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Empowerment in outpatient care for patients with chronic kidney disease - from the family member's perspective.

Nygårdh, Annette ; Wikby, Kerstin ; Malm, Dan and Ahlström, Gerd LU orcid (2011) In BMC Nursing 10.
Abstract
BACKGROUND:



Family members of persons with pre-dialysis chronic kidney disease may experience feelings of vulnerability and insecurity as the disease follows its course. Against this background, the aim of the present study was to explore empowerment in outpatient care as experienced by these family members.

METHODS:



An inductive approach for qualitative data analysis was chosen. The study sample comprised 12 family members of pre-dialysis patients at an outpatient kidney clinic. Two interviews with each family member were subjected to content analysis to gain an understanding of empowerment from the family members' perspective.

RESULTS:



Having strength to assume... (More)
BACKGROUND:



Family members of persons with pre-dialysis chronic kidney disease may experience feelings of vulnerability and insecurity as the disease follows its course. Against this background, the aim of the present study was to explore empowerment in outpatient care as experienced by these family members.

METHODS:



An inductive approach for qualitative data analysis was chosen. The study sample comprised 12 family members of pre-dialysis patients at an outpatient kidney clinic. Two interviews with each family member were subjected to content analysis to gain an understanding of empowerment from the family members' perspective.

RESULTS:



Having strength to assume the responsibility was the main theme that emerged from the following five sub-themes: Being an involved participant, Having confirming encounters, Trusting in health-care staff, Comprehending through knowledge, and Feeling left out. Four of these five sub-themes were positive. The fifth subtheme illuminated negative experience, indicating the absence of empowerment.

CONCLUSIONS:



Family members' experience of empowerment is dependent on their ability to assume the responsibility for a relative with chronic kidney disease when needed. The findings emphasise the need for a family perspective and the significance of a supportive environment for family members of persons in outpatient care. (Less)
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author
; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
BMC Nursing
volume
10
article number
21
publisher
BioMed Central (BMC)
external identifiers
  • pmid:22035275
  • scopus:80055014847
  • pmid:22035275
ISSN
1472-6955
DOI
10.1186/1472-6955-10-21
language
English
LU publication?
yes
additional info
The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: The Vårdal Institute (016540000)
id
7a6cf9e7-5985-4477-8032-5d89aba3b983 (old id 2221439)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/22035275?dopt=Abstract
date added to LUP
2016-04-01 14:36:04
date last changed
2021-08-18 01:27:08
@article{7a6cf9e7-5985-4477-8032-5d89aba3b983,
  abstract     = {BACKGROUND:<br/><br>
<br/><br>
Family members of persons with pre-dialysis chronic kidney disease may experience feelings of vulnerability and insecurity as the disease follows its course. Against this background, the aim of the present study was to explore empowerment in outpatient care as experienced by these family members.<br/><br>
METHODS:<br/><br>
<br/><br>
An inductive approach for qualitative data analysis was chosen. The study sample comprised 12 family members of pre-dialysis patients at an outpatient kidney clinic. Two interviews with each family member were subjected to content analysis to gain an understanding of empowerment from the family members' perspective.<br/><br>
RESULTS:<br/><br>
<br/><br>
Having strength to assume the responsibility was the main theme that emerged from the following five sub-themes: Being an involved participant, Having confirming encounters, Trusting in health-care staff, Comprehending through knowledge, and Feeling left out. Four of these five sub-themes were positive. The fifth subtheme illuminated negative experience, indicating the absence of empowerment.<br/><br>
CONCLUSIONS:<br/><br>
<br/><br>
Family members' experience of empowerment is dependent on their ability to assume the responsibility for a relative with chronic kidney disease when needed. The findings emphasise the need for a family perspective and the significance of a supportive environment for family members of persons in outpatient care.},
  author       = {Nygårdh, Annette and Wikby, Kerstin and Malm, Dan and Ahlström, Gerd},
  issn         = {1472-6955},
  language     = {eng},
  publisher    = {BioMed Central (BMC)},
  series       = {BMC Nursing},
  title        = {Empowerment in outpatient care for patients with chronic kidney disease - from the family member's perspective.},
  url          = {https://lup.lub.lu.se/search/files/4061627/2343215.pdf},
  doi          = {10.1186/1472-6955-10-21},
  volume       = {10},
  year         = {2011},
}