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Neuro-aware journeys : the lived experiences of autistic adults and caregivers in Swedish public transport

Sarraf, Mohammad ; Girdler, Sonya LU ; Hayden-Evans, Maya ; Bölte, Sven and Hedvall, Per-Olof LU orcid (2026) In Transportation Research Interdisciplinary Perspectives 36.
Abstract

Urban mobility is a key mechanism through which the autistic community asserts their right to the city , more broadly representing the neurodiversity movement’s struggle for spatial justice. While public transport plays a critical role in facilitating mobility for the autistic community, limited research has examined their perspectives on how physical and social environmental factors shape their experiences and functioning in urban environments. This study aimed to examine the lived experience of autistic individuals and their caregivers in navigating public transport through the lens of the International Classification of Functioning, Disability and Health (ICF) . Employing an abductive approach, combining both inductive and deductive... (More)

Urban mobility is a key mechanism through which the autistic community asserts their right to the city , more broadly representing the neurodiversity movement’s struggle for spatial justice. While public transport plays a critical role in facilitating mobility for the autistic community, limited research has examined their perspectives on how physical and social environmental factors shape their experiences and functioning in urban environments. This study aimed to examine the lived experience of autistic individuals and their caregivers in navigating public transport through the lens of the International Classification of Functioning, Disability and Health (ICF) . Employing an abductive approach, combining both inductive and deductive coding (guided by the ICF), analysis of semi-structured interviews conducted with 17 participants in Sweden identified four key themes: sensory overload, unpredictability, socio-spatial constraints, and inadequate support policies and public awareness. Findings underscore the role of environmental factors in shaping autistic individuals’ experience of accessing public transport. Importantly, findings highlight that despite growing recognition of the unique challenges faced by the autistic community in accessing public transport, this awareness is yet to translate into meaningful action and public policy. Importantly, there is a need for policies that move beyond physical accessibility, incorporating neuro-aware strategies, enhancing both the cognitive and sensory accessibility of public transport.

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Please use this url to cite or link to this publication:
author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Autism, Mobility and public transport, Neuro-aware environments, Neurodiversity, WHO’s International Classification of Functioning, Disability and Health (ICF)
in
Transportation Research Interdisciplinary Perspectives
volume
36
article number
101910
pages
15 pages
publisher
Elsevier
external identifiers
  • scopus:105031385277
ISSN
2590-1982
DOI
10.1016/j.trip.2026.101910
language
English
LU publication?
yes
id
2957dc17-482c-4f03-97de-fcaead08f287
date added to LUP
2026-03-08 19:26:46
date last changed
2026-03-31 10:53:55
@article{2957dc17-482c-4f03-97de-fcaead08f287,
  abstract     = {{<p>Urban mobility is a key mechanism through which the autistic community asserts their right to the city , more broadly representing the neurodiversity movement’s struggle for spatial justice. While public transport plays a critical role in facilitating mobility for the autistic community, limited research has examined their perspectives on how physical and social environmental factors shape their experiences and functioning in urban environments. This study aimed to examine the lived experience of autistic individuals and their caregivers in navigating public transport through the lens of the International Classification of Functioning, Disability and Health (ICF) . Employing an abductive approach, combining both inductive and deductive coding (guided by the ICF), analysis of semi-structured interviews conducted with 17 participants in Sweden identified four key themes: sensory overload, unpredictability, socio-spatial constraints, and inadequate support policies and public awareness. Findings underscore the role of environmental factors in shaping autistic individuals’ experience of accessing public transport. Importantly, findings highlight that despite growing recognition of the unique challenges faced by the autistic community in accessing public transport, this awareness is yet to translate into meaningful action and public policy. Importantly, there is a need for policies that move beyond physical accessibility, incorporating neuro-aware strategies, enhancing both the cognitive and sensory accessibility of public transport.</p>}},
  author       = {{Sarraf, Mohammad and Girdler, Sonya and Hayden-Evans, Maya and Bölte, Sven and Hedvall, Per-Olof}},
  issn         = {{2590-1982}},
  keywords     = {{Autism; Mobility and public transport; Neuro-aware environments; Neurodiversity; WHO’s International Classification of Functioning, Disability and Health (ICF)}},
  language     = {{eng}},
  publisher    = {{Elsevier}},
  series       = {{Transportation Research Interdisciplinary Perspectives}},
  title        = {{Neuro-aware journeys : the lived experiences of autistic adults and caregivers in Swedish public transport}},
  url          = {{http://dx.doi.org/10.1016/j.trip.2026.101910}},
  doi          = {{10.1016/j.trip.2026.101910}},
  volume       = {{36}},
  year         = {{2026}},
}