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Potential adult sibling stem cell donors' perceptions and opinions regarding an information and care model.

Kisch, Anita ; Lenhoff, Stig LU ; Bengtsson, Mariette and Bolmsjö, Ingrid (2013) In Bone Marrow Transplantation 48(8). p.1133-1137
Abstract
The first international recommendations and guidelines for the care of sibling stem cell donors were established in 2010, and have not yet been evaluated. However, a model for information and care of adult potential sibling stem cell donors (the IC model) developed and introduced at the Skåne University Hospital, Lund, Sweden, in 2005 conforms closely to them. The IC model aims to protect the privacy of potential donors, support and respect their free choice, and identify quickly those unwilling or unable to donate and thus minimize delay in seeking alternative donors. To evaluate the IC model a questionnaire survey in 2010 gathered the perceptions and views on information provision; influences over decision making; and care provision... (More)
The first international recommendations and guidelines for the care of sibling stem cell donors were established in 2010, and have not yet been evaluated. However, a model for information and care of adult potential sibling stem cell donors (the IC model) developed and introduced at the Skåne University Hospital, Lund, Sweden, in 2005 conforms closely to them. The IC model aims to protect the privacy of potential donors, support and respect their free choice, and identify quickly those unwilling or unable to donate and thus minimize delay in seeking alternative donors. To evaluate the IC model a questionnaire survey in 2010 gathered the perceptions and views on information provision; influences over decision making; and care provision under the IC model of 148 adult siblings informed about SCT donation, and asked to undergo HLA-typing since September 2005 at the hospital. The results suggest the IC model works well but highlights areas for improvement, such as in delivery of HLA typing results to non-matched siblings, and a need to further prevent complicating influence from health professionals and relatives on the decision to undergo HLA typing. Thus improved, the IC model could provide the groundwork for other SCT units seeking to implement the recommendations and guidelines.Bone Marrow Transplantation advance online publication, 21 January 2013; doi:10.1038/bmt.2012.283. (Less)
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author
; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Bone Marrow Transplantation
volume
48
issue
8
pages
1133 - 1137
publisher
Nature Publishing Group
external identifiers
  • wos:000322819900020
  • pmid:23334271
  • scopus:84881370732
ISSN
1476-5365
DOI
10.1038/bmt.2012.283
language
English
LU publication?
yes
id
35728a16-a18d-43f1-9a48-57f43e92c678 (old id 3438559)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/23334271?dopt=Abstract
date added to LUP
2016-04-01 11:13:33
date last changed
2022-02-25 17:28:40
@article{35728a16-a18d-43f1-9a48-57f43e92c678,
  abstract     = {{The first international recommendations and guidelines for the care of sibling stem cell donors were established in 2010, and have not yet been evaluated. However, a model for information and care of adult potential sibling stem cell donors (the IC model) developed and introduced at the Skåne University Hospital, Lund, Sweden, in 2005 conforms closely to them. The IC model aims to protect the privacy of potential donors, support and respect their free choice, and identify quickly those unwilling or unable to donate and thus minimize delay in seeking alternative donors. To evaluate the IC model a questionnaire survey in 2010 gathered the perceptions and views on information provision; influences over decision making; and care provision under the IC model of 148 adult siblings informed about SCT donation, and asked to undergo HLA-typing since September 2005 at the hospital. The results suggest the IC model works well but highlights areas for improvement, such as in delivery of HLA typing results to non-matched siblings, and a need to further prevent complicating influence from health professionals and relatives on the decision to undergo HLA typing. Thus improved, the IC model could provide the groundwork for other SCT units seeking to implement the recommendations and guidelines.Bone Marrow Transplantation advance online publication, 21 January 2013; doi:10.1038/bmt.2012.283.}},
  author       = {{Kisch, Anita and Lenhoff, Stig and Bengtsson, Mariette and Bolmsjö, Ingrid}},
  issn         = {{1476-5365}},
  language     = {{eng}},
  number       = {{8}},
  pages        = {{1133--1137}},
  publisher    = {{Nature Publishing Group}},
  series       = {{Bone Marrow Transplantation}},
  title        = {{Potential adult sibling stem cell donors' perceptions and opinions regarding an information and care model.}},
  url          = {{http://dx.doi.org/10.1038/bmt.2012.283}},
  doi          = {{10.1038/bmt.2012.283}},
  volume       = {{48}},
  year         = {{2013}},
}