Talassemi i Sverige – Behandlingsmål och uppföljning varierar kraftigt.
Oemichen, M and Ljung, Rolf LU
(2006)
In Läkartidningen
103(47).
p.3714-3715
- Abstract
- A survey of transfusion-dependent thalassaemia was conducted to study
epidemiology, treatment and follow-up routines as a basis for future discussions. Questionnaires were sent to 97 clinics in Sweden. Responses were submitted by 86 of the clinics, 21 of which cared for 32 patients (18 children, 14 adults; i.e.only one or a few patients per hospital). Ten of those 32 (33 procent) patients were born in Sweden. Children were given transfusions more frequently and had higher mean haemoglobin. Iron overload was treated with deferoxamine in 84 procent of the patients and with deferiprone in 44 procent. The mean ferritin concentration was 1670 g/l, although 34 procent (11/32) had levels > 2000 g/l. Follow-up monitoring of iron... (More) - A survey of transfusion-dependent thalassaemia was conducted to study
epidemiology, treatment and follow-up routines as a basis for future discussions. Questionnaires were sent to 97 clinics in Sweden. Responses were submitted by 86 of the clinics, 21 of which cared for 32 patients (18 children, 14 adults; i.e.only one or a few patients per hospital). Ten of those 32 (33 procent) patients were born in Sweden. Children were given transfusions more frequently and had higher mean haemoglobin. Iron overload was treated with deferoxamine in 84 procent of the patients and with deferiprone in 44 procent. The mean ferritin concentration was 1670 g/l, although 34 procent (11/32) had levels > 2000 g/l. Follow-up monitoring of iron overload varied considerably, and ferritin analysis was the only routine examination in 28 procent of the patients. Furthermore, 47 procent had no regular follow-up evaluations of endocrine organ function. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/1136647
- author
- Oemichen, M
and Ljung, Rolf
LU
- organization
- publishing date
- 2006
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Läkartidningen
- volume
- 103
- issue
- 47
- pages
- 3714 - 3715
- publisher
- Swedish Medical Association
- external identifiers
-
- scopus:33751569852
- ISSN
- 0023-7205
- language
- Swedish
- LU publication?
- yes
- id
- 34b0644a-c53a-4f9e-b633-87c1a37fdc62 (old id 1136647)
- alternative location
- http://ltarkiv.lakartidningen.se/2006/temp/pda32578.pdf
- date added to LUP
- 2016-04-01 15:46:35
- date last changed
- 2022-01-28 07:00:27
@article{34b0644a-c53a-4f9e-b633-87c1a37fdc62,
abstract = {{A survey of transfusion-dependent thalassaemia was conducted to study<br/><br>
epidemiology, treatment and follow-up routines as a basis for future discussions. Questionnaires were sent to 97 clinics in Sweden. Responses were submitted by 86 of the clinics, 21 of which cared for 32 patients (18 children, 14 adults; i.e.only one or a few patients per hospital). Ten of those 32 (33 procent) patients were born in Sweden. Children were given transfusions more frequently and had higher mean haemoglobin. Iron overload was treated with deferoxamine in 84 procent of the patients and with deferiprone in 44 procent. The mean ferritin concentration was 1670 g/l, although 34 procent (11/32) had levels > 2000 g/l. Follow-up monitoring of iron overload varied considerably, and ferritin analysis was the only routine examination in 28 procent of the patients. Furthermore, 47 procent had no regular follow-up evaluations of endocrine organ function.}},
author = {{Oemichen, M and Ljung, Rolf}},
issn = {{0023-7205}},
language = {{swe}},
number = {{47}},
pages = {{3714--3715}},
publisher = {{Swedish Medical Association}},
series = {{Läkartidningen}},
title = {{Talassemi i Sverige – Behandlingsmål och uppföljning varierar kraftigt.}},
url = {{http://ltarkiv.lakartidningen.se/2006/temp/pda32578.pdf}},
volume = {{103}},
year = {{2006}},
}