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Long-term experiences after oesophagectomy/gastrectomy for cancer-A focus group study.

Malmström, Marlene LU ; Ivarsson, Bodil; Johansson, Jan LU and Klefsgård, Rosemarie (2012) In International Journal of Nursing Studies
Abstract
BACKGROUND: After surgery for oesophageal or gastric cancer, patients suffer from a variety of problems that affect their physical and mental health. Most previous studies on quality of life after this type of surgery are based on quantitative methods, and no studies to date have focused on the patient's subjective experiences of their quality of life from a long-term perspective. OBJECTIVE: To illuminate patients' experiences of their quality of life, and how they handle their new life situation, from a long-term perspective, after oesophagectomy or gastrectomy for cancer. METHOD: This study was carried out in accordance with a descriptive explorative design focusing on the patients' quality of life after surgery for oesophageal/gastric... (More)
BACKGROUND: After surgery for oesophageal or gastric cancer, patients suffer from a variety of problems that affect their physical and mental health. Most previous studies on quality of life after this type of surgery are based on quantitative methods, and no studies to date have focused on the patient's subjective experiences of their quality of life from a long-term perspective. OBJECTIVE: To illuminate patients' experiences of their quality of life, and how they handle their new life situation, from a long-term perspective, after oesophagectomy or gastrectomy for cancer. METHOD: This study was carried out in accordance with a descriptive explorative design focusing on the patients' quality of life after surgery for oesophageal/gastric cancer. Data collection was carried out using semi-structured focus group interviews. A total of 17 participants divided into 4 focus groups were included (2-5 years after elective surgery) in the study. Data was analysed with qualitative content analysis. RESULTS: The results show that the patients' lives are severely hampered by adverse symptoms long time after surgery. The patients experienced the recovery period as a struggle and the theme "When moving on becomes a struggle" was shown to capture the patients' experiences. The main problems that acts as barriers in the patients' new life situation are those connected with nutrition and diarrhea who was shown not only affecting the patients from a physical perspective but also on a social and emotional level. The feeling of losing control of life was shown as a prominent problem and resulted in anxiety and fear about the future. CONCLUSION: This study shows that the patients' quality of life is heavily influenced by the remaining symptoms for a long time after surgery. However the patients ability to handle their new life situation does not only depend on the remaining symptom but on their ability to take control of the new life situation and learn to live life whit the symptoms instead of letting the symptoms limit their life. The complex new life situation that the patients meet after surgery motivates the needs of a supportive care programme, focusing on the patients' physical, mental and social needs. (Less)
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author
organization
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Contribution to journal
publication status
published
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International Journal of Nursing Studies
publisher
Elsevier
external identifiers
  • wos:000313310600006
  • pmid:22959588
  • scopus:84877299038
ISSN
1873-491X
DOI
10.1016/j.ijnurstu.2012.08.011
language
English
LU publication?
yes
id
28cf0571-2051-4d9e-9367-278df40d3728 (old id 3124128)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/22959588?dopt=Abstract
date added to LUP
2012-10-04 16:31:00
date last changed
2017-07-23 04:53:44
@article{28cf0571-2051-4d9e-9367-278df40d3728,
  abstract     = {BACKGROUND: After surgery for oesophageal or gastric cancer, patients suffer from a variety of problems that affect their physical and mental health. Most previous studies on quality of life after this type of surgery are based on quantitative methods, and no studies to date have focused on the patient's subjective experiences of their quality of life from a long-term perspective. OBJECTIVE: To illuminate patients' experiences of their quality of life, and how they handle their new life situation, from a long-term perspective, after oesophagectomy or gastrectomy for cancer. METHOD: This study was carried out in accordance with a descriptive explorative design focusing on the patients' quality of life after surgery for oesophageal/gastric cancer. Data collection was carried out using semi-structured focus group interviews. A total of 17 participants divided into 4 focus groups were included (2-5 years after elective surgery) in the study. Data was analysed with qualitative content analysis. RESULTS: The results show that the patients' lives are severely hampered by adverse symptoms long time after surgery. The patients experienced the recovery period as a struggle and the theme "When moving on becomes a struggle" was shown to capture the patients' experiences. The main problems that acts as barriers in the patients' new life situation are those connected with nutrition and diarrhea who was shown not only affecting the patients from a physical perspective but also on a social and emotional level. The feeling of losing control of life was shown as a prominent problem and resulted in anxiety and fear about the future. CONCLUSION: This study shows that the patients' quality of life is heavily influenced by the remaining symptoms for a long time after surgery. However the patients ability to handle their new life situation does not only depend on the remaining symptom but on their ability to take control of the new life situation and learn to live life whit the symptoms instead of letting the symptoms limit their life. The complex new life situation that the patients meet after surgery motivates the needs of a supportive care programme, focusing on the patients' physical, mental and social needs.},
  author       = {Malmström, Marlene and Ivarsson, Bodil and Johansson, Jan and Klefsgård, Rosemarie},
  issn         = {1873-491X},
  language     = {eng},
  month        = {09},
  publisher    = {Elsevier},
  series       = {International Journal of Nursing Studies},
  title        = {Long-term experiences after oesophagectomy/gastrectomy for cancer-A focus group study.},
  url          = {http://dx.doi.org/10.1016/j.ijnurstu.2012.08.011},
  year         = {2012},
}