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Hospital-based home care for children with cancer: a qualitative exploration of family members' experiences in Denmark.

Hansson, H; Kjaergaard, Hanne LU ; Schmiegelow, K and Hallström, Inger LU (2012) In European Journal of Cancer Care 21(1). p.59-66
Abstract
Hospital-based home care for children with cancer: a qualitative exploration of family members' experiences in Denmark The study aims to describe the experiences of a hospital-based home care programme in the families of children with cancer. Fourteen parents, representing 10 families, were interviewed about their experiences of a hospital-based home care programme during a 4-month period in 2009 at a university hospital in Denmark. Five children participated in all or part of the interview. The interviews were transcribed verbatim and analysed using qualitative content analysis. The findings indicate that hospital-based home care enabled the families to remain intact throughout the course of treatment, as it decreased the strain on the... (More)
Hospital-based home care for children with cancer: a qualitative exploration of family members' experiences in Denmark The study aims to describe the experiences of a hospital-based home care programme in the families of children with cancer. Fourteen parents, representing 10 families, were interviewed about their experiences of a hospital-based home care programme during a 4-month period in 2009 at a university hospital in Denmark. Five children participated in all or part of the interview. The interviews were transcribed verbatim and analysed using qualitative content analysis. The findings indicate that hospital-based home care enabled the families to remain intact throughout the course of treatment, as it decreased the strain on the family and the ill child, maintained normality and an ordinary everyday life and fulfilled the need for safety and security. According to family members of children with cancer, hospital-based home care support enhanced their quality of life during the child's cancer trajectory. Our study highlights the importance of providing hospital-based home care with consideration for the family members' need for the sense of security achieved by home care by experienced paediatric oncology nurses and regular contact with the doctor. In future studies, interviews with children and siblings could be an important source of information for planning and delivering care suited to the families' perceived needs. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
cancer, Child, hospital home based care
in
European Journal of Cancer Care
volume
21
issue
1
pages
59 - 66
publisher
John Wiley & Sons
external identifiers
  • wos:000298595700008
  • pmid:21848580
  • scopus:84155164693
ISSN
1365-2354
DOI
10.1111/j.1365-2354.2011.01280.x
language
English
LU publication?
yes
id
621a3c1a-6a50-4179-8ee9-6de7be2c92f0 (old id 2150972)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/21848580?dopt=Abstract
date added to LUP
2011-09-04 14:04:57
date last changed
2017-11-19 03:15:36
@article{621a3c1a-6a50-4179-8ee9-6de7be2c92f0,
  abstract     = {Hospital-based home care for children with cancer: a qualitative exploration of family members' experiences in Denmark The study aims to describe the experiences of a hospital-based home care programme in the families of children with cancer. Fourteen parents, representing 10 families, were interviewed about their experiences of a hospital-based home care programme during a 4-month period in 2009 at a university hospital in Denmark. Five children participated in all or part of the interview. The interviews were transcribed verbatim and analysed using qualitative content analysis. The findings indicate that hospital-based home care enabled the families to remain intact throughout the course of treatment, as it decreased the strain on the family and the ill child, maintained normality and an ordinary everyday life and fulfilled the need for safety and security. According to family members of children with cancer, hospital-based home care support enhanced their quality of life during the child's cancer trajectory. Our study highlights the importance of providing hospital-based home care with consideration for the family members' need for the sense of security achieved by home care by experienced paediatric oncology nurses and regular contact with the doctor. In future studies, interviews with children and siblings could be an important source of information for planning and delivering care suited to the families' perceived needs.},
  author       = {Hansson, H and Kjaergaard, Hanne and Schmiegelow, K and Hallström, Inger},
  issn         = {1365-2354},
  keyword      = {cancer,Child,hospital home based care},
  language     = {eng},
  number       = {1},
  pages        = {59--66},
  publisher    = {John Wiley & Sons},
  series       = {European Journal of Cancer Care},
  title        = {Hospital-based home care for children with cancer: a qualitative exploration of family members' experiences in Denmark.},
  url          = {http://dx.doi.org/10.1111/j.1365-2354.2011.01280.x},
  volume       = {21},
  year         = {2012},
}