CPUP – från reaktiv till preventiv behandling av cerebral pares : Framgångsrik utveckling med CPUP - kombinerat uppföljningsprogram och kvalitetsregister
(2023) In Lakartidningen 120(46-47).- Abstract
CPUP is a combined follow-up program and national quality registry for cerebral palsy (CP). Since its inception in southern Sweden in 1994, CPUP has expanded geographically to cover all of Sweden, and similar programs are used in several northern European countries. Over 95% of all children with CP in Sweden, and a growing proportion of adults, are followed according to CPUP. The content of CPUP has been developed to involve most professions working with CP. CPUP has led to significant medical improvements. As an example, the percentage of individuals developing hip dislocation has decreased from 10% to 0.5%. The program's strengths include its interdisciplinary collaboration, user involvement, and the ability to inform and improve the... (More)
CPUP is a combined follow-up program and national quality registry for cerebral palsy (CP). Since its inception in southern Sweden in 1994, CPUP has expanded geographically to cover all of Sweden, and similar programs are used in several northern European countries. Over 95% of all children with CP in Sweden, and a growing proportion of adults, are followed according to CPUP. The content of CPUP has been developed to involve most professions working with CP. CPUP has led to significant medical improvements. As an example, the percentage of individuals developing hip dislocation has decreased from 10% to 0.5%. The program's strengths include its interdisciplinary collaboration, user involvement, and the ability to inform and improve the quality of care systematically. Nevertheless, challenges include the need for ongoing funding and support. CPUP's success exemplifies how national quality registers can integrate into healthcare, enabling a shift from reactive to proactive care.
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- author
- Hägglund, Gunnar LU ; Alriksson-Schmidt, Ann LU ; Himmelmann, Kate ; Rodby Bousquet, Elisabet LU and Åstrand, Per
- organization
- alternative title
- Significant medical improvements with CPUP - a combined follow-up program and national quality registry for cerebral palsy
- publishing date
- 2023-11-15
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Child, Adult, Humans, Follow-Up Studies, Cerebral Palsy/epidemiology, Hip Dislocation, Registries, Sweden/epidemiology
- in
- Lakartidningen
- volume
- 120
- issue
- 46-47
- article number
- 23136
- publisher
- Swedish Medical Association
- external identifiers
-
- pmid:37965934
- ISSN
- 0023-7205
- language
- Swedish
- LU publication?
- yes
- id
- 327540ca-5743-4752-989a-26059ce7f44a
- alternative location
- https://lakartidningen.se/klinik-och-vetenskap-1/artiklar-1/vardutveckling-och-organisation/2023/11/cpup-fran-reaktiv-till-preventiv-behandling-av-cerebral-pares/
- date added to LUP
- 2023-11-20 09:50:04
- date last changed
- 2023-11-20 11:22:20
@article{327540ca-5743-4752-989a-26059ce7f44a,
abstract = {{<p>CPUP is a combined follow-up program and national quality registry for cerebral palsy (CP). Since its inception in southern Sweden in 1994, CPUP has expanded geographically to cover all of Sweden, and similar programs are used in several northern European countries. Over 95% of all children with CP in Sweden, and a growing proportion of adults, are followed according to CPUP. The content of CPUP has been developed to involve most professions working with CP. CPUP has led to significant medical improvements. As an example, the percentage of individuals developing hip dislocation has decreased from 10% to 0.5%. The program's strengths include its interdisciplinary collaboration, user involvement, and the ability to inform and improve the quality of care systematically. Nevertheless, challenges include the need for ongoing funding and support. CPUP's success exemplifies how national quality registers can integrate into healthcare, enabling a shift from reactive to proactive care.</p>}},
author = {{Hägglund, Gunnar and Alriksson-Schmidt, Ann and Himmelmann, Kate and Rodby Bousquet, Elisabet and Åstrand, Per}},
issn = {{0023-7205}},
keywords = {{Child; Adult; Humans; Follow-Up Studies; Cerebral Palsy/epidemiology; Hip Dislocation; Registries; Sweden/epidemiology}},
language = {{swe}},
month = {{11}},
number = {{46-47}},
publisher = {{Swedish Medical Association}},
series = {{Lakartidningen}},
title = {{CPUP – från reaktiv till preventiv behandling av cerebral pares : Framgångsrik utveckling med CPUP - kombinerat uppföljningsprogram och kvalitetsregister}},
url = {{https://lakartidningen.se/klinik-och-vetenskap-1/artiklar-1/vardutveckling-och-organisation/2023/11/cpup-fran-reaktiv-till-preventiv-behandling-av-cerebral-pares/}},
volume = {{120}},
year = {{2023}},
}