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Social belonging as the main concern for achieving life satisfaction when adapting to parkinson’s disease

Rosengren, Lina LU ; Forsberg, Anna LU ; Brogårdh, Christina LU and Lexell, Jan LU (2021) In International Journal of Environmental Research and Public Health 18(16).
Abstract

Parkinson’s disease (PD) is a complex, progressive neurological condition that impacts daily life and reduces life satisfaction (LS). To achieve and maintain high LS, persons with PD (PwPD) must go through a process of change to adapt to their new life situation. However, our knowledge about this process is very limited. The aim of this study was to investigate the process of change, and the main concern in this process, in PwPD. To study the transitional experience of PwPD, an inductive qualitative approach, using Grounded Theory (GT), was employed. Thirteen participants (9 women, 3 men and 1 non-binary), with a mean age of 54 years (range from 47–62 years), participated in in-depth interviews. Data showed that social belonging is the... (More)

Parkinson’s disease (PD) is a complex, progressive neurological condition that impacts daily life and reduces life satisfaction (LS). To achieve and maintain high LS, persons with PD (PwPD) must go through a process of change to adapt to their new life situation. However, our knowledge about this process is very limited. The aim of this study was to investigate the process of change, and the main concern in this process, in PwPD. To study the transitional experience of PwPD, an inductive qualitative approach, using Grounded Theory (GT), was employed. Thirteen participants (9 women, 3 men and 1 non-binary), with a mean age of 54 years (range from 47–62 years), participated in in-depth interviews. Data showed that social belonging is the main concern in the process of change for PwPD. In this process of change, they use strategies to comprehend, accept, adapt, and balance in their strive for social belonging, which in turn can enhance LS. Health care professionals can use this model with an interdisciplinary approach to support PwPD through a successful process of change to achieve social belonging, and thereby achieving and maintaining LS.

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author
; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Adaptation, Parkinson disease, Psychological, Qualitative research, Quality of life, Self-management, Sense of coherence
in
International Journal of Environmental Research and Public Health
volume
18
issue
16
article number
8653
publisher
MDPI AG
external identifiers
  • pmid:34444401
  • scopus:85112522831
ISSN
1661-7827
DOI
10.3390/ijerph18168653
language
English
LU publication?
yes
id
2d3a5e01-2b5b-4f39-b5ee-3abd00067924
date added to LUP
2021-09-20 14:46:14
date last changed
2024-06-16 19:09:09
@article{2d3a5e01-2b5b-4f39-b5ee-3abd00067924,
  abstract     = {{<p>Parkinson’s disease (PD) is a complex, progressive neurological condition that impacts daily life and reduces life satisfaction (LS). To achieve and maintain high LS, persons with PD (PwPD) must go through a process of change to adapt to their new life situation. However, our knowledge about this process is very limited. The aim of this study was to investigate the process of change, and the main concern in this process, in PwPD. To study the transitional experience of PwPD, an inductive qualitative approach, using Grounded Theory (GT), was employed. Thirteen participants (9 women, 3 men and 1 non-binary), with a mean age of 54 years (range from 47–62 years), participated in in-depth interviews. Data showed that social belonging is the main concern in the process of change for PwPD. In this process of change, they use strategies to comprehend, accept, adapt, and balance in their strive for social belonging, which in turn can enhance LS. Health care professionals can use this model with an interdisciplinary approach to support PwPD through a successful process of change to achieve social belonging, and thereby achieving and maintaining LS.</p>}},
  author       = {{Rosengren, Lina and Forsberg, Anna and Brogårdh, Christina and Lexell, Jan}},
  issn         = {{1661-7827}},
  keywords     = {{Adaptation; Parkinson disease; Psychological; Qualitative research; Quality of life; Self-management; Sense of coherence}},
  language     = {{eng}},
  month        = {{08}},
  number       = {{16}},
  publisher    = {{MDPI AG}},
  series       = {{International Journal of Environmental Research and Public Health}},
  title        = {{Social belonging as the main concern for achieving life satisfaction when adapting to parkinson’s disease}},
  url          = {{http://dx.doi.org/10.3390/ijerph18168653}},
  doi          = {{10.3390/ijerph18168653}},
  volume       = {{18}},
  year         = {{2021}},
}