Parents' experiences of their child being admitted to a paediatric intensive care unit : a qualitative study–like being in another world
(2018) In Scandinavian Journal of Caring Sciences 32(1). p.363-370- Abstract
Background: There is very little research on the parent's experiences of having a child admitted to a paediatric intensive care unit. Identifying and describing ‘such experiences’ could facilitate better parental support from the paediatric intensive care team and help the parents manage a stressful situation. Aims: This study aimed to describe parents' experiences of having their child admitted to a paediatric intensive care unit. Methods: Interviews were conducted with 12 parents whose children had been admitted to a paediatric intensive care unit. A qualitative design was used, and the interviews were analysed based on content analysis. Result: The analysis revealed two categories: ‘being involved’ and ‘being informed’ with seven... (More)
Background: There is very little research on the parent's experiences of having a child admitted to a paediatric intensive care unit. Identifying and describing ‘such experiences’ could facilitate better parental support from the paediatric intensive care team and help the parents manage a stressful situation. Aims: This study aimed to describe parents' experiences of having their child admitted to a paediatric intensive care unit. Methods: Interviews were conducted with 12 parents whose children had been admitted to a paediatric intensive care unit. A qualitative design was used, and the interviews were analysed based on content analysis. Result: The analysis revealed two categories: ‘being involved’ and ‘being informed’ with seven subcategories: ‘caring for the parents’, ‘security and trust’, ‘altering the parental role’, ‘stress and fear’, ‘the importance of knowing’, ‘interaction in the care process’ and ‘being prepared’. An overarching theme emerged: the experience was ‘like being in another world’. The study concludes that a child's admission to a paediatric intensive care unit is a stressful situation, and for the parents to be able to handle the anxiety and stress, they need to be informed of and involved in their child's care. Conclusions: The parents' experience when their child is admitted to a paediatric intensive care unit is fraught with a range of emotion and fear. There are indications that things such as good information, involvement and a positive experience of the transfer to the paediatric ward reduce the stress and anxiety associated with paediatric intensive care admission. The result of this study could be used as a basis for a post-paediatric intensive care follow-up service for the children and their families.
(Less)
- author
- Dahav, Pia and Sjöström-Strand, Annica LU
- organization
- publishing date
- 2018-03-01
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- content analysis, family-centred care, paediatric intensive care, parents' experiences, qualitative study
- in
- Scandinavian Journal of Caring Sciences
- volume
- 32
- issue
- 1
- pages
- 8 pages
- publisher
- Wiley-Blackwell
- external identifiers
-
- pmid:28833379
- scopus:85042564453
- ISSN
- 0283-9318
- DOI
- 10.1111/scs.12470
- project
- LUC3 - Lund University Child Centered Care
- Hospital-based Home Care for children with long-term illness
- language
- English
- LU publication?
- yes
- id
- 25879923-2d4f-419e-8b3f-9d08e6db8e91
- date added to LUP
- 2018-03-17 19:03:13
- date last changed
- 2024-04-15 04:59:58
@article{25879923-2d4f-419e-8b3f-9d08e6db8e91, abstract = {{<p>Background: There is very little research on the parent's experiences of having a child admitted to a paediatric intensive care unit. Identifying and describing ‘such experiences’ could facilitate better parental support from the paediatric intensive care team and help the parents manage a stressful situation. Aims: This study aimed to describe parents' experiences of having their child admitted to a paediatric intensive care unit. Methods: Interviews were conducted with 12 parents whose children had been admitted to a paediatric intensive care unit. A qualitative design was used, and the interviews were analysed based on content analysis. Result: The analysis revealed two categories: ‘being involved’ and ‘being informed’ with seven subcategories: ‘caring for the parents’, ‘security and trust’, ‘altering the parental role’, ‘stress and fear’, ‘the importance of knowing’, ‘interaction in the care process’ and ‘being prepared’. An overarching theme emerged: the experience was ‘like being in another world’. The study concludes that a child's admission to a paediatric intensive care unit is a stressful situation, and for the parents to be able to handle the anxiety and stress, they need to be informed of and involved in their child's care. Conclusions: The parents' experience when their child is admitted to a paediatric intensive care unit is fraught with a range of emotion and fear. There are indications that things such as good information, involvement and a positive experience of the transfer to the paediatric ward reduce the stress and anxiety associated with paediatric intensive care admission. The result of this study could be used as a basis for a post-paediatric intensive care follow-up service for the children and their families.</p>}}, author = {{Dahav, Pia and Sjöström-Strand, Annica}}, issn = {{0283-9318}}, keywords = {{content analysis; family-centred care; paediatric intensive care; parents' experiences; qualitative study}}, language = {{eng}}, month = {{03}}, number = {{1}}, pages = {{363--370}}, publisher = {{Wiley-Blackwell}}, series = {{Scandinavian Journal of Caring Sciences}}, title = {{Parents' experiences of their child being admitted to a paediatric intensive care unit : a qualitative study–like being in another world}}, url = {{http://dx.doi.org/10.1111/scs.12470}}, doi = {{10.1111/scs.12470}}, volume = {{32}}, year = {{2018}}, }