Enablement and empowerment among patients participating in a supported osteoarthritis self-management programme – a prospective observational study
(2022) In BMC Musculoskeletal Disorders 23(1).- Abstract
Background: In Sweden, core treatment for osteoarthritis is offered through a Supported Osteoarthritis Self-Management Programme (SOASP), combining education and exercise to provide patients with coping strategies in self-managing the disease. The aim was to study enablement and empowerment among patients with osteoarthritis in the hip and/or knee participating in a SOASP. An additional aim was to study the relation between the Swedish version of the Patient Enablement Instrument (PEI) and the Swedish Rheumatic Disease Empowerment Scale (SWE-RES-23). Methods: Patients with osteoarthritis participating in a SOASP in primary health care were recruited consecutively from 2016 to 2018. The PEI (score range 0–12) was used to measure... (More)
Background: In Sweden, core treatment for osteoarthritis is offered through a Supported Osteoarthritis Self-Management Programme (SOASP), combining education and exercise to provide patients with coping strategies in self-managing the disease. The aim was to study enablement and empowerment among patients with osteoarthritis in the hip and/or knee participating in a SOASP. An additional aim was to study the relation between the Swedish version of the Patient Enablement Instrument (PEI) and the Swedish Rheumatic Disease Empowerment Scale (SWE-RES-23). Methods: Patients with osteoarthritis participating in a SOASP in primary health care were recruited consecutively from 2016 to 2018. The PEI (score range 0–12) was used to measure enablement and the SWE-RES-23 (score range 1–5) to measure empowerment. The instruments were answered before (SWE-RES-23) and after the SOASP (PEI, SWE-RES-23). A patient partner was incorporated in the study. Descriptive statistics, the Wilcoxon’s signed rank test, effect size (r), and the Spearman’s rho (rs) were used in the analysis. Results: In total, 143 patients were included in the study, 111 (78%) were women (mean age 66, SD 9.3 years). At baseline the reported median value for the SWE-RES-23 (n = 142) was 3.6 (IQR 3.3–4.0). After the educational part of the SOASP, the reported median value was 6 (IQR 3–6.5) for the PEI (n = 109) and 3.8 (IQR 3.6–4.1) for the SWE-RES-23 (n = 108). At three months follow-up (n = 116), the reported median value was 6 (IQR 4–7) for the PEI and 3.9 (IQR 3.6–4.2) for the SWE-RES-23. The SWE-RES-23 score increased between baseline and three months (p ≤ 0.000). The analysis showed a positive correlation between PEI and SWE-RES-23 after the educational part of the SOASP (rs = 0.493, p < 0.00, n = 108) and at follow-up at three months (rs = 0.507, p < 0.00, n = 116). Conclusions: Patients reported moderate to high enablement and empowerment and an increase in empowerment after participating in a SOASP, which might indicate that the SOASP is useful to enable and empower patients at least in the short term. Since our results showed that the PEI and the SWE-RES-23 are only partly related both instruments can be of use in evaluating interventions such as the SOASP. Trial registration: ClinicalTrials.gov. NCT02974036. First registration 28/11/2016, retrospectively registered.
(Less)
- author
- Åkesson, Karin Sturesdotter LU ; Sundén, Anne LU ; Stigmar, Kjerstin LU ; Fagerström, Cecilia ; Pawlikowska, Teresa and Ekvall Hansson, Eva LU
- organization
- publishing date
- 2022-12
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Empowerment, Enablement, Osteoarthritis, Patient education, Patient partner, Physiotherapist, Primary health care
- in
- BMC Musculoskeletal Disorders
- volume
- 23
- issue
- 1
- article number
- 555
- publisher
- BioMed Central (BMC)
- external identifiers
-
- pmid:35676666
- scopus:85131631934
- ISSN
- 1471-2474
- DOI
- 10.1186/s12891-022-05457-9
- language
- English
- LU publication?
- yes
- id
- 1d25d6a8-0af4-4f03-8904-feda5ae4095b
- date added to LUP
- 2022-09-15 13:48:32
- date last changed
- 2024-04-14 16:34:08
@article{1d25d6a8-0af4-4f03-8904-feda5ae4095b, abstract = {{<p>Background: In Sweden, core treatment for osteoarthritis is offered through a Supported Osteoarthritis Self-Management Programme (SOASP), combining education and exercise to provide patients with coping strategies in self-managing the disease. The aim was to study enablement and empowerment among patients with osteoarthritis in the hip and/or knee participating in a SOASP. An additional aim was to study the relation between the Swedish version of the Patient Enablement Instrument (PEI) and the Swedish Rheumatic Disease Empowerment Scale (SWE-RES-23). Methods: Patients with osteoarthritis participating in a SOASP in primary health care were recruited consecutively from 2016 to 2018. The PEI (score range 0–12) was used to measure enablement and the SWE-RES-23 (score range 1–5) to measure empowerment. The instruments were answered before (SWE-RES-23) and after the SOASP (PEI, SWE-RES-23). A patient partner was incorporated in the study. Descriptive statistics, the Wilcoxon’s signed rank test, effect size (r), and the Spearman’s rho (r<sub>s</sub>) were used in the analysis. Results: In total, 143 patients were included in the study, 111 (78%) were women (mean age 66, SD 9.3 years). At baseline the reported median value for the SWE-RES-23 (n = 142) was 3.6 (IQR 3.3–4.0). After the educational part of the SOASP, the reported median value was 6 (IQR 3–6.5) for the PEI (n = 109) and 3.8 (IQR 3.6–4.1) for the SWE-RES-23 (n = 108). At three months follow-up (n = 116), the reported median value was 6 (IQR 4–7) for the PEI and 3.9 (IQR 3.6–4.2) for the SWE-RES-23. The SWE-RES-23 score increased between baseline and three months (p ≤ 0.000). The analysis showed a positive correlation between PEI and SWE-RES-23 after the educational part of the SOASP (r<sub>s</sub> = 0.493, p < 0.00, n = 108) and at follow-up at three months (r<sub>s</sub> = 0.507, p < 0.00, n = 116). Conclusions: Patients reported moderate to high enablement and empowerment and an increase in empowerment after participating in a SOASP, which might indicate that the SOASP is useful to enable and empower patients at least in the short term. Since our results showed that the PEI and the SWE-RES-23 are only partly related both instruments can be of use in evaluating interventions such as the SOASP. Trial registration: ClinicalTrials.gov. NCT02974036. First registration 28/11/2016, retrospectively registered.</p>}}, author = {{Åkesson, Karin Sturesdotter and Sundén, Anne and Stigmar, Kjerstin and Fagerström, Cecilia and Pawlikowska, Teresa and Ekvall Hansson, Eva}}, issn = {{1471-2474}}, keywords = {{Empowerment; Enablement; Osteoarthritis; Patient education; Patient partner; Physiotherapist; Primary health care}}, language = {{eng}}, number = {{1}}, publisher = {{BioMed Central (BMC)}}, series = {{BMC Musculoskeletal Disorders}}, title = {{Enablement and empowerment among patients participating in a supported osteoarthritis self-management programme – a prospective observational study}}, url = {{http://dx.doi.org/10.1186/s12891-022-05457-9}}, doi = {{10.1186/s12891-022-05457-9}}, volume = {{23}}, year = {{2022}}, }