Advanced

Parents' experiences of their child being admitted to a paediatric intensive care unit : a qualitative study–like being in another world

Dahav, Pia and Sjöström-Strand, Annica LU (2018) In Scandinavian Journal of Caring Sciences 32(1). p.363-370
Abstract

Background: There is very little research on the parent's experiences of having a child admitted to a paediatric intensive care unit. Identifying and describing ‘such experiences’ could facilitate better parental support from the paediatric intensive care team and help the parents manage a stressful situation. Aims: This study aimed to describe parents' experiences of having their child admitted to a paediatric intensive care unit. Methods: Interviews were conducted with 12 parents whose children had been admitted to a paediatric intensive care unit. A qualitative design was used, and the interviews were analysed based on content analysis. Result: The analysis revealed two categories: ‘being involved’ and ‘being informed’ with seven... (More)

Background: There is very little research on the parent's experiences of having a child admitted to a paediatric intensive care unit. Identifying and describing ‘such experiences’ could facilitate better parental support from the paediatric intensive care team and help the parents manage a stressful situation. Aims: This study aimed to describe parents' experiences of having their child admitted to a paediatric intensive care unit. Methods: Interviews were conducted with 12 parents whose children had been admitted to a paediatric intensive care unit. A qualitative design was used, and the interviews were analysed based on content analysis. Result: The analysis revealed two categories: ‘being involved’ and ‘being informed’ with seven subcategories: ‘caring for the parents’, ‘security and trust’, ‘altering the parental role’, ‘stress and fear’, ‘the importance of knowing’, ‘interaction in the care process’ and ‘being prepared’. An overarching theme emerged: the experience was ‘like being in another world’. The study concludes that a child's admission to a paediatric intensive care unit is a stressful situation, and for the parents to be able to handle the anxiety and stress, they need to be informed of and involved in their child's care. Conclusions: The parents' experience when their child is admitted to a paediatric intensive care unit is fraught with a range of emotion and fear. There are indications that things such as good information, involvement and a positive experience of the transfer to the paediatric ward reduce the stress and anxiety associated with paediatric intensive care admission. The result of this study could be used as a basis for a post-paediatric intensive care follow-up service for the children and their families.

(Less)
Please use this url to cite or link to this publication:
author
and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
content analysis, family-centred care, paediatric intensive care, parents' experiences, qualitative study
in
Scandinavian Journal of Caring Sciences
volume
32
issue
1
pages
8 pages
publisher
Wiley-Blackwell
external identifiers
  • pmid:28833379
  • scopus:85042564453
ISSN
0283-9318
DOI
10.1111/scs.12470
project
LUC3 - Lund University Child Centered Care
Hospital-based Home Care for children with long-term illness
language
English
LU publication?
yes
id
25879923-2d4f-419e-8b3f-9d08e6db8e91
date added to LUP
2018-03-17 19:03:13
date last changed
2021-01-19 01:14:47
@article{25879923-2d4f-419e-8b3f-9d08e6db8e91,
  abstract     = {<p>Background: There is very little research on the parent's experiences of having a child admitted to a paediatric intensive care unit. Identifying and describing ‘such experiences’ could facilitate better parental support from the paediatric intensive care team and help the parents manage a stressful situation. Aims: This study aimed to describe parents' experiences of having their child admitted to a paediatric intensive care unit. Methods: Interviews were conducted with 12 parents whose children had been admitted to a paediatric intensive care unit. A qualitative design was used, and the interviews were analysed based on content analysis. Result: The analysis revealed two categories: ‘being involved’ and ‘being informed’ with seven subcategories: ‘caring for the parents’, ‘security and trust’, ‘altering the parental role’, ‘stress and fear’, ‘the importance of knowing’, ‘interaction in the care process’ and ‘being prepared’. An overarching theme emerged: the experience was ‘like being in another world’. The study concludes that a child's admission to a paediatric intensive care unit is a stressful situation, and for the parents to be able to handle the anxiety and stress, they need to be informed of and involved in their child's care. Conclusions: The parents' experience when their child is admitted to a paediatric intensive care unit is fraught with a range of emotion and fear. There are indications that things such as good information, involvement and a positive experience of the transfer to the paediatric ward reduce the stress and anxiety associated with paediatric intensive care admission. The result of this study could be used as a basis for a post-paediatric intensive care follow-up service for the children and their families.</p>},
  author       = {Dahav, Pia and Sjöström-Strand, Annica},
  issn         = {0283-9318},
  language     = {eng},
  month        = {03},
  number       = {1},
  pages        = {363--370},
  publisher    = {Wiley-Blackwell},
  series       = {Scandinavian Journal of Caring Sciences},
  title        = {Parents' experiences of their child being admitted to a paediatric intensive care unit : a qualitative study–like being in another world},
  url          = {http://dx.doi.org/10.1111/scs.12470},
  doi          = {10.1111/scs.12470},
  volume       = {32},
  year         = {2018},
}