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Withdrawal from Biobank Research: Considerations and the Way Forward.

Hug, Kristina LU ; Hermerén, Göran LU and Johansson, Mats LU (2012) In Stem Cell Reviews
Abstract
The right to withdraw one's consent after having agreed to participate in research is a fundamental principle in contemporary research ethics. However, it has been questioned whether this right should apply to research conducted on donated biological samples, including stem cells and tissues from which stem cells can be derived. In this article we present some of the concerns that have been expressed related to this question. We then identify five areas that one needs to pay greater attention to before any conclusions can be drawn as to whether donors should be given the right to withdraw, or under what circumstances withdrawal should be allowed.
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Stem Cell Reviews
publisher
Humana Press
external identifiers
  • wos:000311510600004
  • pmid:22836808
  • scopus:84870366593
ISSN
1558-6804
DOI
10.1007/s12015-012-9399-y
language
English
LU publication?
yes
id
5a37ab02-8c41-4554-986b-f9bef22b759d (old id 2966495)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/22836808?dopt=Abstract
date added to LUP
2012-08-10 09:28:42
date last changed
2017-01-15 04:21:46
@article{5a37ab02-8c41-4554-986b-f9bef22b759d,
  abstract     = {The right to withdraw one's consent after having agreed to participate in research is a fundamental principle in contemporary research ethics. However, it has been questioned whether this right should apply to research conducted on donated biological samples, including stem cells and tissues from which stem cells can be derived. In this article we present some of the concerns that have been expressed related to this question. We then identify five areas that one needs to pay greater attention to before any conclusions can be drawn as to whether donors should be given the right to withdraw, or under what circumstances withdrawal should be allowed.},
  author       = {Hug, Kristina and Hermerén, Göran and Johansson, Mats},
  issn         = {1558-6804},
  language     = {eng},
  month        = {07},
  publisher    = {Humana Press},
  series       = {Stem Cell Reviews},
  title        = {Withdrawal from Biobank Research: Considerations and the Way Forward.},
  url          = {http://dx.doi.org/10.1007/s12015-012-9399-y},
  year         = {2012},
}