern from their parents when treatment had ended, in contrast to siblings who experienced increased attention from their parents. Parents experienced being in uncharted territory and sometimes missed the security of hospital. For professionals it is important to offer the family a structured follow-up to help them in their daily life after the child's treatment is completed. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
childhood cancer, completed treatment, family, lived experience
in
European Journal of Cancer Care
volume
20
issue
2
pages
163 - 169
publisher
John Wiley & Sons
external identifiers
  • wos:000286836600005
  • scopus:79551501190
ISSN
1365-2354
DOI
10.1111/j.1365-2354.2009.01159.x
language
English
LU publication?
yes
id
9f9ef651-cb5e-410d-97e3-f697aae21473 (old id 1876179)
date added to LUP
2011-04-01 12:28:05
date last changed
2017-08-27 03:30:31
@article{9f9ef651-cb5e-410d-97e3-f697aae21473,
  abstract     = {The aim of the study was to illuminate the families' lived experience after completing a child's cancer treatment. The study took place at a University Hospital in southern Sweden. Interviews were carried out with 10 mothers, eight fathers, four patients and two siblings from a total of 10 families. The interviews were analysed with a hermeneutical phenomenological approach. One essential theme emerged from their stories, 'returning to a changed ordinary life - incorporating a trying and contradictory experience'. The families felt relieved that the treatment was over yet they experienced strains in their daily life. Family members felt changed and especially the parents needed to focus on themselves in order to recover. Closeness with other people, especially their own family, was important. The previously sick children felt a loss of concern from their parents when treatment had ended, in contrast to siblings who experienced increased attention from their parents. Parents experienced being in uncharted territory and sometimes missed the security of hospital. For professionals it is important to offer the family a structured follow-up to help them in their daily life after the child's treatment is completed.},
  author       = {Bjork, M. and Nordström, Berit and Wiebe, Thomas and Hallström, Inger},
  issn         = {1365-2354},
  keyword      = {childhood cancer,completed treatment,family,lived experience},
  language     = {eng},
  number       = {2},
  pages        = {163--169},
  publisher    = {John Wiley & Sons},
  series       = {European Journal of Cancer Care},
  title        = {Returning to a changed ordinary life - families' lived experience after completing a child's cancer treatment},
  url          = {http://dx.doi.org/10.1111/j.1365-2354.2009.01159.x},
  volume       = {20},
  year         = {2011},
}