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Quality of Life of an Adolescent Boy with Autism and Intellectual Impairment, a unique housing situation.

Hübel, Marie LU ; Linder, Karin LU and Sivberg, Bengt LU (2006) In International Journal of Disability, Community and Rehabilitation 5(1).
Abstract
Abstract in Undetermined
Individuals with the diagnosis of autism need well-functioning home environment to make progress and achieve an acceptable level of quality of life (QoL). Long-term mapping of the daily life of individual persons with disabilities with the purpose of understanding their living situation is rare. The present study deals with the QoL of an adolescent boy with autism and intellectual impairment and living in an apartment of his own together with four caregivers, during a period of three and a half years. This single case study reports the qualitative analysis of the caregivers' open diary and repeated interviews capturing the boy's daily life and explores the staff's experiences of the boy's living situation. The... (More)
Abstract in Undetermined
Individuals with the diagnosis of autism need well-functioning home environment to make progress and achieve an acceptable level of quality of life (QoL). Long-term mapping of the daily life of individual persons with disabilities with the purpose of understanding their living situation is rare. The present study deals with the QoL of an adolescent boy with autism and intellectual impairment and living in an apartment of his own together with four caregivers, during a period of three and a half years. This single case study reports the qualitative analysis of the caregivers' open diary and repeated interviews capturing the boy's daily life and explores the staff's experiences of the boy's living situation. The results describe how important aspects for the QoL such as communication, activities, mood and regulation, were influenced by the boy's home care environment. The staff paid most attention to the boy's mood and meal-related situations and seemed to be unaware of the importance of improving communication. Findings in the diary and the interviews indicate that the boy seemed to regress in important skills and abilities despite the efforts of the staff. (Less)
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Contribution to journal
publication status
published
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in
International Journal of Disability, Community and Rehabilitation
volume
5
issue
1
publisher
International Disability Research Centre on Social & Economic Innovation
ISSN
1703-3381
language
English
LU publication?
yes
id
0f5ed50c-e579-4ae6-9648-2e485f38745e (old id 3459624)
alternative location
http://www.ijdcr.ca/VOL05_01_CAN/articles/hubel.shtml
date added to LUP
2016-04-01 16:21:07
date last changed
2021-03-23 22:26:08
@article{0f5ed50c-e579-4ae6-9648-2e485f38745e,
  abstract     = {Abstract in Undetermined<br/>Individuals with the diagnosis of autism need well-functioning home environment to make progress and achieve an acceptable level of quality of life (QoL). Long-term mapping of the daily life of individual persons with disabilities with the purpose of understanding their living situation is rare. The present study deals with the QoL of an adolescent boy with autism and intellectual impairment and living in an apartment of his own together with four caregivers, during a period of three and a half years. This single case study reports the qualitative analysis of the caregivers' open diary and repeated interviews capturing the boy's daily life and explores the staff's experiences of the boy's living situation. The results describe how important aspects for the QoL such as communication, activities, mood and regulation, were influenced by the boy's home care environment. The staff paid most attention to the boy's mood and meal-related situations and seemed to be unaware of the importance of improving communication. Findings in the diary and the interviews indicate that the boy seemed to regress in important skills and abilities despite the efforts of the staff.},
  author       = {Hübel, Marie and Linder, Karin and Sivberg, Bengt},
  issn         = {1703-3381},
  language     = {eng},
  number       = {1},
  publisher    = {International Disability Research Centre on Social & Economic Innovation},
  series       = {International Journal of Disability, Community and Rehabilitation},
  title        = {Quality of Life of an Adolescent Boy with Autism and Intellectual Impairment, a unique housing situation.},
  url          = {http://www.ijdcr.ca/VOL05_01_CAN/articles/hubel.shtml},
  volume       = {5},
  year         = {2006},
}