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Recently accepted for the waiting list for heart or lung transplantation - patients' experiences of information and support.

Ivarsson, Bodil LU ; Ekmehag, Björn LU and Sjöberg, Trygve LU (2011) In Clinical Transplantation 25. p.664-671
Abstract
The aim of the study was to describe the patients' experiences of the information and support they received after being placed on the waiting list for a heart or lung transplant. The design was qualitative, and the critical incident technique was used. Incidents were collected via interviews with 21 patients. A total of 357 important events, both positive and negative, were identified and divided into two main groups: Body and mind and Information and support. The following subgroups emerged: chronic illness affects the patients, attitudes towards the future, impact of information, support from public organizations, and support from the private sphere. The patients showed knowledge of and involvement in the upcoming transplantation, which... (More)
The aim of the study was to describe the patients' experiences of the information and support they received after being placed on the waiting list for a heart or lung transplant. The design was qualitative, and the critical incident technique was used. Incidents were collected via interviews with 21 patients. A total of 357 important events, both positive and negative, were identified and divided into two main groups: Body and mind and Information and support. The following subgroups emerged: chronic illness affects the patients, attitudes towards the future, impact of information, support from public organizations, and support from the private sphere. The patients showed knowledge of and involvement in the upcoming transplantation, which indicates that healthcare professionals managed to convey information and support effectively. By identifying the importance of factors such as body and mind and information and support for patients recently accepted for heart or lung transplantation, healthcare professionals are able to make specific improvements in the information and support that they provide. An important implication is to enhance the knowledge regarding transplant patients in other institutions and improve cooperation. Specific support programs to assist patients who have dependent children should be developed. Society needs to become more enlightened about organ donation and transplantation patients. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Clinical Transplantation
volume
25
pages
664 - 671
publisher
Wiley-Blackwell
external identifiers
  • wos:000297929500014
  • pmid:22032774
  • scopus:83555166065
ISSN
1399-0012
DOI
10.1111/j.1399-0012.2011.01511.x
language
English
LU publication?
yes
id
0db831f5-5849-46d1-bba2-24488f706263 (old id 2200106)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/22032774?dopt=Abstract
date added to LUP
2011-11-02 21:33:36
date last changed
2017-03-19 04:15:58
@article{0db831f5-5849-46d1-bba2-24488f706263,
  abstract     = {The aim of the study was to describe the patients' experiences of the information and support they received after being placed on the waiting list for a heart or lung transplant. The design was qualitative, and the critical incident technique was used. Incidents were collected via interviews with 21 patients. A total of 357 important events, both positive and negative, were identified and divided into two main groups: Body and mind and Information and support. The following subgroups emerged: chronic illness affects the patients, attitudes towards the future, impact of information, support from public organizations, and support from the private sphere. The patients showed knowledge of and involvement in the upcoming transplantation, which indicates that healthcare professionals managed to convey information and support effectively. By identifying the importance of factors such as body and mind and information and support for patients recently accepted for heart or lung transplantation, healthcare professionals are able to make specific improvements in the information and support that they provide. An important implication is to enhance the knowledge regarding transplant patients in other institutions and improve cooperation. Specific support programs to assist patients who have dependent children should be developed. Society needs to become more enlightened about organ donation and transplantation patients.},
  author       = {Ivarsson, Bodil and Ekmehag, Björn and Sjöberg, Trygve},
  issn         = {1399-0012},
  language     = {eng},
  pages        = {664--671},
  publisher    = {Wiley-Blackwell},
  series       = {Clinical Transplantation},
  title        = {Recently accepted for the waiting list for heart or lung transplantation - patients' experiences of information and support.},
  url          = {http://dx.doi.org/10.1111/j.1399-0012.2011.01511.x},
  volume       = {25},
  year         = {2011},
}