The Swedish version of the Haemophilia Activity List.
(2011) In Haemophilia 17. p.662-668- Abstract
- Summary. There has been increasing interest in the patient's perspective on outcome of treatment. The Haemophilia Activity List (HAL) has been developed as a disease-specific questionnaire for haemophilia patients and is a validated self-report measure of function developed according to WHO's International Classification of Functioning, Disability and Health. To validate HAL in Sweden. The Dutch and English versions of HAL were translated into Swedish using 'the forward-backward translation' method and merged into a final Swedish version. Validation was performed against the Swedish version of the questionnaires Arthritis Impact Measurement 2 (AIMS 2) and Impact on Participation and Autonomy (IPA). Two hundred and twenty-five patients with... (More)
- Summary. There has been increasing interest in the patient's perspective on outcome of treatment. The Haemophilia Activity List (HAL) has been developed as a disease-specific questionnaire for haemophilia patients and is a validated self-report measure of function developed according to WHO's International Classification of Functioning, Disability and Health. To validate HAL in Sweden. The Dutch and English versions of HAL were translated into Swedish using 'the forward-backward translation' method and merged into a final Swedish version. Validation was performed against the Swedish version of the questionnaires Arthritis Impact Measurement 2 (AIMS 2) and Impact on Participation and Autonomy (IPA). Two hundred and twenty-five patients with severe and moderate forms of haemophilia A and B from three centres were invited to participate in the study. Spearman's rank correlation test was used for validation, and internal consistency of the HAL was calculated with Cronbach's alpha. Eighty-four patients (39%) (18-80 years old) filled out the questionnaires. The internal consistency of the Swedish version of HAL was high, with Cronbach's alpha being 0.98-0.71. Function of the legs had the highest consistency and transportation had the lowest. The correlation was excellent between the HAL sum score and AIMS 2 physical (r = 0.84, P < 0.01), IPA autonomy indoors (r = 0.83, P < 0.01) and autonomy outdoors (r = 0.89, P < 0.01). The Swedish version of HAL has both internal consistency and convergent validity and may complement other functional tests to gather information on the patient's self-perceived ability. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/1832169
- author
- Brodin, Elna ; Baghaei, F ; Elfvinger, P ; Lindvall, Karin LU and Sunnerhagen, K S
- organization
- publishing date
- 2011
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Haemophilia
- volume
- 17
- pages
- 662 - 668
- publisher
- Wiley-Blackwell
- external identifiers
-
- wos:000292154700014
- pmid:21299749
- scopus:79959495338
- pmid:21299749
- ISSN
- 1351-8216
- DOI
- 10.1111/j.1365-2516.2010.02474.x
- language
- English
- LU publication?
- yes
- id
- 278f69c3-bccf-4ac3-90c4-b60351f70db6 (old id 1832169)
- alternative location
- http://www.ncbi.nlm.nih.gov/pubmed/21299749?dopt=Abstract
- date added to LUP
- 2016-04-04 07:14:39
- date last changed
- 2022-08-23 02:33:15
@article{278f69c3-bccf-4ac3-90c4-b60351f70db6,
abstract = {{Summary. There has been increasing interest in the patient's perspective on outcome of treatment. The Haemophilia Activity List (HAL) has been developed as a disease-specific questionnaire for haemophilia patients and is a validated self-report measure of function developed according to WHO's International Classification of Functioning, Disability and Health. To validate HAL in Sweden. The Dutch and English versions of HAL were translated into Swedish using 'the forward-backward translation' method and merged into a final Swedish version. Validation was performed against the Swedish version of the questionnaires Arthritis Impact Measurement 2 (AIMS 2) and Impact on Participation and Autonomy (IPA). Two hundred and twenty-five patients with severe and moderate forms of haemophilia A and B from three centres were invited to participate in the study. Spearman's rank correlation test was used for validation, and internal consistency of the HAL was calculated with Cronbach's alpha. Eighty-four patients (39%) (18-80 years old) filled out the questionnaires. The internal consistency of the Swedish version of HAL was high, with Cronbach's alpha being 0.98-0.71. Function of the legs had the highest consistency and transportation had the lowest. The correlation was excellent between the HAL sum score and AIMS 2 physical (r = 0.84, P < 0.01), IPA autonomy indoors (r = 0.83, P < 0.01) and autonomy outdoors (r = 0.89, P < 0.01). The Swedish version of HAL has both internal consistency and convergent validity and may complement other functional tests to gather information on the patient's self-perceived ability.}},
author = {{Brodin, Elna and Baghaei, F and Elfvinger, P and Lindvall, Karin and Sunnerhagen, K S}},
issn = {{1351-8216}},
language = {{eng}},
pages = {{662--668}},
publisher = {{Wiley-Blackwell}},
series = {{Haemophilia}},
title = {{The Swedish version of the Haemophilia Activity List.}},
url = {{http://dx.doi.org/10.1111/j.1365-2516.2010.02474.x}},
doi = {{10.1111/j.1365-2516.2010.02474.x}},
volume = {{17}},
year = {{2011}},
}