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'The web is not enough, it's a base' - an explorative study of what needs a web-based support system for young carers must meet

Elf, Mikael LU ; Skärsäter, Ingela LU and Krevers, Barbro (2011) In Informatics for Health and Social Care 36(4). p.206-219
Abstract
The aim of this study was to gain knowledge about the specific needs that a web-based support system for young carers (YCs) must meet. Twelve young people with experience of caring for and supporting a close friend, partner or relative with mental illness (MI) were interviewed about their life situation, support needs and opinions about a hypothetical web-based support system. The transcribed interviews were analysed using content analysis. The analysed data were organised into three themes relating to support needs, each including a number of sub-themes: knowledge - understanding MI, managing the mentally ill person and self-care; communication - shared experiences, advice and feedback, and befriending; and outside involvement - acute... (More)
The aim of this study was to gain knowledge about the specific needs that a web-based support system for young carers (YCs) must meet. Twelve young people with experience of caring for and supporting a close friend, partner or relative with mental illness (MI) were interviewed about their life situation, support needs and opinions about a hypothetical web-based support system. The transcribed interviews were analysed using content analysis. The analysed data were organised into three themes relating to support needs, each including a number of sub-themes: knowledge - understanding MI, managing the mentally ill person and self-care; communication - shared experiences, advice and feedback, and befriending; and outside involvement - acute relief, structured help and health care commitments. Web-based support for YCs may be a suitable way to meet the need for knowledge and to meet some of the needs for communication. We have outlined a concept of a geographically anchored web support to meet the need for befriending, facilitate connections to health and social care, and increase understanding and interaction between the parties involved. Further research is needed to corroborate the results. (Less)
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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Internet, needs, support, young carers, web
in
Informatics for Health and Social Care
volume
36
issue
4
pages
206 - 219
publisher
Informa Healthcare
external identifiers
  • wos:000296019100003
  • scopus:80054932598
  • pmid:21332304
ISSN
1753-8165
DOI
10.3109/17538157.2011.553298
language
English
LU publication?
yes
additional info
The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: The Vårdal Institute (016540000)
id
ffd04b5f-3cbc-446c-a196-9c67fdee52c7 (old id 2211868)
date added to LUP
2016-04-01 10:58:56
date last changed
2021-08-25 02:57:01
@article{ffd04b5f-3cbc-446c-a196-9c67fdee52c7,
  abstract     = {The aim of this study was to gain knowledge about the specific needs that a web-based support system for young carers (YCs) must meet. Twelve young people with experience of caring for and supporting a close friend, partner or relative with mental illness (MI) were interviewed about their life situation, support needs and opinions about a hypothetical web-based support system. The transcribed interviews were analysed using content analysis. The analysed data were organised into three themes relating to support needs, each including a number of sub-themes: knowledge - understanding MI, managing the mentally ill person and self-care; communication - shared experiences, advice and feedback, and befriending; and outside involvement - acute relief, structured help and health care commitments. Web-based support for YCs may be a suitable way to meet the need for knowledge and to meet some of the needs for communication. We have outlined a concept of a geographically anchored web support to meet the need for befriending, facilitate connections to health and social care, and increase understanding and interaction between the parties involved. Further research is needed to corroborate the results.},
  author       = {Elf, Mikael and Skärsäter, Ingela and Krevers, Barbro},
  issn         = {1753-8165},
  language     = {eng},
  number       = {4},
  pages        = {206--219},
  publisher    = {Informa Healthcare},
  series       = {Informatics for Health and Social Care},
  title        = {'The web is not enough, it's a base' - an explorative study of what needs a web-based support system for young carers must meet},
  url          = {https://lup.lub.lu.se/search/files/2284169/2255845.pdf},
  doi          = {10.3109/17538157.2011.553298},
  volume       = {36},
  year         = {2011},
}