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Quality of Life among Next of Kin of Frail Older People in Nursing Homes : An Interview Study after an Educational Intervention concerning Palliative Care

Ahlström, Gerd LU orcid ; Rosén, Helena LU and Persson, Eva I. LU orcid (2022) In International Journal of Environmental Research and Public Health 19(5).
Abstract

One cornerstone of palliative care is improving the family’s quality of life (QoL). The principles of palliative care have not been sufficiently applied in nursing homes. The aim of this study was to investigate the experiences of QoL of next of kin of frail older persons in nursing homes after an educational intervention concerning palliative care. This qualitative interview study with 37 next of kin used an abductive design with deductive and inductive content analysis. The deductive analysis confirmed the three themes of QoL from the study before the implementation: (1) orientation to the new life-situation, (2) challenges in the relationship, and (3) the significance of the quality of care in the nursing home. The inductive analysis... (More)

One cornerstone of palliative care is improving the family’s quality of life (QoL). The principles of palliative care have not been sufficiently applied in nursing homes. The aim of this study was to investigate the experiences of QoL of next of kin of frail older persons in nursing homes after an educational intervention concerning palliative care. This qualitative interview study with 37 next of kin used an abductive design with deductive and inductive content analysis. The deductive analysis confirmed the three themes of QoL from the study before the implementation: (1) orientation to the new life-situation, (2) challenges in the relationship, and (3) the significance of the quality of care in the nursing home. The inductive analysis resulted in the sub-theme “Unspoken palliative care”. Being the next of kin of an older person living in a nursing home can be distressing despite round-the-clock care, so staff need to apply a more explicitly palliative care perspective. Future research needs to evaluate the influence of meaning-focused coping on next of kin’s QoL and integrate this knowledge in psychosocial interventions. Clinical Trial Database for Clinical Research: KUPA project NCT02708498.

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Please use this url to cite or link to this publication:
author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Abduction, Family members, Follow-up study, Meaning-focused coping, Next of kin, Palliative care, Qualitative method, Quality of life, Relative, Residential housing
in
International Journal of Environmental Research and Public Health
volume
19
issue
5
article number
2648
publisher
MDPI AG
external identifiers
  • scopus:85125074877
  • pmid:35270339
ISSN
1661-7827
DOI
10.3390/ijerph19052648
project
Implementation of Knowledge-Based Palliative Care for Frail Older Persons in Nursing Homes
language
English
LU publication?
yes
additional info
Funding Information: This research was funded by the Swedish Research Council (no. VR 2014-2759), the V?rdal Foundation (no. 2014-0071) and the Medical Faculty, Lund University. The APC fee was funded by the Swedish Research Council (no. VR 2014-2759). Funding Information: Funding: This research was funded by the Swedish Research Council (no. VR 2014-2759), the Vårdal Foundation (no. 2014-0071) and the Medical Faculty, Lund University. The APC fee was funded by the Swedish Research Council (no. VR 2014-2759). Publisher Copyright: © 2022 by the authors. Licensee MDPI, Basel, Switzerland.
id
1fd37c32-16c3-4f59-9953-b8b9511cef78
date added to LUP
2022-03-06 17:55:51
date last changed
2024-06-20 00:53:17
@article{1fd37c32-16c3-4f59-9953-b8b9511cef78,
  abstract     = {{<p>One cornerstone of palliative care is improving the family’s quality of life (QoL). The principles of palliative care have not been sufficiently applied in nursing homes. The aim of this study was to investigate the experiences of QoL of next of kin of frail older persons in nursing homes after an educational intervention concerning palliative care. This qualitative interview study with 37 next of kin used an abductive design with deductive and inductive content analysis. The deductive analysis confirmed the three themes of QoL from the study before the implementation: (1) orientation to the new life-situation, (2) challenges in the relationship, and (3) the significance of the quality of care in the nursing home. The inductive analysis resulted in the sub-theme “Unspoken palliative care”. Being the next of kin of an older person living in a nursing home can be distressing despite round-the-clock care, so staff need to apply a more explicitly palliative care perspective. Future research needs to evaluate the influence of meaning-focused coping on next of kin’s QoL and integrate this knowledge in psychosocial interventions. Clinical Trial Database for Clinical Research: KUPA project NCT02708498.</p>}},
  author       = {{Ahlström, Gerd and Rosén, Helena and Persson, Eva I.}},
  issn         = {{1661-7827}},
  keywords     = {{Abduction; Family members; Follow-up study; Meaning-focused coping; Next of kin; Palliative care; Qualitative method; Quality of life; Relative; Residential housing}},
  language     = {{eng}},
  month        = {{03}},
  number       = {{5}},
  publisher    = {{MDPI AG}},
  series       = {{International Journal of Environmental Research and Public Health}},
  title        = {{Quality of Life among Next of Kin of Frail Older People in Nursing Homes : An Interview Study after an Educational Intervention concerning Palliative Care}},
  url          = {{http://dx.doi.org/10.3390/ijerph19052648}},
  doi          = {{10.3390/ijerph19052648}},
  volume       = {{19}},
  year         = {{2022}},
}