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"The Logic of Care" - Parents' perceptions of the educational process when a child is newly diagnosed with type 1 diabetes

Jönsson, Lisbeth LU ; Hallström, Inger LU and Lundqvist, Anita LU (2012) In BMC Pediatrics 12.
Abstract
Background: The number of new cases of type 1 diabetes mellitus (T1DM) has increased substantially in recent years and it is now one of the most common long-term endocrine disorders in childhood. In Sweden the child and family are hospitalised in accordance with the national guidelines for one to two weeks at diagnosis. The purpose of this study was to describe parents' perceptions of the educational process when their child is newly diagnosed with T1DM. Methods: Qualitative interviews were performed in the south western part of Sweden with ten mothers and eight fathers of children, diagnosed with T1DM, at three to six months after they had received the diagnosis. The interviews were analysed using deductive content analysis and Mol's... (More)
Background: The number of new cases of type 1 diabetes mellitus (T1DM) has increased substantially in recent years and it is now one of the most common long-term endocrine disorders in childhood. In Sweden the child and family are hospitalised in accordance with the national guidelines for one to two weeks at diagnosis. The purpose of this study was to describe parents' perceptions of the educational process when their child is newly diagnosed with T1DM. Methods: Qualitative interviews were performed in the south western part of Sweden with ten mothers and eight fathers of children, diagnosed with T1DM, at three to six months after they had received the diagnosis. The interviews were analysed using deductive content analysis and Mol's philosophical theory. Results: The results show that almost all parents had experienced the educational process as being satisfactory. However, most parents felt that the teaching needed to be adapted to the individual families and to help them to learn to live with diabetes in their everyday lives. Rather than merely teaching according to a fixed schedule and cramming knowledge, the education should be parent-centered and provide time for grief and shock. There should also be a greater emphasis on why certain things should be done rather than on what should be done. The routines learned at the hospital made the efforts to be good parents managing the child's disease, and continuing to lead a normal family life, a difficult task. Conclusions: In order to optimize the educational process for families with children newly diagnosed with T1DM an increased focus on the families' perceptions might be helpful in that this could lead to further revelations of the educational process thus making it more understandable for the family members involved. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Diabetes education, Children, Parents, Qualitative research, Type 1, diabetes
in
BMC Pediatrics
volume
12
publisher
BioMed Central
external identifiers
  • wos:000310918000001
  • scopus:84867621765
ISSN
1471-2431
DOI
10.1186/1471-2431-12-165
language
English
LU publication?
yes
id
09ef026e-0daa-48d9-bd83-435c0d4ba201 (old id 3276220)
date added to LUP
2013-01-07 09:39:30
date last changed
2017-06-04 04:02:01
@article{09ef026e-0daa-48d9-bd83-435c0d4ba201,
  abstract     = {Background: The number of new cases of type 1 diabetes mellitus (T1DM) has increased substantially in recent years and it is now one of the most common long-term endocrine disorders in childhood. In Sweden the child and family are hospitalised in accordance with the national guidelines for one to two weeks at diagnosis. The purpose of this study was to describe parents' perceptions of the educational process when their child is newly diagnosed with T1DM. Methods: Qualitative interviews were performed in the south western part of Sweden with ten mothers and eight fathers of children, diagnosed with T1DM, at three to six months after they had received the diagnosis. The interviews were analysed using deductive content analysis and Mol's philosophical theory. Results: The results show that almost all parents had experienced the educational process as being satisfactory. However, most parents felt that the teaching needed to be adapted to the individual families and to help them to learn to live with diabetes in their everyday lives. Rather than merely teaching according to a fixed schedule and cramming knowledge, the education should be parent-centered and provide time for grief and shock. There should also be a greater emphasis on why certain things should be done rather than on what should be done. The routines learned at the hospital made the efforts to be good parents managing the child's disease, and continuing to lead a normal family life, a difficult task. Conclusions: In order to optimize the educational process for families with children newly diagnosed with T1DM an increased focus on the families' perceptions might be helpful in that this could lead to further revelations of the educational process thus making it more understandable for the family members involved.},
  author       = {Jönsson, Lisbeth and Hallström, Inger and Lundqvist, Anita},
  issn         = {1471-2431},
  keyword      = {Diabetes education,Children,Parents,Qualitative research,Type 1,diabetes},
  language     = {eng},
  publisher    = {BioMed Central},
  series       = {BMC Pediatrics},
  title        = {"The Logic of Care" - Parents' perceptions of the educational process when a child is newly diagnosed with type 1 diabetes},
  url          = {http://dx.doi.org/10.1186/1471-2431-12-165},
  volume       = {12},
  year         = {2012},
}